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Sarah D. Phillips examines the struggles of disabled persons in Ukraine and the other former Soviet states to secure their rights during the tumultuous political, economic, and social reforms of the last two decades. Through participant observation and interviews with disabled Ukrainians across the social spectrum -- rights activists, politicians, students, workers, entrepreneurs, athletes, and others -- Phillips documents the creative strategies used by people on the margins of postsocialist societies to assert claims to "mobile citizenship." She draws on this rich ethnographic material to argue that public storytelling is a powerful means to expand notions of relatedness, kinship, and social responsibility, and which help shape a more tolerant and inclusive society.
Sarah Dauncey offers the first comprehensive exploration of disability and citizenship in Chinese society and culture from 1949 to the present. Through the analysis of a wide variety of Chinese sources, from film and documentary to literature and life writing, media and state documents, she sheds important new light on the ways in which disability and disabled identities have been represented and negotiated over this time. She exposes the standards against which disabled people have been held as the Chinese state has grappled with expectations of what makes the 'ideal' Chinese citizen. From this, she proposes an exciting new theoretical framework for understanding disabled citizenship in different societies – 'para-citizenship'. A far more dynamic relationship of identity and belonging than previously imagined, her new reading synthesises the often troubling contradictions of citizenship for disabled people – the perils of bodily and mental difference and the potential for personal and group empowerment.
* The open access publication of this book has been published with the support of the Swiss National Science Foundation. * At a time when rights are increasingly placed on the humanitarian agenda, this book provides a unique ethnographic account of the dynamics of aid to disabled people in a Ugandan refugee camp. By unraveling the complexities of social, material and institutional interdependencies, the author invites us to rethink conventional notions of dependence and vulnerability. Exploring issues of personhood as they relate to the exchange of material goods and care, the book offers a thought-provoking perspective on the seemingly promising shift towards a rights-based approach. A compelling read for anyone seeking to reshape the humanitarian agenda.
There are over thirty million disabled people in Russia and Eastern Europe, yet their voices are rarely heard in scholarly studies of life and well-being in the region. This book brings together new research by internationally recognised local and non-native scholars in a range of countries in Eastern Europe and the former Soviet Union. It covers, historically, the origins of legacies that continue to affect well-being and policy in the region today. Discussions of disability in culture and society highlight the broader conditions in which disabled people must build their identities and well-being whilst in-depth biographical profiles outline what living with disabilities in the region is like. Chapters on policy interventions, including international influences, examine recent reforms and the difficulties of implementing inclusive, community-based care. The book will be of interest both to regional specialists, for whom well-being, equality and human rights are crucial concerns, and to scholars of disability and social policy internationally.
Honorable Mention: 2022 Davis Center Book Prize in Political and Social Studies (ASEEES) This book examines Ukrainian state gender politics and investigates how gendered subject positions and policy discourses are constructed within and through social policies. Set against the backdrop of the post-Soviet transformations, nation-building, neoliberalization, and post-Maidan political transformations, policy and discursive changes reflect and reproduce the gender norms that not only derive from these ideological processes but also actively legitimize and enable them. This book considers how the relations between the state and woman-citizen are changing: from socialist paternalism to nationalist affective bond and neoliberal sacrificial citizenship, which conceals women within families but also deeply relies on their unpaid work. The book brings the Ukrainian case into the European debate on conservative neoliberal transformations and anti-gender political sentiment, and by doing that, advances the feminist theorization on neoliberalism. This book will be of particular interest to scholars in gender politics, sociology of policy, and post-socialist or Eastern European studies.
