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The SAGE Reference Series on Disability is a cross-disciplinary and issues-based series incorporating links from varied fields that make up Disability Studies. This volume tackles issues relating to disability through the life course.
Disability and the Life Course, first published in 2001, explores the global experience of disability using a novel life course approach. The book explores how disabling societies impact on disabled people's life experiences, and highlights the ways in which disabled people have acted to take more control over their own lives. It provides a unique combination of analysis, policy issues and autobiography, offering the reader a rare opportunity to make links between the theoretical, the political and the personal in a single volume. The material is set in a truly international context, with contributions from thirteen different countries bringing together established and emerging writers, both disabled and non-disabled. The book bridges some important gaps in the existing disability literature by including issues relevant to disabled people of all ages and with different kinds of impairments and also by offering a unique analysis of the relationship between disability and generation in a changing world.
Disability: a Life Course Approach provides students and teachers with easy access to many of the most important current disability issues and debates. It provides a clearly focused account, and bridges some important gaps in the existing disability literature by including issues relevant to disabled people of all ages. If offers a unique approach to understanding disabling societies in a systematic way, using a novel life course approach. This book examines how contemporary societies organise and control generational boundaries and progression through the life course for disabled people. There are specific chapters on birthrights and eugenics, childhood, youth transitions, interdependence and adulthood, old age and death and dying. The emphasis is on contemporary policy and politics (located within a broader sociological and cultural context) including the claims and struggles of the disabled people's movement. The discussion is framed within a social model approach and draws extensively on contemporary international debates about the citizenship and human rights of disabled people. The book functions both as a resource guide and as a tool for learning. The various chapters include reviews of existing literature and theoretical debates, alongside specific examples of disabling policies and practices in different countries. There are also case studies illustrating key issues, together with relevant discussion and teaching points, and suggestions for further research and reading. The book addresses an international readership and will be of particular interest to students and teachers of disability studies, sociology, human development, social policy; to professionals and students within rehabilitation and social work; and to disabled people and lay readers with an interest in contemporary disability issues and debates.
This is the first book to address the issue of ageing after a long life with disability. It breaks new ground through its particular life course perspective, examining what it means to age with a physical or mental disability and what the implications are of 'becoming old' for people who have had extensive disabilities for many years. These people may have had to leave the labour market early, and the book looks at available care resources, both formal and informal. Ageing with disability challenges set ideas about successful ageing, as well as some of those about disabilities. The life course approach that is used unfolds important insights about the impact of multiple disabilities over time and on the phases of life. The book highlights the meaning of care in unexplored contexts, such as where ageing parents are caregivers or regarding mutual care in disabled couples. These are areas of knowledge which have, to date, been totally neglected.
Over the last three decades, a number of reforms have taken place in European social policy with an impact on the opportunities for persons with disabilities to be full and active members of society. The policy reforms have aimed to change the balance between citizens’ rights and duties and the opportunities to enjoy choice and autonomy, live in the community and participate in political decision-making processes of importance for one’s life. How do the reforms influence the opportunities to exercise Active Citizenship? This volume presents the findings from the first cross-national comparison of how persons with disabilities reflexively make their way through the world, pursuing their own interests and values. The volume considers how their experiences, views and aspirations regarding participation vary across Europe. Based on retrospective life-course interviews, the volume examines the scope for agency on the part of persons with disabilities, i.e. the extent to which men and women with disabilities are able to make choices and pursue lives they have reasons to value. Drawing on structuration theory and the capability approach, the volume investigates the opportunities for exercising Active Citizenship among men and women in nine European countries. The volume identifies the policy implications of a process-oriented and multi-dimensional approach to Active Citizenship in European disability policy. It will appeal to policymakers and policy officials, as well as to researchers and students of disability studies, comparative social policy, international disability law and qualitative research methods.
This volume examines the developmental aspects of the general psychological construct of self-determination. The term refers to self- (vs. other-) caused action—to people acting volitionally—as based on their own will. Research conducted in the fields of psychology and education shows the importance of self-determination to adolescent development and positive adult outcomes. The first part of this volume presents an overview of theories and historical antecedents of the construct. It looks at the role of self-determination in major theories of human agentic behavior and of adolescent development and individuation. The second part of the volume examines the developmental origins and the trajectory of self-determination in childhood, adolescence, and adulthood, and looks as aging aspects. The next part presents studies on the evolutionary aspects, individual differences and healthy psychological development. The last part of the book covers the development of causal and agentic capability.
