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Focusing on the case of disability, this book examines what happens when previously marginalised individuals obtain the legal recognition of their equal citizenship rights but cannot fully enjoy these rights because of structural inequality. Bringing together disability and citizenship studies, it explores an original conceptualisation of disability as a distinct social division and approaches citizenship as a developing institution. In addition to providing innovative theoretical perspectives on citizenship and disability, this book is grounded in the empirical analysis of the claims of disability activists in Sweden. Drawing on a wide range of blog posts and debate articles, it sheds light upon the inequality and domination faced by disabled people in Sweden and underlines the disability activists’ proactive ideas and solutions for constructing a more equal citizenship. This book will be of interest to scholars, activists and policymakers in the fields of disability, citizenship, social inequality, human rights, politics, activism, social welfare and sociology.
This handbook questions, debates and subverts commonly held assumptions about disability and citizenship in the global postcolonial context. Discourses of citizenship and human rights, so elemental to strategies for addressing disability-based inequality in wealthier nations, have vastly different ramifications in societies of the Global South, where resources for development are limited, democratic processes may be uncertain, and access to education, health, transport and other key services cannot be taken for granted. In a broad range of areas relevant to disability equity and transformation, an eclectic group of contributors critically consider whether, when and how citizenship may be used as a lever of change in circumstances far removed from UN boardrooms in New York or Geneva. Debate is polyvocal, with voices from the South engaging with those from the North, disabled people with nondisabled, and activists and politicians intersecting with researchers and theoreticians. Along the way, accepted wisdoms on a host of issues in disability and international development are enriched and problematized. The volume explores what life for disabled people in low and middle income countries tells us about subjects such as identity and intersectionality, labour and the global market, family life and intimate relationships, migration, climate change, access to the digital world, participation in sport and the performing arts, and much else.
What happens when a group traditionally defined as lacking the necessary capacities of citizenship is targeted by government programs that have made 'citizenship inclusion' their main goal? Combining theoretical perspectives of political philosophy, social theory, and disability studies, this book untangles the current state of Western intellectual disability politics following the replacement of state institutionalisation by independent and supported living, individual rights, and self-determination. Taking its cue from Foucault's conception of 'biopolitics', denoting the government of the individuals and the totality of the population, its overarching argument is that the ambiguous positioning of people with intellectual disabilities with respect to the ideals of citizenship results in a regime of government that simultaneously includes and excludes people of this group. On the one hand, its members are projected to become ideal-citizens via the cultivation of citizenship capacities. On the other, the right to live independently and by their own choices is curtailed as soon as they are seen as failing with respect to the ideals of reason and rationality. Therefore, coercion, restraints, and paternalism, which were all supposed to end with deinstitutionalisation, are still ingrained in services targeting the group. In equal parts a theoretical work, advancing debates of critical disability theory, social theory, and post-structural philosophy, as well as an empirical engagement with the history of intellectual disability politics and the ways in which present day politics target the group, this book will be of interest to all students and scholars of disability studies, disability politics, and political theory.
Sarah D. Phillips examines the struggles of disabled persons in Ukraine and the other former Soviet states to secure their rights during the tumultuous political, economic, and social reforms of the last two decades. Through participant observation and interviews with disabled Ukrainians across the social spectrum -- rights activists, politicians, students, workers, entrepreneurs, athletes, and others -- Phillips documents the creative strategies used by people on the margins of postsocialist societies to assert claims to "mobile citizenship." She draws on this rich ethnographic material to argue that public storytelling is a powerful means to expand notions of relatedness, kinship, and social responsibility, and which help shape a more tolerant and inclusive society.
A sociological history of the fight for civil rights for people with intellectual disabilities. Allison Carey develops a relational practice approach to the issues of intellectual disability & civil rights, looking at how advocacy has progressed over the course of the past century.