Against the backdrop of a post-Soviet state set aflame by geopolitical conflict and violent revolution, Narkomania considers whether substance use disorders are everywhere the same and whether our responses to drug use presuppose what kind of people those who use drugs really are. Jennifer J. Carroll's ethnography is a story about public health and international efforts to quell the spread of HIV. Carroll focuses on Ukraine where the prevalence of HIV among people who use drugs is higher than in parts of sub-Saharan Africa and unpacks the arguments and myths surrounding medication-assisted treatment (MAT) in Ukraine. What she presents in Narkomania forces us to question drug policy, its uses, and its effects on "normal" citizens. Carroll uses her findings to explore what people who use drugs can teach us about the contemporary societies emerging in post-Soviet space. With examples of how MAT has been politicized, how drug use has been tied to ideas of "good" citizenship, and how vigilantism towards people who use drugs has occurred, Narkomania details the cultural and historical backstory of the situation in Ukraine. Carroll reveals how global efforts supporting MAT in Ukraine allow the ideas surrounding MAT, drug use, and HIV to resonate more broadly into international politics and echo into the heart of the Ukrainian public.
Critical Theory and Disability explores social and ontological issues encountered by present-day disabled people, applying ideas from disability studies and phenomenology. It focuses on disabling contexts in order to highlight and criticize the ontological assumptions of contemporary society, particularly those related to the meaning of human being. In empirical terms, the book explores critically social practices that undermine disabled people's well being, drawing on cases from contemporary Bulgaria. It includes in-depth examination of key mechanisms such as disability assessment, personal assistance (direct payments) and disability-based discrimination. On this basis, wider sociological and ontological claims are made concerning the body, identity, otherness, and exclusion.
This book examines, through a detailed study of Soviet residential childcare homes and boarding schools, the much wider issues of Soviet policies towards deviance, social norms, repression, and social control. It reveals how through targeting children whose parents could not or did not take care of them, as well as children with disabilities, the system disproportionately involved children from socially marginal and poor families. It highlights how the system aimed to raise these children from the margins of society and transform them into healthy, happy, useful Soviet citizens, imbued with socialist values. The book also outlines how the system fitted in to Khrushchev’s reforms and social order policies, where the emphasis was on monitoring and controlling society without the recourse to direct repression and terror, and how continuity with this period was maintained even as the rest of Soviet society changed significantly.
This volume provides a much needed update on the state of civil society in post-communist Europe and Russia more than two decades after the fall of the communist regimes. The chapters offer new perspectives on social movement strategies in post-communist Central-Eastern Europe and Russia. The chapters illustrate how social movements develop particular repertoires of action and contention, which are better suited for their specific local contexts in the post-communist setting. In Russia and Poland, the most popular and effective choices are using domestic and transnational legal opportunities, judicial activism and litigation that complement the traditional lobbying and mass mobilization. Human rights framing has become important in Hungary and the Czech Republic. The chapters analyse various types of rights-based activism that operate in otherwise prohibitive social and political environments, thereby raising highly contentious issues, such as animal rights, environment and sustainability, human rights, women’s rights, and gay rights activism. The contributions richly illustrate the often surprising and multiple ways in which transnational discourses and norm pressure are received, translated or resisted in the local contexts. Finally, the volume provides a novel reconceptualisation and offers new understandings of the relationships between the state and civil society in the post-communist context. This book is based on a special issue of East European Politics.
Citizenship studies is at a crucial moment of globalizing as a field. What used to be mainly a European, North American, and Australian field has now expanded to major contributions featuring scholarship from Latin America, Asia, Africa, and the Middle East. The Routledge Handbook of Global Citizenship Studies takes into account this globalizing moment. At the same time, it considers how the global perspective exposes the strains and discords in the concept of ‘citizenship’ as it is understood today. With over fifty contributions from international, interdisciplinary experts, the Handbook features state-of-the-art analyses of the practices and enactments of citizenship across broad continental regions (Africas, Americas, Asias and Europes) as well as deterritorialized forms of citizenship (Diasporicity and Indigeneity). Through these analyses, the Handbook provides a deeper understanding of citizenship in both empirical and theoretical terms. This volume sets a new agenda for scholarly investigations of citizenship. Its wide-ranging contributions and clear, accessible style make it essential reading for students and scholars working on citizenship issues across the humanities and social sciences.