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Disability Politics and Care examines a provincial direct-funding program to illuminate what happens when people with disabilities take control of their own care arrangements. In addition to investigating responses from a wide range of stakeholders, Christine Kelly reflects on the broader social and political implications of these types of programs. She probes the divide that exists between rejections of care by disability activists, on the one hand, and attempts by feminists to value gendered forms of labour, on the other. Rather than trying to find common ground between these viewpoints, Kelly explores how maintaining a tension between them could positively transform the understanding and practice of care. Enlivened by the voices of disabled people, attendants, and informal supports, this book uses one independent living program as a starting point for untangling much larger philosophical, theoretical, and material questions about (self) determination, (inter)dependence, governance, and justice.
Priestley encourages health and welfare professionals and policy makers to start working much more closely with disabled people themselves. He argues that this will break barriers between user and provider and result in the reality of integrated living.
An accessible introduction to disability studies, Disability Politics and Theory provides a concise survey of disability history, exploring the concept of disability as it has been conceived from the late 19th century to the present. Further, A.J. Withers examines when, how and why new categories of disability are created and describes how capitalism benefits from and enforces disabled people’s oppression. Critiquing the model that currently dominates the discipline, the social model of disability, this book offers an alternative: the radical disability model. This model builds on the social model but draws from more recent schools of radical thought, particularly feminism and critical race theory, to emphasize the role of intersecting oppressions in the marginalization of disabled people and the importance of addressing disability both independently and in conjunction with other oppressions. Intertwining theoretical and historical analysis with personal experience this book is a poignant portrayal of disabled people in Canada and the U.S. – and a radical call for social and economic justice.
This powerful book presents a series of perspectives on the process of self-organisation of disabled people which has taken place over the last thirty years. The 1980s saw a transformation in our understanding of the nature of disability, and consequently the kinds of policies and services necessary to ensure the full economic and social integration of disabled people. At the heart of this transformation has been the rise in the number of organisations controlled and run by disabled people themselves. Through a series of interviews with disabled people who have been centrally involved in the rise of the disability movement, the authors present a new collective history which throws light on the politics of the 1980s, and offers insights into future political developments in the 1990s and on into the twenty-first century.
More than 1 billion people worldwide have a disability, and they are all affected by politics. This two-volume work explores key topics at the heart of disability policy, such as voting, race, gender, age, health care, social security, transportation, abuse, and the environment. Disability policy is no longer an area that can be adequately addressed within major areas of public policy such as welfare, health, labor, and education. Disability has become widely acknowledged in recent decades, partly because of the increasing number of disabled citizens across all demographic populations. Advocates argue that diversity of all kinds deserves recognition and accommodation. This set examines policies targeting disability to provide a multifaceted description of the political participation of people with disabilities as well as disability policy development in the United States. The first volume focuses on political participation and voting issues, and the second volume covers disability public policy. In these two volumes, numerous scholars and experts in the social sciences and humanities explore timely topics that are key to disability policy questions, including activism, voting, race, gender, age, health care, social security, civil rights, abuse, the environment, and even death. Readers will better understand the challenges that policymakers face in grappling with controversies over issues of social engineering and public policy, often attempting to reconcile majority experience with minority rights. The chapters analyze the history of disability politics, describe the disability policy infrastructure as it currently exists in the United States, and provide insight into current disability-related controversies. Explains all stages of disability policy development, including the framing of issues in the political participation of disability, current policy, retired policy, and cutting-edge issues likely to motivate policy in decades to come Includes material from contributors who represent a range of academic disciplines and employ varied thought about disability across fields of study and professional expertise Ideally suited for students taking undergraduate courses in sociology, education, human development, social work, disability studies, and public affairs
An empowering collection of essays on the author's experiences in the disability justice movement.
