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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
An insider's guide to searching online, communicating with your physician, and maximizing your health from a doctor who works at Google. We've all been there. Late at night, staring into the glow of a phone trying to make sense of some health-related issue that we know nothing about. In Searching for Health, Dr. Kapil Parakh, with Anna Dirksen, brings to life knowledge he gained from working at Google and practicing medicine. Helping readers avoid common pitfalls, get the information they need, and partner effectively with their health team to figure out a path to good health together, the book distills decades of scientific research into a set of easy-to-follow tips. It also incorporates • firsthand accounts of common challenges on the path to good health; • an inside look at how doctors approach and assess health-related information; • techniques that consumers can use to locate evidence-based information online, whether in blogs, social media postings, forums, or news stories; • guidance on how individuals can make the best use of new technologies, such as health trackers and other applications; • recommendations to help patients assess health information for themselves and make decisions based on what they find; • brief summaries of the scientific studies underpinning the recommendations; and • online and offline resources—including handy checklists and worksheets—to help readers prepare for appointments, discuss tough topics with their doctors, and take control of their health. In addition to helping readers find evidence-based information online, the book provides insights into what you can expect from a visit to a doctor or hospital, how to make a decision about surgery or other treatment, what tests doctors will order, which symptom trackers are really effective, and what questions to ask about medications, supplements, and more. Searching for Health is a valuable resource for charting a healthier path through life.
Most industries have plunged into data automation, but health care organizations have lagged in moving patients' medical records from paper to computers. In its first edition, this book presented a blueprint for introducing the computer-based patient record (CPR). The revised edition adds new information to the original book. One section describes recent developments, including the creation of a computer-based patient record institute. An international chapter highlights what is new in this still-emerging technology. An expert committee explores the potential of machine-readable CPRs to improve diagnostic and care decisions, provide a database for policymaking, and much more, addressing these key questions: Who uses patient records? What technology is available and what further research is necessary to meet users' needs? What should government, medical organizations, and others do to make the transition to CPRs? The volume also explores such issues as privacy and confidentiality, costs, the need for training, legal barriers to CPRs, and other key topics.
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
This well-designed 3-ring organizer makes a familys medical records portable, easily updated, and readily accessible. Included are places to record details for identification and medications as well as immunizations, doctors names and phone numbers, growth charts, and more.
Each year, more than 33 million Americans receive health care for mental or substance-use conditions, or both. Together, mental and substance-use illnesses are the leading cause of death and disability for women, the highest for men ages 15-44, and the second highest for all men. Effective treatments exist, but services are frequently fragmented and, as with general health care, there are barriers that prevent many from receiving these treatments as designed or at all. The consequences of this are seriousâ€"for these individuals and their families; their employers and the workforce; for the nation's economy; as well as the education, welfare, and justice systems. Improving the Quality of Health Care for Mental and Substance-Use Conditions examines the distinctive characteristics of health care for mental and substance-use conditions, including payment, benefit coverage, and regulatory issues, as well as health care organization and delivery issues. This new volume in the Quality Chasm series puts forth an agenda for improving the quality of this care based on this analysis. Patients and their families, primary health care providers, specialty mental health and substance-use treatment providers, health care organizations, health plans, purchasers of group health care, and all involved in health care for mental and substanceâ€"use conditions will benefit from this guide to achieving better care.
Health Information Exchange: Navigating and Managing a Network of Health Information Systems, Second Edition, now fully updated, is a practical guide on how to understand, manage and make use of a health information exchange infrastructure, which moves patient-centered information within the health care system. The book informs and guides the development of new infrastructures as well as the management of existing and expanding infrastructures across the globe. Sections explore the reasons for the health information exchange (HIE) infrastructures, how to manage them, examines the key drivers of HIE, and barriers to their widespread use. In addition, the book explains the underlying technologies and methods for conducting HIE across communities as well as nations. Finally, the book explains the principles of governing an organization that chiefly moves protected health information around. The text unravels the complexities of HIE and provides guidance for those who need to access HIE data and support operations. - Encompasses comprehensive knowledge on the technology and governance of health information exchanges (HIEs) - Presents business school style case studies that explore why a given HIE has or hasn't been successful - Discusses the kinds of data and practical examples of the infrastructure required to exchange clinical data to support modern medicine in a world of disparate EHR systems