Rosalyn Darling offers a sweeping examination of disability identity, tracing its history and parsing the shifting forces that have shaped individual and societal understandings of ability and impairment across time.Darling focuses on the relationship between societal views and the self-conceptions of people with mental and physical impairments. She also illuminates the impact of the disability rights movement, life-course dynamics, and race and gender in creating a diversity of disability identities. Her seminal work reveals the remarkable resilience of individuals in the face of profound social and material barriers, at the same time that it enhances our understanding of the construction and experience of ¿difference¿ in our changing society.
A Publishers Weekly Best Book of the Year for Nonfiction "...an essential and engaging look at recent disability history."— Buzzfeed One of the most influential disability rights activists in US history tells her personal story of fighting for the right to receive an education, have a job, and just be human. A story of fighting to belong in a world that wasn’t built for all of us and of one woman’s activism—from the streets of Brooklyn and San Francisco to inside the halls of Washington—Being Heumann recounts Judy Heumann’s lifelong battle to achieve respect, acceptance, and inclusion in society. Paralyzed from polio at eighteen months, Judy’s struggle for equality began early in life. From fighting to attend grade school after being described as a “fire hazard” to later winning a lawsuit against the New York City school system for denying her a teacher’s license because of her paralysis, Judy’s actions set a precedent that fundamentally improved rights for disabled people. As a young woman, Judy rolled her wheelchair through the doors of the US Department of Health, Education, and Welfare in San Francisco as a leader of the Section 504 Sit-In, the longest takeover of a governmental building in US history. Working with a community of over 150 disabled activists and allies, Judy successfully pressured the Carter administration to implement protections for disabled peoples’ rights, sparking a national movement and leading to the creation of the Americans with Disabilities Act. Candid, intimate, and irreverent, Judy Heumann’s memoir about resistance to exclusion invites readers to imagine and make real a world in which we all belong.
Many practitioners within health and social care come into contact with people with intellectual disabilities and want to work in ways that are beneficial to them by making reasonable adjustments in order to meet clients’ needs and expectations. Yet the health and wellbeing of people with learning disabilities continues to be a neglected area, where unnecessary suffering and premature deaths continue to prevail. This text provides a comprehensive insight into intellectual disability healthcare. It is aimed at those who are training in the field of intellectual disability nursing and also untrained practitioners who work in both health and social care settings. Divided into five sections, it explores how a wide range of biological, health, psychological and social barriers impact upon people with learning disability, and includes: Six guiding principles used to adjust, plan and develop meaningful and accessible health and social services Assessment, screening and diagnosis of intellectual disability across the life course Addressing lifelong health needs Psychological and psychotherapeutic issues, including sexuality, behavioural and mental health needs, bereavement, and ethical concerns. The changing professional roles and models of meeting the needs of people with intellectual and learning disabilities. Intellectual Disability in Health and Social Care provides a wide-ranging overview of what learning disability professionals’ roles are and provides insight into what health and social care practitioners might do to assist someone with intellectual disabilities when specific needs arise.
The first social history of disability and difference in American adoption, from the Progressive Era to the end of the twentieth century. Disability and child welfare, together and apart, are major concerns in American society. Today, about 125,000 children in foster care are eligible and waiting for adoption, and while many children wait more than two years to be adopted, children with disabilities wait even longer. In Familial Fitness, Sandra M. Sufian uncovers how disability operates as a fundamental category in the making of the American family, tracing major shifts in policy, practice, and attitudes about the adoptability of disabled children over the course of the twentieth century. Chronicling the long, complex history of disability, Familial Fitness explores how notions and practices of adoption have—and haven’t—accommodated disability, and how the language of risk enters into that complicated relationship. We see how the field of adoption moved from widely excluding children with disabilities in the early twentieth century to partially including them at its close. As Sufian traces this historical process, she examines the forces that shaped, and continue to shape, access to the social institution of family and invites readers to rethink the meaning of family itself.