Intellectual disability is often overlooked within mainstream disability studies, and theories developed about disability and physical impairment may not always be appropriate when thinking about intellectual (or learning) disability. This pioneering book, in considering intellectually disabled people's lives, sets out a care ethics model of disability that outlines the emotional caring sphere, where love and care are psycho-socially questioned, the practical caring sphere, where day-to-day care is carried out, and the socio-political caring sphere, where social intolerance and aversion to difficult differences are addressed. It does so by discussing issue-based everyday life, such as family, relationships, media representations and education, in an evocative and creative manner. This book draws from an understanding of how intellectual disability is represented in all forms of media, a feminist ethics of care, and capabilities, as well as other theories, to provide a critique and alternative to the social model of disability as well as illuminate care-less spaces that inhabit all the caring spheres. The first two chapters of the book provide an overview of intellectual disability, the debates surrounding disability, and outline the model. Having begun to develop an innovative theoretical framework for understanding intellectual disability and being human, the book then moves onto empirical and narrative driven issue-based chapters. The following chapters build on the emergent framework and discuss the application of particular theories in three different substantive areas: education, mothering and sexual politics. The concluding remarks draw together the common themes across the applied chapters and link them to the overarching theoretical framework. An important read for all those studying and researching intellectual or learning disability, this book will be an essential resource in sociology, philosophy, criminology (law), social work, education and nursing in particular.
In today’s world, responsible biocitizenship has become a new way of belonging in society. Individuals are expected to make “responsible” medical choices, including the decision to be screened for genetic disease. Paradoxically, we have even come to see ourselves as having the right to be responsible vis-à-vis the proactive mitigation of genetic risk. At the same time, the concept of genetic disease has become a new and powerful way of defining the boundaries between human groups. Tay-Sachs, an autosomal recessive disorder, is a case in point—with origins in the period of Eastern European Jewish immigration to the United States and United Kingdom that spanned the late nineteenth and early twentieth centuries, it has a long and fraught history as a marker of Jewish racial difference. In Testing Fate, Shelley Z. Reuter asks: Can the biocitizen, especially one historically defined as a racialized and pathologized Other, be said to be exercising authentic, free choice in deciding whether to undertake genetic screening? Drawing on a range of historical and contemporary examples—doctors’ medical reports of Tay-Sachs since the first case was documented in 1881, the medical field’s construction of Tay-Sachs as a disease of Jewish immigrants, YouTube videos of children with Tay-Sachs that frame the disease as tragic disability avoidable through a simple genetic test, and medical malpractice suits since the test for the disease became available—Reuter shows that true agency in genetic decision-making can be exercised only from a place of cultural inclusion. Choice in this context is in fact a kind of unfreedom—a moral duty to act that is not really agency at all.
Disability Politics and Theory, a historical exploration of the concept of disability, covers the late nineteenth century to the present, introducing the main models of disability theory and politics: eugenics, medicalization, rehabilitation, charity, rights and social and disability justice. A.J. Withers examines when, how and why new categories of disability are created and describes how capitalism benefits from and enforces disabled people’s oppression. Critiquing the currently dominant social model of disability, this book offers an alternative. The radical framework Withers puts forward draws from schools of radical thought, particularly feminism and critical race theory, to emphasize the role of interlocking oppressions in the marginalization of disabled people and the importance of addressing disability both independently and in conjunction with other oppressions. Intertwining theoretical and historical analysis with personal experience, this book is a poignant portrayal of disabled people in Canada and the U.S. — and a call for social and economic justice. This revised and expanded edition includes a new chapter on the rehabilitation model, expands the discussion of eugenics, and adds the context of the growth of the disability justice movement, Black Lives Matter, calls for defunding the police, decolonial and Indigenous land protection struggles, and the COVID-19 pandemic.
Despite the widespread belief that Canada is a country of liberty, equality, and inclusiveness, many persons with disabilities experience social exclusion and marginalization. In this book, twenty-four scholars from a variety of disciplines contend that achieving equality for the disabled is not fundamentally a question of medicine or health, nor is it an issue of sensitivity or compassion. Rather, it is a question of politics, and of power and powerlessness. This book argues that we need a new understanding of participatory citizenship that encompasses the disabled, new policies to respond to their needs, and a new vision of their entitlements.