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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
"The Nation has lost sight of its public health goals and has allowed the system of public health to fall into 'disarray'," from The Future of Public Health. This startling book contains proposals for ensuring that public health service programs are efficient and effective enough to deal not only with the topics of today, but also with those of tomorrow. In addition, the authors make recommendations for core functions in public health assessment, policy development, and service assurances, and identify the level of government--federal, state, and local--at which these functions would best be handled.
V.1. Antiquity through the 18th century -- v.2. 19th through 21st centuries -- v.3. Data and documents.
For seasoned professionals as well as students, A History of Public Health is visionary and essential reading.
Originally published in 1987, Problems and Methods in the History of Medicine is a collection of papers surveying and assessing the particular approaches and techniques which have been used in the history of medicine in the past or are still being developed (from the influence of Annales to the role of the computer). The emphasis is on historical practice rather than methodology in isolation. Besides the topics indicated above, a third problematic is that of historical demography. A common theme to all three groups of paper is the relation between quantitative ‘hard’ data and qualitative ‘soft’ data.
This volume continues the Proceedings of the Calgary History of Medicine Days series which publishes the work of young and emerging researchers in the field, hence providing a unique publishing format. The annual Calgary History of Medicine Days Conference, established in 1991, brings together undergraduate and early graduate students from across Canada, Latin America, the United States, the United Kingdom, and Europe to give paper and poster presentations on a wide variety of topics from the history of medicine and healthcare from a multiple perspectives. The History of Medicine Days offers an annual platform for discussions and exchanges between participants regarding recent research findings, methodological perspectives, and work-in progress descriptions of ongoing historiographical projects. This book explores such topics as historical medical classics, the history of medicine in Canada, the effects of war on medicine, and historical conceptions of blood and circulation. Furthermore, it includes the paper given by the conference’s internationally renowned keynote speaker, Dr Thomas Schlich, Professor of History and History of Medicine at McGill University, Quebec. In addition, it gathers together all the abstracts of the conference for documentation purposes, and is well-illustrated with images and diagrams pertaining to the history of medicine.
Drawing on the work of the Roundtable on Evidence-Based Medicine, the 2007 IOM Annual Meeting assessed some of the rapidly occurring changes in health care related to new diagnostic and treatment tools, emerging genetic insights, the developments in information technology, and healthcare costs, and discussed the need for a stronger focus on evidence to ensure that the promise of scientific discovery and technological innovation is efficiently captured to provide the right care for the right patient at the right time. As new discoveries continue to expand the universe of medical interventions, treatments, and methods of care, the need for a more systematic approach to evidence development and application becomes increasingly critical. Without better information about the effectiveness of different treatment options, the resulting uncertainty can lead to the delivery of services that may be unnecessary, unproven, or even harmful. Improving the evidence-base for medicine holds great potential to increase the quality and efficiency of medical care. The Annual Meeting, held on October 8, 2007, brought together many of the nation's leading authorities on various aspects of the issues - both challenges and opportunities - to present their perspectives and engage in discussion with the IOM membership.
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