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Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
Caring for persons with chronic illnesses or disabilities is a rewarding endeavor, but it often places extreme demands on those providing care. Caregivers need both education and support to understand their caregiving roles and to cope with the difficult situations they face. All too often there is a chasm between professionals who are part of the formal caregiving system and family members, friends, and neighbors who provide daily care. The Caring for You, Caring for Me education and support program is a valuable tool for use in providing caregivers with education and support. The program is designed to bring formal (professional) and informal (lay/family) caregivers together to gain a better understanding of each other's perspectives on what it means to be a caregiver, with the hope that in the process both will learn to do it better. The program is based on caregiving research and the expertise of frontline caregivers. The Leader's Guide contains everything needed to conduct a ten-hour education and support program for caregivers: informational content, layouts for overhead transparencies, and suggested group activities. The companion Participant's Manual supports the presentation, providing a workbook for class activities, a suggested reading list, and a compendium of national sources of help for caregivers. Caring for You, Caring for Me was developed by the Rosalynn Carter Institute under the guidance of the West Central Georgia Caregivers' Network (CARE-NET). The Rosalynn Carter Institute was established in 1987. Its mission is to understand the process of caregiving and discover new ways to benefit both formal and informal caregivers. The Institute supports the premise that caregivers and care receivers can be served most effectively through the collaborative efforts of formal and informal caregivers, academicians, public and private services, and organizations representing caregivers and recipients of care.
"The Caregiving Trap" combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. "The Caregiving Trap" includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy
For many, caring for a chronically ill family member is “the right thing to do”, but it is also often a source of emotional hardship, physical stress, and social isolation. In response, skill-building, coping, and psychoeducational programs have emerged to help caregivers meet the changes and challenges in their – as well as the patients’ – lives. Education and Support Programs for Caregivers reveals the diversity of the caregiver population as well as their experiences and needs, and it introduces an empirically solid framework for planning, implementing, and evaluating caregiver programs. The book synthesizes current trends, exploring the effectiveness of different types of programs (e.g., clinic, community, home based) and groups (e.g., peer, professional, self-help), and how supportive programs lead to improved care. Coverage includes: Improving service delivery of education and support programs to underserved caregivers. Cultural, ethnic, and gender issues in conducting caregiver education and support groups. Utilization patterns (e.g., a key to understanding service needs). E-health, telehealth, and other technological developments in caregiver services. Evaluating the effectiveness and sustainability of programs. Recommendations for future practice, training, policy, and advocacy. Education and Support Programs for Caregivers offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.
Family members, and sometimes close friends, are often called upon to act as caregivers to ill or aged people they care about or for whom they are responsible. Although there are many rewarding outcomes of the time spent between the courageous and dedicated caregiver and the care-receiver*, the caregivers are usually unprepared, untrained and unsupported. The caregivers are also often isolated. These factors can put a huge amount of stress on non-professional or family caregivers. Attending a caregiver support group focusing on specific issues is of great benefit for caregivers. Such groups can include those facilitated by professionals such as social workers, counselors and group facilitators, and those facilitated by lay persons, often themselves caregivers. The intention of Caregiver Support is to provide content for support group facilitators and caregivers that touches on crucial topics.
Today more than 40 million people in the U.S. find themselves responsible for caring for a parent, relative, or friend. Building Better Caregivers, developed by the author team of the bestselling Living a Healthy Life with Chronic Conditions, shares the best in caregiving research and the most important lessons learned from thousands of caregivers. With a focus on reducing stress through the use of practical skills and tools, this book will help you manage your caregiving tasks so you can maintain a happy, fulfilling life while also meeting your caregiving obligations.
As we move through life many of us find ourselves needing to help a family member or friend with a medical condition. If the condition is temporary, our need to help is temporary. However, chronic conditions such as Alzheimer's and other dementias require longer-term, possibly ever-increasing assistance. Problems with thinking and memory lead to new, different, and often challenging behaviors. In addition, caring for someone with Alzheimer's often means helping them deal with other medical problems that are often difficult to recognize. This book is a resource for caregivers of people with Alzheimer's or dementia who are also beginning to experience non-memory-related medical conditions. It addresses 54 medical conditions that caregivers often must deal with when providing care. Each medical condition is addressed in an easy-to-follow, two-page guide that provides basic facts about the medical condition, signs that indicate a possible emergency, tips on providing relief in the home, other related issues to watch out for, and safety tips for the caregiver. Written by experts at the University of North Carolina at Chapel Hill and Duke University, this book is based on the latest clinical knowledge and scientific research on Alzheimer's and the care of Alzheimer's and dementia patients. It includes basic facts about Alzheimer's disease and other dementias and practical guidance when conferring with doctors and nurses, when visiting hospitals, nursing homes, and assisted-living residences, and during the dying process. Also, an entire chapter is devoted to what caregivers need to do to take care of themselves while helping someone with Alzheimer's and related dementia. p.p1 {margin: 0.0px 0.0px 0.0px 0.0px; font: 12.0px Arial}
As the first of the nation's 78 million baby boomers begin reaching age 65 in 2011, they will face a health care workforce that is too small and woefully unprepared to meet their specific health needs. Retooling for an Aging America calls for bold initiatives starting immediately to train all health care providers in the basics of geriatric care and to prepare family members and other informal caregivers, who currently receive little or no training in how to tend to their aging loved ones. The book also recommends that Medicare, Medicaid, and other health plans pay higher rates to boost recruitment and retention of geriatric specialists and care aides. Educators and health professional groups can use Retooling for an Aging America to institute or increase formal education and training in geriatrics. Consumer groups can use the book to advocate for improving the care for older adults. Health care professional and occupational groups can use it to improve the quality of health care jobs.