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This comprehensive book thoroughly addresses all aspects of health care transition of adolescents and young adults with chronic illness or disability; and includes the framework, tools and case-based examples needed to develop and evaluate a Health Care Transition (HCT) planning program that can be implemented regardless of a patient’s disease or disability. Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is a uniquely inclusive resource, incorporating youth/young adult, caregiver, and pediatric and adult provider voices and perspectives. Part I of the book opens by defining Health Care Transition, describing the urgent need for comprehensive transition planning, barriers to HCT and then offering a framework for developing and evaluating health care transition programs. Part II focuses on the anatomic and neuro-chemical changes that occur in the brain during adolescence and young adulthood, and how they affect function and behavior. Part III covers the perspectives of important participants in the HCT transition process – youth and young adults, caregivers, and both pediatric and adult providers. Each chapter in Part IV addresses a unique aspect of developing HCT programs. Part V explores various examples of successful transition from the perspective of five key participants in the transition process - patients, caregivers, pediatric providers, adult providers and third party payers. Related financial matters are covered in part VI, while Part VII explores special issues such as HCT and the medical home, international perspectives, and potential legal issues. Models of HCT programs are presented in Part VIII, utilizing an example case study. Representing perspectives from over 75 authors and more than 100 medical centers in North America and Europe, Health Care Transition: Building a Program for Adolescents and Young Adults with Chronic Illness and Disability is an ideal resource for any clinician, policy maker, caregiver, or hospitalist working with youth in transition.
Increasing public investments in health care services for low-income and special needs children and adolescents in the United States have raised questions about whether these efforts improve their health outcomes. Yet it is difficult to assess the general health status and health care quality for younger populations, especially those at risk of poor health outcomes, because the United States has no national information system that can provide timely, comprehensive, and reliable indicators in these areas for children and adolescents. Without such a system in place, it is difficult to know whether and how selected health care initiatives and programs contribute to children's health status. Child and Adolescent Health and Health Care Quality identifies key advances in the development of pediatric health and health care quality measures, examines the capacity of existing federal data sets to support these measures, and considers related research activities focused on the development of new measures to address current gaps. This book posits the need for a comprehensive strategy to make better use of existing data, to integrate different data sources, and to develop new data sources and collection methods for unique populations. Child and Adolescent Health and Health Care Quality looks closely at three areas: the nature, scope, and quality of existing data sources; gaps in measurement areas; and methodological areas that deserve attention. Child and Adolescent Health and Health Care Quality makes recommendations for improving and strengthening the timeliness, quality, public transparency, and accessibility of information on child health and health care quality. This book will be a vital resource for health officials at the local, state, and national levels, as well as private and public health care organizations and researchers.
Provide comprehensive primary care for the growing number of children with chronic conditions. Featuring contributions from more than 50 expert nurse practitioners and their interprofessional colleagues, Primary Care of Children with Chronic Conditions offers expert guidance on the management of children with special needs and their families. Comprehensive coverage presents the most current knowledge and insights available on these specific conditions, including information on the COVID-19 pandemic. This valuable resource helps providers improve pediatric care for chronic conditions and addresses the need for transitional care to adulthood and the issues and gaps in healthcare that may hinder the quality of care for this unique population. - The only book authored by Nurse Practitioners and their colleagues focusing on managing the primary health care needs of children with chronic conditions. - More than 50 expert contributors provide the most current information available on specific conditions. - Comprehensive summary boxes at the end of chronic conditions chapters provide at-a-glance access to key information. - Full-color format enhances readability and highlights key information for quick access. - Up-to-date references ensure access to the most current, evidence-based coverage with the latest research findings and management protocols.
This book is an important new resource for clinicians caring for ventilator dependent children, who often have complex health care needs, are supported by advanced technology and are at high-risk of serious complications. Despite the complicated health care needs of children who rely on chronic respiratory support, there are few guidelines and little evidence available to guide the clinicians who care for these patients. This book covers the many aspects involved in the care of these complex children, with input from experts in the fields of pediatric pulmonology, intensive care, ethics, respiratory therapy, and nursing. In depth chapters provide an introduction to the use of chronic invasive and non-invasive ventilation in children and describe and review what is known about methods of delivering ventilator support, care of the chronically ventilated patient in the community , use of chronic ventilator support in patients with disorders commonly leading to respiratory failure and outcomes for patients and their caregivers. This book is intended to be useful not only for pediatric pulmonologists, but also for intensivists, cardiologists, physical medicine/rehabilitation specialists, nurses, respiratory therapists and the primary care physicians involved in the complexities of managing care for this unique group of special needs children.
This book comprises innovative research on the information behavior of various age groups. It also looks at special populations such as ethnic minorities, indigenous peoples, and users with disabilities. The book presents research and reflections on designing systems that help the new generation cope with a complex knowledge society.
Authors, Matthew D. Bramlett ... [et. al.].
First Edition Designated a Doody's Core Title and Winner of an AJN Book of the Year Award! This distinguished title, written by nationally recognized nursing experts in health care and pediatrics, delivers the most current evidence-based practice standards and their application. These guidelines, developed through systematic consensus-building led by the AAN’s Child, Adolescent, and Family Expert Panel, incorporates the wisdom of 17 professional nursing and healthcare organizations regarding the core elements of pediatric nursing excellence. This second edition contains substantial updates to all guidelines based on the most current research evidence and demonstrates examples of how to best apply the guidelines to nursing practice. Disseminating the gold standard of care for infants, children, adolescents, and families, this text addresses access to health care, genetic assessment and counseling, culturally responsive care, care for children and youth with disabilities, and others. Every chapter breaks down a guideline into its definition, history, and implications for clinical, education, policy, and research in nursing practice. A case study based around the analyzed guideline illustrates how the guideline should be employed in nursing practice culminates every chapter. Replete with supplemental online files full of resources to apply these guidelines to nursing practice, Guidelines for Nursing Excellence in the Care of Children, Youth, and Families represents an invaluable resource for pediatric nurses, nursing students, nursing educators, nursing administrators, pediatric and family nurse practitioners, advanced practice nurses, nursing clinicians in public health, school nurses, and nurse researchers. New to the Second Edition: Significant updates to all 17 guidelines based on latest research evidence Contributions by five new nursing and health care organizations A new chapter organizational framework incorporating useful pedagogical elements Examples of applications to education, research, policy, and clinical practice A new faculty toolkit Key Features: Provides current pediatric practice standards formatted and endorsed by 17 leading professional nursing and health care organizations Includes content applicable to advanced practice nurses, educators, researchers, and consultants Includes learning objectives, description of guidelines, applications to practice, exemplars, references, and websites for additional resources