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The Covid pandemic has led us into an upheaval that has made us question the certainties underlying what it means to be a human being in our age; the ability to control medical and social facts through evidence. For the first-time western and developed countries have had to confront what many populations from the developing world (Africa. Latin America, etc) face on a daily basis with HIV and Ebola, etc. The Interconnectedness of Globalization has been the real disseminating catalyst of COVID 19, and many scientists wonder if this virus is the result of the Anthropocene age, with its indisputable lack of respect for the natural ecosystems. The virus has demonstrated that our frailty is only skin deep, and it has not only brought death, despair, but it has broken our interdependency as human beings, by imposing self- isolation as well as creating new ways of connections so that safety cannot imply loneliness. In this book, the coping strategies that originate from the multiple languages of care such as narrative, literature, science, philosophy, art, digital science are shown not only as reflective tools to promote health but also wellbeing amongst carers, patients, students, and citizens of our planet Earth. These strategies should be supported by the decision makers since they are low-cost investments necessary to make the health care system work. They however require a change of cultural paradigm. This book is a useful toolkit for patients, citizens and care services physicians who want to learn more on how to live better with this new world.
NEW YORK TIMES BESTSELLER • The award-winning book that inspired an Apple Original series from Apple TV+ • A landmark investigation of patient deaths at a New Orleans hospital ravaged by Hurricane Katrina—and the suspenseful portrayal of the quest for truth and justice—from a Pulitzer Prize–winning physician and reporter “An amazing tale, as inexorable as a Greek tragedy and as gripping as a whodunit.”—Dallas Morning News After Hurricane Katrina struck and power failed, amid rising floodwaters and heat, exhausted staff at Memorial Medical Center designated certain patients last for rescue. Months later, a doctor and two nurses were arrested and accused of injecting some of those patients with life-ending drugs. Five Days at Memorial, the culmination of six years of reporting by Pulitzer Prize winner Sheri Fink, unspools the mystery, bringing us inside a hospital fighting for its life and into the most charged questions in health care: which patients should be prioritized, and can health care professionals ever be excused for hastening death? Transforming our understanding of human nature in crisis, Five Days at Memorial exposes the hidden dilemmas of end-of-life care and reveals how ill-prepared we are for large-scale disasters—and how we can do better. ONE OF THE TEN BEST BOOKS OF THE YEAR: The New York Times Book Review • ONE OF THE BEST BOOKS OF THE YEAR: Chicago Tribune, Seattle Times, Entertainment Weekly, Christian Science Monitor, Kansas City Star WINNER: National Book Critics Circle Award, J. Anthony Lukas Book Prize, PEN/John Kenneth Galbraith Award, Los Angeles Times Book Prize, Ridenhour Book Prize, American Medical Writers Association Medical Book Award, National Association of Science Writers Science in Society Award
There is often a communication disconnect between medical caregivers, including doctors, nurses, therapists, and other assistive medical personnel, and the patient. While medical staff usually understand a patient’s symptoms, causes, and treatments, communicating this understanding to a patient using industry terminologies can lead to confusion and misunderstanding, and similarly, patients may lack the vocabulary to effectively communicate their experiences back to their caregivers. A new approach to communication must be bridged between these groups by individuals who have experience on both sides of the conversation. Previous studies of doctors who end up in the role of the patient reveal how these individuals have a dual perspective on illness, combining their medical knowledge with their own personal medical experiences. Narratives, including autobiographical accounts and fictional stories, can help bridge the gap between experiential and academic knowledge of illness by expanding one’s limited perspective and accessing others’ points of view. Autobiographical and fictional narratives can both play a role in developing a more comprehensive understanding of illness beyond simply treating the disease. It is necessary to further examine the ethical and methodological underpinnings of narrative-based interventions in the education of healthcare professionals, practitioners, and patients. Global Perspectives on Probing Narratives in Healthcare offers a multidisciplinary examination of theoretical and methodological uses of narratives in healthcare by bringing together medical aspects of healthcare and the study of arts and humanities. This illustrates specific applications of narratives in healthcare settings, including improvement of clinical skills, performance of the caring role, and self-efficacy for building a true partnership in the patient’s health journey through varied approaches, up-to-date tools, and resources that can be transferred and adapted to specific educational and healthcare contexts. This diverse collection of expert knowledge and experience is led by editors with over 20 years of teaching experience: Dr. Teresa Casal of the University of Lisbon, Portugal and Dr. Maria de Jesus Cabral of the University of Minho, Portugal. Expertise featured in this book includes contributions from some of the most prestigious academic institutions, including Columbia University in the United States, King’s College in the United Kingdom, University of Padua in Italy, and more. It is an essential resource for healthcare and social science researchers, academics, advanced healthcare students, health training and education departments, healthcare practitioners and patients’ associations, and policymakers in healthcare who are looking to broaden their scope of understanding of the patient experience.
