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This new guide focuses on the different uses and applications of biomedical information resources available on the Internet. It explains not only how to find the best information resources quickly and effectively, but also how to customise Internet tools to your own personal requirements. Both authors have been associated with the development of OMNI (Organising Medical Networked Information) and BIOME. Partial contents: Introduction; Electronic communication; Discussion lists and electronic fora; Electronic journals and newsletters; Teaching material and continuing medical education; Health care information; Consumer health information; Meetings and conferences; Grants and jobs; Directories of research projects and expertise; Search strategies; Customising your browser; Creating your own home pages.
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
An insider's guide to searching online, communicating with your physician, and maximizing your health from a doctor who works at Google. We've all been there. Late at night, staring into the glow of a phone trying to make sense of some health-related issue that we know nothing about. In Searching for Health, Dr. Kapil Parakh, with Anna Dirksen, brings to life knowledge he gained from working at Google and practicing medicine. Helping readers avoid common pitfalls, get the information they need, and partner effectively with their health team to figure out a path to good health together, the book distills decades of scientific research into a set of easy-to-follow tips. It also incorporates • firsthand accounts of common challenges on the path to good health; • an inside look at how doctors approach and assess health-related information; • techniques that consumers can use to locate evidence-based information online, whether in blogs, social media postings, forums, or news stories; • guidance on how individuals can make the best use of new technologies, such as health trackers and other applications; • recommendations to help patients assess health information for themselves and make decisions based on what they find; • brief summaries of the scientific studies underpinning the recommendations; and • online and offline resources—including handy checklists and worksheets—to help readers prepare for appointments, discuss tough topics with their doctors, and take control of their health. In addition to helping readers find evidence-based information online, the book provides insights into what you can expect from a visit to a doctor or hospital, how to make a decision about surgery or other treatment, what tests doctors will order, which symptom trackers are really effective, and what questions to ask about medications, supplements, and more. Searching for Health is a valuable resource for charting a healthier path through life.
Medical ethics draws upon methods from a wide array of disciplines, including anthropology, economics, epidemiology, health services research, history, law, medicine, nursing, philosophy, psychology, sociology, and theology. In this influential book, outstanding scholars in medical ethics bring these many methods together in one place to be systematically described, critiqued, and challenged. Newly revised and updated chapters in this second edition include philosophy, religion and theology, virtue and professionalism, casuistry and clinical ethics, law, history, qualitative research, ethnography, quantitative surveys, experimental methods, and economics and decision science. This second edition also includes new chapters on literature and sociology, as well as a second chapter on philosophy which expands the range of philosophical methods discussed to include gender ethics, communitarianism, and discourse ethics. In each of these chapters, contributors provide descriptions of the methods, critiques, and notes on resources and training. Methods in Medical Ethics is a valuable resource for scholars, teachers, editors, and students in any of the disciplines that have contributed to the field. As a textbook and reference for graduate students and scholars in medical ethics, it offers a rich understanding of the complexities involved in the rigorous investigation of moral questions in medical practice and research.
In the realm of health care, privacy protections are needed to preserve patients' dignity and prevent possible harms. Ten years ago, to address these concerns as well as set guidelines for ethical health research, Congress called for a set of federal standards now known as the HIPAA Privacy Rule. In its 2009 report, Beyond the HIPAA Privacy Rule: Enhancing Privacy, Improving Health Through Research, the Institute of Medicine's Committee on Health Research and the Privacy of Health Information concludes that the HIPAA Privacy Rule does not protect privacy as well as it should, and that it impedes important health research.
This comprehensive book celebrates the coming of age of narrativein health care. It uses narrative to go beyond the patient's storyand address social, cultural, ethical, psychological,organizational and linguistic issues. This book has been written to help health professionals andsocial scientists to use narrative more effectively in theireveryday work and writing. The book is split into three, comprehensive sections;Narratives, Counter-narratives and Meta-narratives.
Drawn from the extensive database of Guide to Reference, this up-to-date resource provides an annotated list of print and electronic biomedical and health-related reference sources, including internet resources and digital image collections. Readers will find relevant research, clinical, and consumer health information resources in such areas as Medicine Psychiatry Bioethics Consumer health and health care Pharmacology and pharmaceutical sciences Dentistry Public health Medical jurisprudence International and global health Guide to Reference entries are selected and annotated by an editorial team of top reference librarians and are used internationally as a go-to source for identifying information as well as training reference professionals. Library staff answering health queries as well as library users undertaking research on their own will find this an invaluable resource.
In-depth study of internet-enhanced healthcare services Complete and thorough survey of the most promising e-health technologies Presents numerous real world examples Emphasis on international health-informatics topics, such as better access of states / countries to modern e-health technologies developed by leading centers
The Internet and Health Care: Theory, Research, and Practice presents an in-depth introduction to the field of health care and the Internet, from international and interdisciplinary perspectives. It combines expertise in the areas of the social sciences, medicine, policy, and systems analysis. With an international collection of contributors, it provides a current examination of key issues and research projects in the area. Methods and data used in the chapters include personal interviews, focus groups, observations, regional and national surveys, online transcript analysis, and much more. Sections in the book cover: *e-Health trends and theory; *searching, discussing, and evaluating online health information at the individual level of analysis; *discussing health information at the group or community level; and *implementing health information systems at the regional and social level. The Internet and Health Care will prove useful for university educators and students in the social, public health, and medical disciplines, including Internet researchers. It is also oriented to professionals in many disciplines who will appreciate an integrative theoretical, empirical, and critical analysis of the subject matter, including developers and providers of online health information.
Medical professionals are increasingly engaging with social media in an effort to provide credible evidence-based information and combat the misinformation that patients are finding online and bringing to office visits. Medical professionals are uniquely poised to recognize the harm that can come from applying the incorrect information to decisions affecting one’s health, while they are also able to serve as valued and knowledgeable experts online and engage with patients and the public to provide accurate, up-to-date information. Social Media for Medical Professionals: Strategies for Successfully Engaging in an Online World is a unique, first-of-its-kind resource, providing specific social media strategies for engagement, as well as advice regarding best practices for professionals to maintain at all times. Chapters discuss many aspects pertaining to social media, covering the basics, researching and assessing credible medical information online, and best practices for discussing myths and misconceptions with patients. Later chapters cover the benefits of engaging in social media as a medical professional, strategies for increasing engagement and building an audience, various options and platforms for content creation and finding your niche, dos’s and don’ts regarding patient privacy, and strategies for dealing with negative comments online. A uniquely practical resource, Social Media for Medical Professionals: Strategies for Successfully Engaging in an Online World will be of interest to medical professionals across the spectrum of healthcare, from the student to the seasoned clinician, providing valuable perspective on practicing medicine in an evolving digital world.