Over the last three decades, a number of reforms have taken place in European social policy with an impact on the opportunities for persons with disabilities to be full and active members of society. The policy reforms have aimed to change the balance between citizens’ rights and duties and the opportunities to enjoy choice and autonomy, live in the community and participate in political decision-making processes of importance for one’s life. How do the reforms influence the opportunities to exercise Active Citizenship? This volume presents the findings from the first cross-national comparison of how persons with disabilities reflexively make their way through the world, pursuing their own interests and values. The volume considers how their experiences, views and aspirations regarding participation vary across Europe. Based on retrospective life-course interviews, the volume examines the scope for agency on the part of persons with disabilities, i.e. the extent to which men and women with disabilities are able to make choices and pursue lives they have reasons to value. Drawing on structuration theory and the capability approach, the volume investigates the opportunities for exercising Active Citizenship among men and women in nine European countries. The volume identifies the policy implications of a process-oriented and multi-dimensional approach to Active Citizenship in European disability policy. It will appeal to policymakers and policy officials, as well as to researchers and students of disability studies, comparative social policy, international disability law and qualitative research methods.
Sarah Dauncey offers the first comprehensive exploration of disability and citizenship in Chinese society and culture from 1949 to the present. Through the analysis of a wide variety of Chinese sources, from film and documentary to literature and life writing, media and state documents, she sheds important new light on the ways in which disability and disabled identities have been represented and negotiated over this time. She exposes the standards against which disabled people have been held as the Chinese state has grappled with expectations of what makes the 'ideal' Chinese citizen. From this, she proposes an exciting new theoretical framework for understanding disabled citizenship in different societies – 'para-citizenship'. A far more dynamic relationship of identity and belonging than previously imagined, her new reading synthesises the often troubling contradictions of citizenship for disabled people – the perils of bodily and mental difference and the potential for personal and group empowerment.
Solo parenting, in vitro fertilization, surrogate mothers, gay and lesbian families, cloning and the prospect of �designer babies,� Viagra and the morning-after pill, HIV/AIDS, the global porn industry, on-line dating services, virtual sex--whether for better of worse, our intimate lives are in the throes of dramatic change. In this thought-provoking study, sociologist Ken Plummer examines the transformations taking place in the realm of intimacy and the conflicts--the �intimate troubles�--to which these changes constantly give rise. In surveying the intimate possibilities now available to us and the issues swirling around them, Plummer focuses especially on the overlap of public and private. Increasingly, our most private decisions are bound up with public institutions such as legal codes, the medical system, or the media. What impact does the increasingly public character of personal life have on our sense of ourselves and on how we view our own intimate choices? To navigate our way through a world in which people�s private lives are so often subject to public scrutiny and debate, and in which the public sphere is increasingly pluralized and contested, we must broaden our understanding of what it means to be a citizen. Through the idea of "intimate citizenship," Plummer sets an important agenda for the years to come.
Drawing on new empirical research with disabled people in the UK, and considering the work of theorists such as Berlin, Habermas and Mouffe, Ellison's ideas of proactive and defensive engagement and Turner's 'sociology of the body', Beckett proposes a new model of 'active' citizenship that rests upon an understanding of 'vulnerable personhood'.
In the first sustained examination of disability through the lens of political theory, The Capacity Contract shows how the exclusion of disabled people has shaped democratic politics. Stacy Clifford Simplican demonstrates how disability buttresses systems of domination based on race, sex, and gender. She exposes how democratic theory and politics have long blocked from political citizenship anyone whose cognitive capacity falls below a threshold level⎯marginalization with real-world repercussions on the implementation of disability rights today. Simplican’s compelling ethnographic analysis of the self-advocacy movement describes the obstacles it faces. From the outside, the movement must confront stiff budget cuts and dwindling memberships; internally, self-advocates must find ways to demand political standing without reinforcing entrenched stigma against people with profound cognitive disabilities. And yet Simplican’s investigation also offers democratic theorists and disability activists a more emancipatory vision of democracy as it relates to disability⎯one that focuses on enabling people to engage in public and spontaneous action to disrupt exclusion and stigma. Taking seriously democratic promises of equality and inclusion, The Capacity Contract rejects conceptions of political citizenship that privilege cognitive capacity and, instead, centers such citizenship on action that is accessible to all people.