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Looking for a better way to manage life with a chronic illness? Despite Lupus will guide you through the proven steps needed to obtain the emotional and physical wellness you deserve.
It is time, at last, to speak the truth about Lupus, and the truth is this. No one knows currently if your autoimmune system is the reason you have Lupus. For me, if this is the truth, why aren’t we implementing blood transfusions? New blood, could that be the cure? This book is about bringing awareness from one person’s perspective, as to what is going on in her life with Lupus. “Let me help you take back your life by sharing my story. I hope this will provide you with a clear understanding of what Lupus is and how to maintain your body daily. Moreover, I want you to know what to do if you or someone you know is affected by this madly disease”.
“This book from Liz Shaw-Stabler brings passion, guidance, and hope to the struggle of people suffering from chronic illnesses. Liz has spent decades battling systemic lupus, even enduring kidney failure and the challenges of living each day after day when she feels ill and then the near-miracle of kidney transplant—and all of the effects on the living of life. Liz is greatly admired by all who know her—a fighter, dedicated not only to personally overcoming illness, but also to bringing health care to people of color—a group that SLE strikes particularly hard. Shaw-Stabler is a professional educator and a passionate advocate, devoting hundreds of hours to founding LupusCare, which provides education and group meetings for a community in Los Angeles that is rich in African American and Latino families—a community that needs much better access to health care and health education. This book is another step in the battle. Read it to understand, to learn, and to discover how one person can influence the battle for personal and public health. Finally, read it to be inspired and to be moved to action. This book and its author are national treasures”—Bevra H Hahn, MD Professor of Medicine Chief of Rheumatology, David Geffen School of Medicine at UCLA, Great Admirer of Liz Stabler-Shaw Los Angeles, California, June 2010. “Lupus is a life-altering experience and wisdom provided our teachers and mentors can be enabling and empowering. Liz Shaw-Stabler has helped hundreds of women with her reassuring advice”—Daniel J. Wallace, MD, FACP, FACR Chief of Rheumatology at Cedares-Sinai Medical Center Liz Shaw-Stabler was born in East Texas and received her undergraduate degree from Prairie View A and M University. She moved to Chicago, Illinois, and began her career immediately after graduation. After living in Chicago for a few years, teaching high school, acquiring a Master’s Degree and doing freelance modeling, she slowed down long enough to get married. She is the mother of one daughter who resides in Chicago. Liz now lives with her husband, Jay, in Inglewood, California, where she became the Founder and Executive Director of the Center for Lupus Care Incorporated and organization that advocates for under-served lupus patients. Liz is a thirty-year lupus patient and has suffered many life-threatening illnesses but continued to believe that she was created to do something much bigger than her illness.
Nine-year-old Lisa tells her little sister all about Mommy being sick with lupus. She has to be creative in order to help her little sister understand the ins and outs of such a complex disease. Lisa answers the question, "What is Lupus?" and "How does it affect Mommy?" like only a child can.
Now completely updated! The best-selling, most comprehensive guide to lupus, its complications, and management. Lupus is an autoimmune disease that can attack any body organ. It is three times more common in the United States today than it was in the 1980s, so there is an increased need for accurate, practical information on this potentially devastating disease. Lupus expert and clinician Donald E. Thomas, Jr., MD, provides all the helpful information patients need so they can understand and treat this disease. Highlighting amazing advancements in the diagnosis and treatment of lupus, this edition includes new and expanded information on: • The latest FDA-approved medications • How lupus affects different body parts • Advanced labs that improve lupus diagnosis and treatment • The role of the microbiome and anti-inflammatory diets • Updated recommendations for those who are pregnant or breastfeeding • Childhood-onset lupus • The interaction between COVID-19 and lupus • Non-drug treatments, complementary medicine, and medical cannabis The gold standard since it was first published and carefully reviewed by experts in the field, the latest edition of The Lupus Encyclopedia is essential for patients, health care providers, and families. Bonus content on insurance issues and information about working with lupus and disability is also available online. Endorsed by The Lupus Foundation of America Contributors: Jemima Albayda, MD; Divya Angra, MD; Alan N. Baer, MD; Sasha Bernatsky, MD, PhD; George Bertsias, MD, PhD; Ashira D. Blazer, MD; Ian Bruce, MD; Jill Buyon, MD; Yashaar Chaichian, MD; Maria Chou, MD; Sharon Christie, Esq; Angelique N. Collamer, MD; Ashté Collins, MD; Caitlin O. Cruz, MD; Mark M. Cruz, MD; Dana DiRenzo, MD; Jess D. Edison, MD; Titilola Falasinnu, PhD; Andrea Fava, MD; Cheri Frey, MD; Neda F. Gould, PhD; Nishant Gupta, MD; Sarthak Gupta, MD; Sarfaraz Hasni, MD; David Hunt, MD; Mariana J. Kaplan, MD; Alfred Kim, MD; Deborah Lyu Kim, DO; Rukmini Konatalapalli, MD; Fotios Koumpouras, MD; Vasileios C. Kyttaris, MD; Jerik Leung, MPH; Hector A. Medina, MD; Timothy Niewold, MD; Julie Nusbaum, MD; Ginette Okoye, MD; Sarah L. Patterson, MD; Ziv Paz, MD; Darryn Potosky, MD; Rachel C. Robbins, MD; Neha S. Shah, MD; Matthew A. Sherman, MD; Yevgeniy Sheyn, MD; Julia F. Simard, ScD; Jonathan Solomon, MD; Rodger Stitt, MD; George Stojan, MD; Sangeeta Sule, MD; Barbara Taylor, CPPM, CRHC; George Tsokos, MD; Ian Ward, MD; Emma Weeding, MD; Arthur Weinstein, MD; Sean A. Whelton, MD
