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This volume explores the interaction between psychosocial considerations, social support and public attitudes in both individual and professional responses to HIV. The contributors explore the changing nature of relationships - on the personal level and with the caring professions and agencies - which the onset and//or disclosure of HIV sets in train.
Europe's "Black Death" contributed to the rise of nation states, mercantile economies, and even the Reformation. Will the AIDS epidemic have similar dramatic effects on the social and political landscape of the twenty-first century? This readable volume looks at the impact of AIDS since its emergence and suggests its effects in the next decade, when a million or more Americans will likely die of the disease. The Social Impact of AIDS in the United States addresses some of the most sensitive and controversial issues in the public debate over AIDS. This landmark book explores how AIDS has affected fundamental policies and practices in our major institutions, examining: How America's major religious organizations have dealt with sometimes conflicting values: the imperative of care for the sick versus traditional views of homosexuality and drug use. Hotly debated public health measures, such as HIV antibody testing and screening, tracing of sexual contacts, and quarantine. The potential risk of HIV infection to and from health care workers. How AIDS activists have brought about major change in the way new drugs are brought to the marketplace. The impact of AIDS on community-based organizations, from volunteers caring for individuals to the highly political ACT-UP organization. Coping with HIV infection in prisons. Two case studies shed light on HIV and the family relationship. One reports on some efforts to gain legal recognition for nonmarital relationships, and the other examines foster care programs for newborns with the HIV virus. A case study of New York City details how selected institutions interact to give what may be a picture of AIDS in the future. This clear and comprehensive presentation will be of interest to anyone concerned about AIDS and its impact on the country: health professionals, sociologists, psychologists, advocates for at-risk populations, and interested individuals.
Up until now, many articles have been written to portray stigma and discrimination which occur with people living with HIV/AIDS (PLWHA) in many parts of the world. But this is the first book which attempts to put together results from empirical research relating to stigma, discrimination and living with HIV/AIDS. The focus of this book is on issues relevant to stigma and discrimination which have occurred to individuals and groups in different parts of the globe, as well as how these individuals and groups attempt to deal with HIV/AIDS. The book comprises chapters written by researchers who carry out their projects in different parts of the world and each chapter contains empirical information based on real life situations. This can be used as an evidence for health care providers to implement socially and culturally appropriate services to assist individuals and groups who are living with HIV/AIDS in many societies. The book is of interest to health care providers who have their interests in working with individuals and groups who are living with HIV/AIDS from a cross-cultural perspective. It will be useful for students and lecturers in courses such as anthropology, sociology, social work, nursing, public health and medicine. In particular, it will assist health workers in community health centres and hospitals in understanding issues related to HIV/AIDS and hence provide culturally sensitive health care to people living with HIV/AIDS from different social and cultural backgrounds. The book is useful for anyone who is interested in HIV/AIDS-related stigma and discrimination in diverse social and cultural settings.
This is the first comprehensive review and examination of the effectiveness of behavioral interventions to reduce HIV-related high-risk behaviors. It describes current theoretical models and emprical studies of behavioral interventions; details the state-of-the-art of behavioral intervention strategies for high-risk populations; and identifies limitations and gaps in prior research and discusses implications for future investigations. This vital text will help researchers and clinicians plan, develop, and evaluate behavioral change approaches to HIV prevention.
