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With the trend of deinstitutionalization, family members are finding themselves increasingly in the position of primary caregivers to mentally ill adults - a role for which they are often untrained and unprepared. This volume explores the experiences of these caregivers. The author: discusses the characteristics and conceptual models related to mental illness; surveys the experience of mental illness in the context of the family life cycle and developmental stages of the illness; appraises the burdens on the family including social stigma, refusal of treatment, stress and the relationship between the mentally ill and caregivers within the family; and reviews family responses including coping strategies and professional and
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
This indispensable book about love and mental health addresses the short-term, daily problems of living with a person with mental illness, as well as long-term planning and care. Of special note are the forty-three “Quick Reference Guides” about such topics as: responding to hallucinations, delusions, violence and anger; helping your loved one comply with treatment plans and medication; deciding if the person should live at home or in a facility; choosing a doctor and dealing with mental health professionals; handling the holidays and family activities; managing stress; helping siblings and adult children with their special concerns. “Ms. Woolis produced a handbook which is both practical and accessible, eminently useful for all of us who have a family member with a serious mental illness.” –E. Fuller Torrey, M.D., author of Surviving Schizophrenia “Rebecca Woolis presents easy-to-follow practical guidelines for coping with the multitude of problems that regularly confront families. In minutes the reader can find helpful suggestions for dealing with any problem that might arise.” –Christopher S. Amenson, Ph.D., Director, Pacific Clinics East
Advice on Helping Your Loved Ones, from the medical director of the country's largest state mental health system and the mental health editor of The Huffington Post More than fifty million people a year are diagnosed with some form of mental illness. It spares no sex, race, age, ethnicity, or income level. And left untreated, mental disorders can devastate our families and communities. Family members and friends are often the first to realize when someone has a problem, but it is hard to know how to help or where to turn. Our mental health “system” can feel like a bewildering and frustrating maze. How can you tell that someone has a mental illness? What are the first and best steps for you to take? Where do you go to find the right care? The Family Guide to Mental Health Care is the first comprehensive print resource for the millions of people who have loved ones suffering from some kind of mental illness. In this book, families can find the answers to their most urgent questions. What medications are helpful and are some as dangerous as I think? Is there a way to navigate privacy laws so I can discuss my adult daughter’s treatment with her doctor? Is my teenager experiencing typical adolescent distress or an illness? From understanding depression, bipolar illness and anxiety to eating and traumatic disorders, schizophrenia, and much more, readers will learn what to do and how to help. Real-life scenarios and authoritative information are written in a compassionate, reader-friendly way, including checklists to bring to a doctor’s appointment so you can ask the right questions. For readers who fear they will never see the light at the end of the tunnel, this book gives hope and a path forward. As one of the nation’s leading voices on quality care in mental health, Dr. Lloyd Sederer has played a singular role in advancing services for those with mental illness. Now, the wealth of his expertise and clear guidance is at your disposal. From the first signs of a problem to sorting through the variety of treatment options, you and your family will be able to walk into a doctor’s office know what to do and what to ask.
The Spectrum of Family Caregiving for Adults and Elders with Chronic Illness is written for individuals in the helping professions who are in roles that interface with or serve family caregivers who are supporting an adult or elder with a chronic condition.