Speak Your Truth: How You Can Recover from Lupus is part memoir, part self-help book. Denise Dorfman takes you on her own self-healing journey and teaches you how she recovered from lupus. She now lives a happy, healthy life with no active disease. If you have been diagnosed with lupus, you too can learn how to improve your health and even recover from lupus by learning the main probable mental causes of lupus; using your mind to manifest wellness; employing simple lifestyle changes to feel better each day; and choosing the right affirmations for the major symptoms of lupus you are experiencing.
Julie's Story, 'My Life With Lupus', sums up the challenges and struggles of a young woman's life in dealing with the very unpredictable disease, Lupus. Julie was a young and energetic twenty- four- year- old woman with her whole life ahead of her. Planning the wedding of her dreams to her college sweetheart and finishing her Master's degree in Social Work, life couldn't get any better! Although life was headed in the right direction for Julie, her health had other plans. Julie began noticing vague symptoms which became bothersome to her studies. She hesitated to voice these problems due to the fact 'she looked fine on the outside'. For a year, Julie dealt with ongoing fatigue and pain which was attributed to the stress of planning a wedding and working toward a master's degree. Eventually, the symptoms worsened and Julie needed to seek medical attention. What would the doctors tell her? How would she react? Ten years later, Julie is talking about how she coped through the challenges and got through the difficult days in dealing with lupus. "Life is a rollercoaster", Julie says. "It has its ups and downs, but you just have to take one day at a time. I feel God has blessed me with Lupus, so that I can reach out to others. My life could be a whole lot worse, and I've seen a whole lot worse". Julie's Story, 'My Life With Lupus' has been written for all of those who suffer from an autoimmune disease. Especially the great friends I've made along the way. Some of the proceeds of this book will be donated to the Lupus Foundation to help find a cure for this very unpredictable, life-threatening disease!
A completely updated and revised edition that provides comfort, information, strategies, and advice for those living with lupus. There is no cure for lupus, so a diagnosis of this potentially debilitating autoimmune disorder is understandably disquieting. This new edition of Coping with Lupus answers all the important questions one might have and offers practical coping strategies to help those with lupus live their lives to the fullest. Dr. Robert Phillips, the founder and director of the Center for Coping, lends his expertise in dealing with the psychological aspects of chronic health problems to address a range of issues, including: The medical facts-what lupus is, and how it is diagnosed and treated Medications, nonmedical pain-control methods, exercise, and diet Lifestyle changes to maintain optimal physical and emotional health Coping strategies for virtually every facet of living with lupus
More than four million Americans- 90 percent of them women- have been diagnosed with systemic lupus erythematosus, a chronice, debilitating disease of the autoimmune system that manifests as extreme fatigue, arthritic pain, rashes, and a host of other symptons.
Between one and two million people in the United States are known to have lupus. But many more people may have it and not know it. Lupus is a chronic autoimmune disease, which means the body's immune system cannot tell the difference between healthy cells and invaders like viruses and bacteria. In lupus, the immune system attacks tissues throughout the body. In mild cases symptoms include joint pain and fatigue. The worst cases can end in kidney disease and even death. Lupus is difficult to diagnose and treatment is complicated. Medications can treat symptoms, but there is no cure. People who suffer from this disease need to rely on their families and friends to help them out when symptoms flare up. In 2011, USA TODAY, the Nation's No. 1 Newspaper, reported that for the first time in fifty-six years, the U.S. Food and Drug Administration approved a new drug to treat lupus. In this book you will follow the stories of people living with lupus and learn about causes and symptoms of this debilitating disease. You'll find out about available treatments and ongoing research into new medications and therapies. You'll also receive guidance on how to cope with lupus or help a loved one manage symptoms and find help.