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Today many polio survivors are finding themselves with new symptoms reminiscent of the earlier days when they first had polio-new symptoms that trigger frightening memories, along with anxieties that had long been repressed. Dr. Backman, a Clinical Psychologist, examines polio survivors' psychological reactions to their earlier experiences and to their current struggles with the late effects of polio. The Post-Polio Experience includes guidelines for polio survivors on: Coping with the emotional and interpersonal aspects of Post-Polio Syndrome Managing stress and depression Negotiating relationships with family and friends Developing a positive self-concept Improving doctor-patient communication Family and friends learn how to deal with the changing roles that they and the survivor now face, and gain insight into their own needs, as they interact and sometimes conflict with the polio survivor's needs. Mental health providers and physicians gain a better understanding of their patients' psychological reactions to Post-Polio Syndrome-paving the way for more effective treatment.
The effects of polio that occur decades after the disease has run its course--weakness, fatigue, pain, intolerance to cold, difficulty with breathing and swallowing--are often more devastating than the original disease. This book on the diagnosis and management of polio-related health problems is an essential resource for polio survivors and their families and health care providers. Dr. Julie K. Silver, who has both personal and professional experience with post-polio syndrome, begins the book by defining and describing PPS and providing a historical overview of its diagnosis and treatment. Chapters that follow discuss finding good medical care, dealing with symptoms, maintaining proper nutrition and weight, preventing osteoporosis and falls, and sustaining mobility. Dr. Silver reviews the latest in braces, shoes, assistive devices, and wheelchairs and scooters. She also explores issues involving managing pain, surgery, complementary and alternative medicine, safe and comfortable living environments, insurance and disability, and sex and intimacy.
Polio was the most dreaded childhood disease of twentieth-century America. Every summer during the 1940s and 1950s, parents were terrorized by the thought that polio might cripple their children. They warned their children not to drink from public fountains, to avoid swimming pools, and to stay away from movie theaters and other crowded places. Whenever and wherever polio struck, hospitals filled with victims of the virus. Many experienced only temporary paralysis, but others faced a lifetime of disability. Living with Polio is the first book to focus primarily on the personal stories of the men and women who had acute polio and lived with its crippling consequences. Writing from personal experience, polio survivor Daniel J. Wilson shapes this impassioned book with the testimonials of more than one hundred polio victims, focusing on the years between 1930 and 1960. He traces the entire life experience of the survivors—from the alarming diagnosis all the way to the recent development of post-polio syndrome, a condition in which the symptoms of the disease may return two or three decades after they originally surfaced. Living with Polio follows every physical and emotional stage of the disease: the loneliness of long separations from family and friends suffered by hospitalized victims; the rehabilitation facilitieswhere survivors spent a full year or more painfully trying to regain the use of their paralyzed muscles; and then the return home, where they were faced with readjusting to school or work with the aid of braces, crutches, or wheelchairs while their families faced the difficult responsibilities of caring for and supporting a child or spouse with a disability. Poignant and gripping, Living with Polio is a compelling history of the enduring physical and psychological experience of polio straight from the rarely heard voices of its survivors.
Decades after recovering from polio, many aging Americans are grappling with an emergence of new pain, weakness, and fatigue. This unforeseen symphony of symptoms is a central fact of many polio survivors¿ lives. In Traveling Without A Spare: A Survivor¿s Guide to Navigating the Post-Polio Journey, Wenzel A. Leff, MD, explains how polio¿s initial attack depleted the body¿s neuromuscular reserves, so that when former polio patients begin to lose cells to the natural process of aging, they find they are truly ¿traveling without a spare.¿The author draws from his own polio experience and his forty-plus-year career in Internal Medicine to provide polio survivors and their families, caregivers, and healthcare team a clearer understanding of the stages and complexities of polio. This informative book will help survivors evaluate their own bodies and condition, and empower them to make the most of their remaining strength and mobility."With medical and scientific acumen, but also wisdom and humor, Dr. Leff has given us a well-written treatise on post-polio syndrome, as manifested through his professional and personal life."Neil R. Cashman, MDCanada Research Chair at the University of British Columbia,Scientific Director of PrioNet Canada and Chair of Post-Polio Task Force (1997-99)
This paper, archived from the website of Queensland Health, discusses Poliomyelitis (commonly referred to as polio) and has typically been considered a chronic, yet stable disease. Many polio survivors are now experiencing symptoms of fatigue, weakness and pain, which are often debilitating and having a profound effect of their quality of life. These symptoms, that are affecting the individual years after their recovery from their initial episode of polio, are commonly referred to as the "Late Effects of Polio."
Victims of polio recount their experiences, in chapters such as Of Iron Lungs and Wheelchairs, Under the Knife, Adult Polio, Old Timers, Complete (or Almost Complete) Recovery, Active Lives, and Late Effects. The 35 stories range between the 1930s and the 1990s and reveal much about people's perception of the disease, the medical care and providers, the social reaction, and the evolution of memory through the years. Annotation copyright by Book News, Inc., Portland, OR
"Report of research into the impact of Poliomyelitis and its late effects on survivors"--Provided by publisher.