Published in cooperation with the Center for Practice Innovations, Mandel School of Applied Social Sciences, Case Western Reserve University Increased life expectancy, the deinstitutionalization of persons with mental illness, the rise of home health care, and advances in medical technology have resulted in greater numbers of dependent people requiring care by family members. The frail elderly, the chronically mentally ill, and the physically disabled are examples of such groups who now receive their daily care in the community. How do families accept the burden of this care? What are the physical and emotional demands of such caregiving? Are the families prepared to assume this role? Family Caregiving Across the Lifespan considers the broad spectrum of chronic illnesses that necessitate family caregiving throughout the lifespan and expands the caregiving paradigm by including in its focus both members of the caregiving dyad and significant non-family caregivers. It also explores the social context in which care is provided--an entire section of the volume is devoted to discussions of the interface between informal and formal caregivers and society at large. Among the other subjects this volume addresses are the negative consequences of family caregiving, the value of providing support to caregivers, and caregivers of persons living with AIDS. Family Caregiving Across the Lifespan is important reading for those in social work, nursing, family medicine, and clinical psychology. "Family Caregiving Across the Lifespan represents a significant milestone in the continuing maturation of this vital area of long-term care. The title is an understatement of the authors′ accomplishments. . . .Rather than offering narrow boxes or labels, the book invites the reader to join in a broadened perspective on caregiving so that it can more fully reflect the richness of the lives of all involved. . . .For those who encounter Family Caregiving Across the Lifespan as part of their continuing study of caregiving, the book provides the integrating milestone of caregiving literature." --Journal of Case Management "This volume is a useful compendium of articles on family caregiving. The fourteen chapters in this volume address many important topics in family caregiving. One of the book′s major contributions is its clarification that family caregiving to frail or chronically ill people has no age limitation, although there are unique issues at different points in the development of individuals and families. The book has exceptional merit. It expands our understanding of family caregiving, provides important ideas for future research, offers research findings that enhance our understanding of family care, and presents a very useful review of the literature. This book would be a beneficial addition to the library of all researchers in the area of caregiving. They will discover worthwhile conceptualizations and gain new insights that can inform their research. Practitioners should also benefit from this collection. The chapters addressing interaction between forma land informal caregivers should give practitioners a deeper understanding of how to be more effective in dealing with informal caregivers and care recipients." -Ageing & Society "One paper [in this volume] deserves particular notice because it attempts to do what many of the authors feel is most critical in caregiving research but also most difficult, namely, to analyze the effectiveness of caregiving, the effect of provision of care on elder health outcomes. This is an important and original conceptualization of the problem..." -Steven M. Albert, Contemporary Gerontology "This book is both unique and valuable because it embraces Brody′s observation that family caregiving is not limited to a specific segment of the life span. Moreover, the book is not limited to filial caregiving, but entertains an impressive variety of contexts of family caregiving. . . . This book will be a valuable text in graduate-level courses." --Journal of Marriage and the Family
Caring for the ill, disabled, very old, or very young requires a labor-intensive commitment that is not only essential to the well-being of individuals and to society as a whole, but also fraught with physical, financial, and psychological risks. And despite the critical nature of their job, caregivers rarely have avenues of support. The Challenges of Mental Health Caregiving addresses the complexities of the situation with uncommon depth and breadth. Suited to researchers, scientist-practitioners and clinicians, and students seeking a rounded understanding of the field, it examines how caregiving affects the lives, work, and mental health of family and professional caregivers. Chapters explore developmental, cultural, and spiritual contexts of care, addressing ongoing concerns about care in relation to larger health systems and emphasizing the need for care to be viewed as a community, rather than an individual or family experience. Further, the book's conclusion strongly advocates for more effective and efficient uses for available funds and resources while offering workable proposals for service improvements at the policy level. Key areas of coverage: The impact of caregiving on physical and mental health. Integrating mental health and primary care. The promotion of positive mental health outcomes in children and youth. Mid-life concerns and caregiver experience. Loss, grief, bereavement and the implications for mental health caregiving. Policy issues in caregiving and mental health. The Challenges of Mental Health Caregiving is a clear-sighted reference for researchers, clinicians and scientist-practitioners, and graduate students in the caregiving fields, including clinical psychology, social work, public health/medicine, geriatrics/gerontology, public policy, and educational policy.
This report is designed to raise the profile of mental illness in Canada among government & non-governmental organizations and the industry, education, workplace, & academic sectors. It describes major mental illnesses and outlines their incidence & prevalence, causation, impact, stigma, and prevention & treatment. Data presented are based on currently available provincial studies & data on mortality and hospitalizations. Five mental illnesses have been selected for inclusion in the report by virtue of their high prevalence rates or because of the magnitude of their health, social, & economic impact: mood disorders, schizophrenia, anxiety disorders, personality disorders, and eating disorders. While not in itself a mental illness, suicidal behaviour is also included since it is highly correlated with mental illness and raises many similar issues. The appendix includes information on data sources and a call for action on building consensus for a national action plan on mental illness & mental health.