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Developed to help families and teachers cope with all aspects of educating a child with cancer, this book covers learning issues from infancy through adulthood. Chapters written by experts are balanced by the wisdom of parents who have "been there."
More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: " Medical late effects from treatment " Emotional aspects of surviving cancer " Schedules for follow-up care " Challenges in the heath-care system " Lifestyle choices to maximize health " Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles.
Like a natural disaster, the diagnosis that your child has cancer can leave you and your family feeling helpless. How do you explain the disease to the child and to his or her siblings? How can you communicate your child's needs to the hospital staff? What are the best ways to reduce the physical side effects and the emotional distress of treatment?How will you, your child or teenager, and the rest of your family cope with cancer, and what can you do to help? When and where do you find good psychological help for your child or your family? How do you manage financial and school issues? How can you foster your child's development and self-esteem? More than 12,000 American children will be diagnosed with cancer this year, and roughly 75% will survive. In addition to excellent medical care, their survival depends on a strong support network, which may include parents, siblings, extended family members, friends and neighbors, classmates and teachers. In this down-to-earth guidebook, the authors draw on their own family's experience with cancer as well as their professional expertise and stories from others to help families address the psychological impact of cancer. The result is a book filled with sound emotional guidance, useful information, and practical advice for families coping with cancer.
Approximately 4,500 children and teens are diagnosed with leukemia in the United States and Canada each year. The illness and its treatment can have a devastating effect on family, friends, classmates, and the larger community. This newly updated edition of Childhood Leukemia contains the information and support parents need during this difficult time, including:•New treatments such as immunotherapy, tailoring drugs dosages to children's genetic profiles, and ways to deal with side effects.•Advice on how to cope with procedures, hospitalization, school, family, and financial issues.•Tips for forming a partnership with the medical team.•Poignant and practical stories from family members.•Updated resources for medical information, emotional support, and financial assistance.Parents who read this book will find understandable medical information and emotional support.
Over half the deaths from disease in the world are now due to just four chronic conditions u diabetes, lung diseases, some cancers and heart disease. Health and education are inextricably linked. Developing and delivering effective, scalable and sustainable education programs which lead to real behavioral change would influence some of the common risk factors for these diseases, such as smoking, poor diet and lack of physical activity. This book contains the selected papers from the St. Jude Cure4Kids Global Summit, held in June, 2011 at St. Jude Children's Research Hospital in Memphis, Tennessee, USA. The aim of this three-day conference was to improve health and science education in classrooms and communities around the world. Leading educators, innovators and pioneers in the field of public health came together in a multidisciplinary forum to explore examples of successful education programs, analyze the challenges in designing effective, scalable and cost-efficient public health education programs and identify strategies, methodologies and incentives for developing future programs capable of yielding large-scale improvements in health outcomes for diverse communities.The papers presented here provide a foundation in the key topics necessary to create future innovative health promotion programs, and will be of interest to all those whose work involves improving health outcomes by means of better and more effective health education.
Since the late 1960s, the survival rate in children and adolescents diagnosed with cancer has steadily improved, with a corresponding decline in the cancer-specific death rate. Although the improvements in survival are encouraging, they have come at the cost of acute, chronic, and late adverse effects precipitated by the toxicities associated with the individual or combined use of different types of treatment (e.g., surgery, radiation, chemotherapy). In some cases, the impairments resulting from cancer and its treatment are severe enough to qualify a child for U.S. Social Security Administration disability benefits. At the request of Social Security Administration, Childhood Cancer and Functional Impacts Across the Care Continuum provides current information and findings and conclusions regarding the diagnosis, treatment, and prognosis of selected childhood cancers, including different types of malignant solid tumors, and the effect of those cancers on childrenâ (TM)s health and functional capacity, including the relative levels of functional limitation typically associated with the cancers and their treatment. This report also provides a summary of selected treatments currently being studied in clinical trials and identifies any limitations on the availability of these treatments, such as whether treatments are available only in certain geographic areas.
Ben has cancer, but he also has a loving family and friends, a community fighting for him—and hope. When Ben finds out he has cancer, he learns a lot right away. He learns that cancer is something you fight, and that cancer isn't anyone's fault—especially not his. He discovers that many things change with cancer, but some of the most important things stay the same, and everyone around him wants to help him fight.
The Rainbow Feelings of Cancer gently invites children to share their thoughts, their feelings and their questions when a life-threatening illness has touched a parent or someone they love.
Naudia's friend Linkin is battling brain cancer. Eight year-old Naudia follows seven year-old Linkin on his journey, and writes about the lessons she learns along the way. From learning what cancer is, to how chemotherapy works, "My Friend Linkin" takes kids on a journey where they will learn what a day in the life of someone with cancer is really like. Written for children, this book explores cancer, chemotherapy, and the resiliency of those who have to fight this battle.
Award-winning author and speaker Lynda Young and hospital chaplain Johnna than Ward offer indispensible help and hope that come from years of experiance and comfort, From the initial diagnosis and throughout the daunting journey, this encouraging and extremely helpful resource offers advice, support, and hope from fellow travelers and professionals Who are experienced With what lies ahead. Book jacket.