As the HIV epidemic enters its third decade, it remains one of the most pressing health issues of our time. Many aspects of the disease remain under-researched and inadequate attention has been given to the implications for the relationships and daily lives of those affected by HIV. Disclosing an HIV diagnosis remains a decision process fraught with difficulty and despite encouraging medical advances, an HIV diagnosis creates significant anxiety and distress about one's health, self-identity, and close relationships. This book provides an overarching view of existing research on privacy and disclosure while bringing together two significant areas: self-disclosure as a communication process and the social/relational consequences of HIV/AIDS. The unifying framework is communication privacy management and the focus of this volume is on private voluntary relational disclosure as opposed to forced or public disclosure. Utilizing numerous interviews with HIV patients and their families, the authors examine disclosure in a variety of social contexts, including relationships with intimate partners, families, friends, health workers, and coworkers. Of note are the examinations of predictors of willingness to disclose HIV infection, the message features of disclosure, and the consequences of both disclosure and non-disclosure. This volume, with its personal exercises and sources of additional information, offers an invaluable resource for individuals living with HIV and their significant others, as well as for professionals in the fields of health communication, social and health psychology, family therapy, clinical and counseling psychology, relationship research, infectious disease, and social service.
Despite decades of attention on building a global HIV research and programming agenda, HIV in older populations has generally been neglected until recently. This new book focuses on HIV and aging in the context of ageism with regard to prevention, treatment guidelines, funding, and the engagement of communities and health and social service organizations. The lack of perceived HIV risk in late adulthood among older people themselves, as well on the part of providers and society in general, has led to a lack of investment in education, testing, and programmatic responses. Ageism perpetuates the invisibility of older adults and, in turn, renders current medical and social service systems unprepared to respond to patients’ needs. While ageism may lead to some advantages – discounts for services, for example – it is the negative aspects that must be addressed when determining the appropriate community-level response to the epidemic.
The first decade of the HIV/AIDS epidemic was defined by young gay men dying and activism. The second decade saw people of colour and women account for the majority of those with HIV, as well as the development of effective drugs and the hope that HIV could become treatable or even curable. In this third decade, HIV has evolved into a chronic manageable disease. Few would have ever thought that there would be large numbers of older adults living with HIV in our lifetimes. Developing a strategy to best sustain the health and quality of life for the ageing population living with HIV requires a rigorous assessment of this group's characteristics and needs. Research on Older Adults with HIV (ROAH), conducted by the AIDS Community Research Initiative of America (ACRIA), is the first step to begin to establish a valid comprehensive knowledge-base of the unique characteristics and needs of this growing population.
The AIDS epidemic in Sub-Saharan Africa continues to affect all facets of life throughout the subcontinent. Deaths related to AIDS have driven down the life expectancy rate of residents in Zambia, Kenya, and Uganda with far-reaching implications. This book details the current state of the AIDS epidemic in Africa and what is known about the behaviors that contribute to the transmission of the HIV infection. It lays out what research is needed and what is necessary to design more effective prevention programs.
WINNER, 2017 RACHEL CARSON PRIZE, SOCIETY FOR THE SOCIAL STUDIES OF SCIENCE In 2002, Sierra Leone emerged from a decadelong civil war. Seeking international attention and development aid, its government faced a dilemma. Though devastated by conflict, Sierra Leone had a low prevalence of HIV. However, like most African countries, it stood to benefit from a large influx of foreign funds specifically targeted at HIV/AIDS prevention and care. What Adia Benton chronicles in this ethnographically rich and often moving book is how one war-ravaged nation reoriented itself as a country suffering from HIV at the expense of other, more pressing health concerns. During her fieldwork in the capital, Freetown, a city of one million people, at least thirty NGOs administered internationally funded programs that included HIV/AIDS prevention and care. Benton probes why HIV exceptionalism—the idea that HIV is an exceptional disease requiring an exceptional response—continues to guide approaches to the epidemic worldwide and especially in Africa, even in low-prevalence settings. In the fourth decade since the emergence of HIV/AIDS, many today are questioning whether the effort and money spent on this health crisis has in fact helped or exacerbated the problem. HIV Exceptionalism does this and more, asking, what are the unanticipated consequences that HIV/AIDS development programs engender?
This Handbook provides a comprehensive overview of the theories, methods and approaches for reducing HIV-associated risk behaviors. It represents the first single source of information about HIV prevention research in developed and developing countries. It will be an important resource for students, researchers and clinicians in the field.