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"Over the course of the past few decades there have been two important developments within American society that have had profound impact on both the disability and social work communities. First, genetic research, as well as policy and practice innovations based on this research, has expanded greatly over the past few decades. This is indicated, for example, by the mapping of the human genome in 2003, an expansion of prenatal genetic testing and counseling options, efforts to tailor drug regimens based on one's genetic make-up, popular genetic ancestry and medical testing services, and potential in-roads to genetic engineering, along with a host of other bio-genetic research innovations. The second important development has been the growth of the disability rights movement, which in many ways parallels the civil rights campaigns of other "minority" groups. Importantly, the coexistence of these two developments poses intriguing challenges for social work that the profession has yet to address in a meaningful way. Moreover, coming to term with these issues is especially important for social work professionals in our crucial role as advocates for marginalized or de-valued populations"--
Philippa Levine is the Mary Helen Thompson Centennial Professor in the Humanities at the University of Texas at Austin. Her books include Prostitution, Race and Politics: Policing Venereal Disease in the British Empire, and The British Empire, Sunrise to Sunset. --
"Over the course of the past few decades there have been two important developments within American society that have had profound impact on both the disability and social work communities. First, genetic research, as well as policy and practice innovations based on this research, has expanded greatly over the past few decades. This is indicated, for example, by the mapping of the human genome in 2003, an expansion of prenatal genetic testing and counseling options, efforts to tailor drug regimens based on one's genetic make-up, popular genetic ancestry and medical testing services, and potential in-roads to genetic engineering, along with a host of other bio-genetic research innovations. The second important development has been the growth of the disability rights movement, which in many ways parallels the civil rights campaigns of other "minority" groups. Importantly, the coexistence of these two developments poses intriguing challenges for social work that the profession has yet to address in a meaningful way. Moreover, coming to term with these issues is especially important for social work professionals in our crucial role as advocates for marginalized or de-valued populations"--
A concise and gripping account of eugenics from its origins in the twentieth century and beyond.
Intimate and medicalized, natural and technological, reproduction poses some of the most challenging ethical dilemmas of our time. This volume brings together scholars from multiple perspectives to address both traditional and novel questions about the rights and responsibilities of human reproducers, their caregivers, and the societies in which they live.
Lynn argues that the condemnation of eugenics in the second half of the 20th century went too far and offers a reassessment. The eugenic objectives of eliminating genetic diseases, increasing intelligence, and reducing personality disorders he argues, remain desirable and are achievable by human biotechnology. In this four-part analysis, Lynn begins with an account of the foundation of eugenics by Francis Galton and the rise and fall of eugenics in the twentieth century. He then sets out historical formulations on this issue and discusses in detail desirability of the new eugenics of human biotechnology. After examining the classic approach of attempting to implement eugenics by altering reproduction, Lynn concludes that the policies of classical eugenics are not politically feasible in democratic societies. The new eugenics of human biotechnology--prenatal diagnosis of embryos with genetic diseases, embryo selection, and cloning--may be more likely than classic eugenics to evolve spontaneously in western democracies. Lynn looks at the ethical issues of human biotechnologies and how they may be used by authoritarian states to promote state power. He predicts how eugenic policies and dysgenic processes are likely to affect geopolitics and the balance of power in the 21st century. Lynn offers a provocative analysis that will be of particular interest to psychologists, sociologists, demographers, and biologists concerned with issues of population change and intelligence.
The Oxford Handbook of Disability History features twenty-seven articles that span the diverse, global history of the disabled--from antiquity to today.
In Cultural Locations of Disability, Sharon L. Snyder and David T. Mitchell trace how disabled people came to be viewed as biologically deviant. The eugenics era pioneered techniques that managed "defectives" through the application of therapies, invasive case histories, and acute surveillance techniques, turning disabled persons into subjects for a readily available research pool. In its pursuit of normalization, eugenics implemented disability regulations that included charity systems, marriage laws, sterilization, institutionalization, and even extermination. Enacted in enclosed disability locations, these practices ultimately resulted in expectations of segregation from the mainstream, leaving today's disability politics to focus on reintegration, visibility, inclusion, and the right of meaningful public participation. Snyder and Mitchell reveal cracks in the social production of human variation as aberrancy. From our modern obsessions with tidiness and cleanliness to our desire to attain perfect bodies, notions of disabilities as examples of human insufficiency proliferate. These disability practices infuse more general modes of social obedience at work today. Consequently, this important study explains how disabled people are instrumental to charting the passage from a disciplinary society to one based upon regulation of the self.
How did American geneticists go from fearing the dysgenic effects of deaf intermarriage to considering modern biotechnology a threat for Deaf culture? This book provides insight into changing ideas of what deafness is, what science and medicine should achieve, and to the transformative effect of exchange between scientists and deaf communities.