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This book examines the role of Neonatal Intensive Care Units (NICUs) and follow-up clinics in addressing the complex developmental, behavioral, social, and medical needs of at-risk infants through early intervention and medical subspecialties. It describes the necessary functional components of follow-up clinics and challenges in establishing and running multidisciplinary clinics in an area of difficult heath care financing. Chapters provide essential guidelines for determining which neonates will need follow-up care, evaluating for neurodevelopmental delays and medical and behavioral impairment and disability, and estimating how long intervention and further follow-up will be required. Chapters also discuss organization, staffing, funding, testing protocols, and coordination with other programs and care facilities, particularly early intervention and the medical home. In addition, the book offers best practices for fostering optimal development for individual infants and high-risk populations while raising standards for neonatal care and creating a smooth transition to appropriate subsequent care. Topics featured in this book include: Developmental care in the nursery. Utilizing neonatal brain imaging to predict neurodevelopmental outcomes of NICU infants. Genetic considerations in infants with congenital anomalies. The HRIF clinic organization model. Issues common in neurodevelopmental testing of premature infants. The impact of environmental risks, such as parental distress and in-utero drug exposure, to infant neurodevelopment. Follow-Up for NICU Graduates is a must-have resource for researchers, practitioners, and graduate students in developmental psychology, pediatrics, neuroscience, obstetrics, nursing, and related disciplines.
With collaboration of Consulting Editor, Dr. Lucky Jain, Drs. Adams Chapman and DeMauro have put together a state-of-the art issue devoted to long-term outcomes for the NICU graduate. Top authors in the field provide clinical reviews in the following areas: Neurodevelopmental Outcomes in Early Childhood; Neurodevelopmental Outcomes at School Age and Adult Outcomes; Behavioral Sequela of Prematurity; Changing Prevalence of Cerebral Palsy in Extremely Preterm Infants; Medical Morbidity and its Impact on Neurodevelopmental Outcome; NEC and Neurodevelopmental Outcomes; Biological and Social Influences Over Time/Chronic lung disease and neurodevelopmental outcomes; Intracranial hemorrhage and neurodevelopmental outcomes; Public health implications of extremely preterm birth: What are we measuring; Looking beyond neurodevelopmental impairment; Long-Term Functioning and Participation Across the Life Course for NICU Graduates; Early diagnosis of treatment of CP; Psychiatric Sequelae of Prematurity and Prevention of prematurity. Readers will come away with the information they need to imporove outcomes for the NICU infant.
The definitive manual of pediatric medicine - completely updated with 75 new chapters and e-book access.
Children with neurodevelopmental disabilities such as mental retardation or autism present multiple challenges to their families, health care providers, and teachers. Professionals consulted by desperate parents often see the problems from their own angle only and diagnosis and intervention efforts wind up fragmented and ineffective. This book presents a model multidisciplinary approach to care--family-centered and collaborative--that has proven effective in practice. A pillar of the approach is recognition of the importance of performing culturally competent assessment and adjusting service delivery so that is responsive to cultural differences. Detailed case stories illuminate the ways in which the approach can help children with different backgrounds and different disabilities. Most chapters include study questions, lists of resources, and glossaries to facilitate easy comprehension by professionals with different backgrounds--in special education, communication sciences, and disorders, clinical and counseling psychology, neuropsychology and psychiatry, social work, pediatrics--and program administrators as well as students, trainees and educated parents. Caring for Children With Neurodevelopmental Disabilities and Their Families constitutes a crucial new resource for all those professionally and personally concerned with these children.
In this issue of Clinics in Perinatology, guest editors Drs. Nathalie Maitre and Andrea F. Duncan bring their considerable expertise to the topic of Neurological and Developmental Outcomes of High-Risk Neonates. Preterm birth complications are the leading cause of death among children under five years of age, and three-quarters of these deaths could be prevented with current, cost-effective interventions. In this issue, top experts provide neonatologists and perinatologists with the clinical information they need to improve outcomes in high-risk newborns. Contains 15 practice-oriented topics including neonatal opioid withdrawal syndrome; healthcare disparities in high-risk neonates; autism spectrum and high-risk infant phenotypes; NICU transition to home interventions; telehealth and other innovations in NICU follow up; and more. Provides in-depth clinical reviews on neurological and developmental outcomes of high-risk neonates, offering actionable insights for clinical practice. Presents the latest information on this timely, focused topic under the leadership of experienced editors in the field. Authors synthesize and distill the latest research and practice guidelines to create clinically significant, topic-based reviews.
The increasing prevalence of preterm birth in the United States is a complex public health problem that requires multifaceted solutions. Preterm birth is a cluster of problems with a set of overlapping factors of influence. Its causes may include individual-level behavioral and psychosocial factors, sociodemographic and neighborhood characteristics, environmental exposure, medical conditions, infertility treatments, and biological factors. Many of these factors co-occur, particularly in those who are socioeconomically disadvantaged or who are members of racial and ethnic minority groups. While advances in perinatal and neonatal care have improved survival for preterm infants, those infants who do survive have a greater risk than infants born at term for developmental disabilities, health problems, and poor growth. The birth of a preterm infant can also bring considerable emotional and economic costs to families and have implications for public-sector services, such as health insurance, educational, and other social support systems. Preterm Birth assesses the problem with respect to both its causes and outcomes. This book addresses the need for research involving clinical, basic, behavioral, and social science disciplines. By defining and addressing the health and economic consequences of premature birth, this book will be of particular interest to health care professionals, public health officials, policy makers, professional associations and clinical, basic, behavioral, and social science researchers.
Improve medical and developmental outcomes in high-risk infants with evidence-based management strategies Beyond the NICU is the first book to deliver practical, evidence-based strategies for healthcare providers caring for the NICU graduate during convalescence and after discharge. It is a guide to the successful transition of a high-risk infant from intensive care to the intermediate-level nursery, and then, to help the child thrive outside of the hospital in a home environment. To advance the standard of care of these vulnerable patients, Beyond the NICU draws together clinically focused guidelines to improve patient outcomes and reduce hospital readmissions. Drawing on an international team of respected authorities, Beyond the NICU provides the strategies necessary to ensure the success of convalescing NICU graduates in both inpatient and outpatient settings.
The most comprehensive book available on neonatal intervention, this in-depth resource gives professionals the strong foundation of clinical knowledge they'll need to work with high-risk newborns. With a unique developmental and therapeutic perspective that sets it apart from other texts on the subject, the book is filled with research findings and practical guidelines clinicians will use to promote the well-being of infants in the NICU and to involve and support their families. In-service and preservice professionals will benefit from an exploration of different developmental models for neonatal intervention an overview of medical conditions of newborns and commonly used interventions a synopsis of the functional abilities of premature infants discussion of crucial elements within the NICU environment, including teamwork, equipment, and sources of support detailed guidelines for positioning and feeding a model for family-centered care guidance on assessing behavior and development suggestions for working with infants with prolonged NICU stays tips on easing the transition from hospital to home information on following up with high-risk infants The overviews, learning objectives, and case stories in each chapter make this an ideal textbook for new and future clinicians, and the guidelines for everyday practice make it a reference professionals will use again and again as they work with high-risk infants and their families.