This volume is a unique compendium of professional and practical knowledge on new paradigms and approaches in Teaching, Research, Innovation and Public Engagement that is currently missing from the Higher Education market. The intended audience includes healthcare, biomedical and physical sciences discipline specialists active in teaching, along with their students, science communicators associated with the above subjects and academics involved in relevant research/innovation. Its contents will be organised under the following three themes: 1) Scholarship of Teaching and Learning discussing pertinent knowledge, in this area, and inspiring educators to pursue similar medical humanities endeavours. The focus is on pedagogy/teaching including professional knowledge/expertise, reflections, literature reviews and evidence on a wide range of medical, biomedical and physical sciences topics interweaved with humanities. 2) Research and Innovation discussing novel work and paradigms as examples for future use/implementation. The focus is firstly on original research utilising cutting-edge technology and secondly on innovation with discussions around poetry and building communities. 3) Public Engagement discussing relevant science communication paradigms transferable to other settings and applications. The focus is on practical knowledge and examples from a wide range of healthcare and biomedical sciences topics interweaved with humanities while also exploring the hidden curriculum of public engagement and heritage practices through the lens of equality, diversity and inclusion. All chapter authors are renowned experts in their respective fields, who bring together a wealth of professional and practical knowledge, enriching the narrative of this edited book volume.
Following criticisms of the traditionally polarized view of understanding suffering through either medicine or social justice, Lowe makes a compelling argument for how the medical humanities can help to go beyond the traditional biographical and epistemic breaks to see into the nature and properties of suffering and what is at stake. Lowe demonstrates through analysis of major healthcare workforce issues and incidence of burnout how key policies and practices influence healthcare education and experiences of both patients and health professionals. By including first person narratives from health professionals as a tool and resource, she illustrates how dominant ideas about the self enter practice as a refusal of suffering. Demonstrating the relationship between personal experience, theory and research, Lowe argues for a pedagogy of suffering that shows how the moral anguish implicit in suffering is an ethical response of the emergent self. This is an important read for all those interested in medical humanities, health professional education, person-centred care and the sociology of health and illness.
The book describes the experience of four Social Dreaming Matrices held online between March and May 2020, during the first lockdown caused by the Covid 19 emergency. The pandemic isolated us and imposed prolonged contact with ourselves and our solitary thoughts. Against this backdrop, there was hope for change, a desire for a different kind of sociability and different forms of intimacy. On the basis of this evidence, our research supports the shift "from experiencing trauma to reacting to trauma", looking at a collective traumatic experience not only as something to be overcome but as an opportunity for a transformation that changes our mental schemes in relation to the external context. We have identified Social Dreaming as a privileged technique to overcome a collective traumatic experience, supporting its elaboration through collective feelings, new connections between intuition and rational thought, the discovery of community meanings. The authors's thesis is that the much-needed transition from 'magical thinking' to 'transformative thinking' takes place in a setting that is able to contain the anxieties of life's transitional phases, supporting the creation of new rituals and new social bonds and sustaining the passage from “me” to a “wider we”.
This volume explores the variable meanings and discourses of historical and contemporary pandemics to rethink theories and practices of planetary health. Rather than conflating the planetary with anthropogenic climate change, planetary geo-engineering, or the "global," the volume elaborates a version of planetary health humanities that invites decolonial, creative, and pluridisciplinary modes of thinking and sees "health" as a complex non-anthropocentric process that moves within the multiple scales of the planetary. The volume offers new historical trajectories as it considers an eighteenth-century woman author’s readings of plague, intersecting narratives of nineteenth-century lactation and vaccination, and the forgotten biopolitics of NASA’s Planetary Quarantine Program. It offers accounts of decolonial and oracular planetary health, insists that the role of literature in the health humanities is not merely instrumental, explores viral and planetary co-inhabitations, and scrutinizes inequities faced by global health workers. The volume also includes discussions of cybernetic addiction and the complex entanglements of humans, microbes, and bees. Its concluding interview addresses the concrete impact of current planetary transformations on individual and collective health. Bringing together multiple disciplines, the volume will be of interest to students and scholars in health humanities, literary studies, postcolonial studies, medical history, and narrative medicine.
2019 Foreword INDIES Award, Gold for Anthologies “Medicine still contains an oral tradition, passed down in stories: the stories patients tell us, the ones we tell them, and the ones we tell ourselves,” writes contributor Madaline Harrison. Bodies of Truth continues this tradition through a variety of narrative approaches by writers representing all facets of health care. And, since all of us have been or will be touched by illness or disability—our own or that of a loved one—at some point in our lives, any reader of this anthology can relate to the challenges, frustrations, and pain—both physical and emotional—that the contributors have experienced. Bodies of Truth offers perspectives on a wide array of issues, from food allergies, cancer, and neurology to mental health, autoimmune disorders, and therapeutic music. These experiences are recounted by patients, nurses, doctors, parents, children, caregivers, and others who attempt to articulate the intangible human and emotional factors that surround life when it intersects with the medical field.
This book considers a moment at the turn of the nineteenth century, when literature and medicine seemed embattled in rivalry, to find the fields collaborating to develop interpretive analogies that saw literary texts as organic bodies and anatomical features as legible texts.
Ray Bradbury's Fahrenheit 451 depicts a dystopian society where technology, particularly in the form of mass media and censorship, plays a central role in controlling and manipulating the populace. However, the novel also explores the paradoxical relationship between technology and human connection, highlighting both its potential for liberation and its capacity for oppression. This research paper aims to analyze the multifaceted portrayal of technology in Fahrenheit 451, examining its role in fostering isolation and conformity while also exploring its subversive potential as a tool for resistance and introspection. Through a close reading of the novel's themes, characters, and narrative structure, this paper elucidates Bradbury's nuanced commentary on the complex interplay between technology, knowledge, and freedom.