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This book explores the intersection between motherhood and physical disability. It is based on a study that focused on the lived experiences of women with physical disabilities, mothers and non-mothers. What meaning does motherhood have for these women? What is it like for them? What messages do they receive about themselves as women, with or without children? What barriers do they foresee and/or come across? These issues are explored from the vantage point of disabled women with and without children.
Examining mothers of newly diagnosed disabled children within the context of new reproductive technologies and the discourse of choice, this book uses anthropology and disability studies to revise the concept of "normal" and to establish a social environment in which the expression of full lives will prevail.
This collection of 18 scholarly works and personal accounts from Canada, the U.S., and Australia explores and analyses issues of parenting by mothers with a variety of physical and mental disabilities. The book delves into pregnancy, birth, adoption, child custody, discrimination, and disability politics. Noticing dominant ideas, meanings, and narratives about mothering and disability, as the contributors of this book do, exposes how the actual lives and experiences of mothers with disabilities are key to challenging cultural norms and therefore discrimination.
Constructing the (M)other is a collection of personal narratives about motherhood in the context of a society in which disability holds a stigmatized position. From multiple vantage points, these autoethnographies reveal how ableist beliefs about disability are institutionally upheld and reified. Collectively they seek to call attention to a patriarchal surveillance of mothering, challenge the trope of the good mother, and dismantle the constructed hierarchy of acceptable children. The stories contained in this volume are counter-narratives of resistance--they are the devices through which mothers push back. Rejecting notions of the otherness of their children, in these essays, mothers negotiate their identities and claim access to the category of normative motherhood. Readers are likely to experience dissonance, have their assumptions about disability challenged, and find their parameters of normalcy transformed.
This book explores the lived experience of mothers raising a child with a learning disability, through interviews with mothers of children with autistic spectrum disorder (ASD), attention deficit hyperactivity disorder (ADHD) and Down syndrome. With frequent personal accounts from mothers themselves, Mothering Special Needs encourages other women who have children with special needs to recognize and express their own aspirations and needs for self-fulfilment. It addresses the social construction of motherhood, discussing issues such as mother-blame and society's images of the self-sacrificing mother, in the context of raising a child with a learning disability. It also looks at real-life experiences of working with professionals, giving examples of both good and bad practice. This is an invaluable book for mothers as well as for professionals working with families that include children with disabilities.
This book examines how and why mothers with disabled children became activists. Leading campaigns to close institutions and secure human rights, these women learned to mother as activists, struggling in their homes and communities against the debilitating and demoralizing effects of exclusion. Activist mothers recognized the importance of becoming advocates for change beyond their own families and contributed to building an organization to place their issues on a more public scale. In highlighting this under-examined movement, this book contributes to the scholarship on Disability Studies, Women's Students, Sociology, and Social Movement Studies.
This book takes a distinctive approach to exploring the experiences and identities of minoritized Latinx mothers who are raising a child who is labeled as both an emergent bilingual and dis/abled. It showcases relationships between families and schools and reveals the myriad of ways in which school-based decisions regarding disability, language and academic placement impact family dynamics. Treating the mothers as experts, this book uses testimonios to explore not only what mothers know but also how they develop funds of knowledge and how they apply them to their child’s education. The stories shed light on how mothers perceive their child’s disability, how they engage with their child and the value they place on bilingualism. The narratives reveal the complex lives mothers lead and the ways in which they strive to meet the academic and socioemotional needs of their children, regardless of the financial, physical and emotional costs to them. This book has significant implications for researchers and professionals working in bilingual education, special education, inclusive education and disability studies in education.
The Routledge Handbook of Disability Studies takes a multidisciplinary approach to disability and provides an authoritative and up-to-date overview of the main issues in the field around the world today. Adopting an international perspective and consisting entirely of newly commissioned chapters arranged thematically, it surveys the state of the discipline, examining emerging and cutting edge areas as well as core areas of contention. Divided in five sections, this comprehensive handbook covers: different models and approaches to disability how key impairment groups have engaged with disability studies and the writings within the discipline policy and legislation responses to disability studies and to disability activism disability studies and its interaction with other disciplines, such as history, philosophy and science and technology studies disability studies and different life experiences, examining how disability and disability studies intersects with ethnicity, sexuality, gender, childhood and ageing. Containing chapters from an international selection of leading scholars, this authoritative handbook is an invaluable reference for all academics, researchers and more advanced students in disability studies and associated disciplines such as sociology, health studies and social work.
Editors Lewiecki-Wilson and Cellio have put together the first book to focus on the intersecting spaces, both cultural and personal, of disability and mothering. Derived from the Latin for threshold, the word "liminal" calls attention to the book’s focus on the transitional moments and spaces where the personal and social, inside and outside, self and other converge. The volume features twenty-one previously unpublished essays by new as well as established scholars and community activists. Contributors, some of whom are themselves disabled or mothers of children with disabilities, present moving personal accounts and accessible scholarship grounded in historical study, experiential and retrospective analysis, interviews, social research, and feminist and disability studies theories. In their introduction, the editors survey the theoretical frameworks of feminism and disability studies, locating the points of overlap crucial to a study of disability and mothering. Organized in five sections, the book engages questions about reproductive technologies; diagnoses and cultural scripts; the ability to rewrite narratives of mothering and disability; political activism; and the tensions formed by the overlapping identities of race, class, nation, and disability. The essays speak to a broad audience—from undergraduate and graduate students in women’s studies and disability studies, to therapeutic and health care professionals, to anyone grappling with issues such as genetic testing and counseling, raising a child with a disability, or being disabled and contemplating starting a family.
The Disabled Woman's Guide to Pregnancy and Birth was a finalist for a 2005 Foreward Magazine Best Book of the Year Award and a 2006 Ben Franklin Award! This comprehensive and useful guide is based on the experiences of ninety women with disabilities who chose to have children. In order to bring an intimate focus and understanding to the issues involved in being pregnant and disabled, author Judith Rodgers conducted in-depth interviews with women with 22 different types of disabilities and with a total of 143 pregnancies. Thoroughly researched and informative, this book is a practical guide both for disabled women planning for pregnancy and the health professionals who work with them. The Disabled Woman's Guide to Pregnancy and Birth supports the right of all women to choose motherhood, and will be useful for any disabled woman who desires to have a child. The subjects covered include: an introduction to the ninety women and their specific disabilities the decision to have a baby parenting with a disability emotional concerns of the mother, family and friends nutrition and exercise in pregnancy a look at each trimester labor and delivery caesarean delivery the postpartum period and breast-feeding. A list of references and a glossary will assist the reader in obtaining additional information and understanding medical terminology. Empathetic, balanced, comprehensive, and practical, this guide provides all the facts needed by disabled women and their families. It stresses the importance of informed communication among the pregnant woman, her family members, and health care professionals. It is the only book that answers critical questions and provides guidance for the woman with a disability facing one of the biggest challenges of her life.