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This engaging new book takes a fresh approach to the major topics surrounding the processes and rituals of death and dying in the United States. It emphasizes individual experiences and personal reactions to death as well as placing mortality within a wider social context, drawing on theoretical frameworks, empirical research and popular culture. Throughout the text the authors highlight the importance of two key factors in American society which determine who dies and under what circumstances: persistent social inequality and the American consumerist ethic. These features are explored through a discussion of topics ranging from debates about euthanasia to deaths resulting from war and terrorism; from the death of a child to children’s experience of grieving and bereavement; and from beliefs about life after death to more practical issues such as the disposal of the dead body. Drawing on sociological, anthropological, philosophical, and historical research the authors present the salient features of death and dying for upper-level students across the social sciences. For anyone interested in learning more about the end of life, this book will provide a useful and accessible perspective on the uniquely American understanding of death and dying.
For patients and their loved ones, no care decisions are more profound than those made near the end of life. Unfortunately, the experience of dying in the United States is often characterized by fragmented care, inadequate treatment of distressing symptoms, frequent transitions among care settings, and enormous care responsibilities for families. According to this report, the current health care system of rendering more intensive services than are necessary and desired by patients, and the lack of coordination among programs increases risks to patients and creates avoidable burdens on them and their families. Dying in America is a study of the current state of health care for persons of all ages who are nearing the end of life. Death is not a strictly medical event. Ideally, health care for those nearing the end of life harmonizes with social, psychological, and spiritual support. All people with advanced illnesses who may be approaching the end of life are entitled to access to high-quality, compassionate, evidence-based care, consistent with their wishes. Dying in America evaluates strategies to integrate care into a person- and family-centered, team-based framework, and makes recommendations to create a system that coordinates care and supports and respects the choices of patients and their families. The findings and recommendations of this report will address the needs of patients and their families and assist policy makers, clinicians and their educational and credentialing bodies, leaders of health care delivery and financing organizations, researchers, public and private funders, religious and community leaders, advocates of better care, journalists, and the public to provide the best care possible for people nearing the end of life.
When the end of life makes its inevitable appearance, people should be able to expect reliable, humane, and effective caregiving. Yet too many dying people suffer unnecessarily. While an "overtreated" dying is feared, untreated pain or emotional abandonment are equally frightening. Approaching Death reflects a wide-ranging effort to understand what we know about care at the end of life, what we have yet to learn, and what we know but do not adequately apply. It seeks to build understanding of what constitutes good care for the dying and offers recommendations to decisionmakers that address specific barriers to achieving good care. This volume offers a profile of when, where, and how Americans die. It examines the dimensions of caring at the end of life: Determining diagnosis and prognosis and communicating these to patient and family. Establishing clinical and personal goals. Matching physical, psychological, spiritual, and practical care strategies to the patient's values and circumstances. Approaching Death considers the dying experience in hospitals, nursing homes, and other settings and the role of interdisciplinary teams and managed care. It offers perspectives on quality measurement and improvement, the role of practice guidelines, cost concerns, and legal issues such as assisted suicide. The book proposes how health professionals can become better prepared to care well for those who are dying and to understand that these are not patients for whom "nothing can be done."
Following the death of her father, journalist and hospice volunteer Ann Neumann sets out to examine what it means to die well in the United States. When Ann Neumann’s father was diagnosed with non-Hodgkin’s lymphoma, she left her job and moved back to her hometown of Lancaster, Pennsylvania. She became his full-time caregiver—cooking, cleaning, and administering medications. When her father died, she was undone by the experience, by grief and the visceral quality of dying. Neumann struggled to put her life back in order and found herself haunted by a question: Was her father’s death a good death? The way we talk about dying and the way we actually die are two very different things, she discovered, and many of us are shielded from what death actually looks like. To gain a better understanding, Neumann became a hospice volunteer and set out to discover what a good death is today. She attended conferences, academic lectures, and grief sessions in church basements. She went to Montana to talk with the attorney who successfully argued for the legalization of aid in dying, and to Scranton, Pennsylvania, to listen to “pro-life” groups who believe the removal of feeding tubes from some patients is tantamount to murder. Above all, she listened to the stories of those who were close to death. What Neumann found is that death in contemporary America is much more complicated than we think. Medical technologies and increased life expectancies have changed the very definition of medical death. And although death is our common fate, it is also a divisive issue that we all experience differently. What constitutes a good death is unique to each of us, depending on our age, race, economic status, culture, and beliefs. What’s more, differing concepts of choice, autonomy, and consent make death a contested landscape, governed by social, medical, legal, and religious systems. In these pages, Neumann brings us intimate portraits of the nurses, patients, bishops, bioethicists, and activists who are shaping the way we die. The Good Death presents a fearless examination of how we approach death, and how those of us close to dying loved ones live in death’s wake.
When the Spanish colonized the Americas, they brought many cultural beliefs and practices with them, not the least of which involved death and dying. The essays in this volume explore the resulting intersections of cultures through recent scholarship related to death and dying in colonial Spanish America between the sixteenth and eighteenth centuries. The authors address such important questions as: What were the relationships between the worlds of the living and the dead? How were these relationships sustained not just through religious dogma and rituals but also through everyday practices? How was unnatural death defined within different population strata? How did demo-graphic and cultural changes affect mourning? The variety of sources uncovered in the authorsÕ original archival research suggests the wide diversity of topics and approaches they employ: Nahua annals, Spanish chronicles, Inquisition case records, documents on land disputes, sermons, images, and death registers. Geographically, the range of research focuses on the viceroyalties of New Spain, Peru, and New Granada. The resulting recordsÑboth documentary and archaeologicalÑoffer us a variety of vantage points from which to view each of these cultural groups as they came into contact with others. Much less tied to modern national boundaries or old imperial ones, the many facets of the new historical research exploring the topic of death demonstrate that no attitudes or practices can be considered either ÒWesternÓ or universal.
NATIONAL BESTSELLER • NATIONAL BOOK AWARD FINALIST • An "extraordinary ... profoundly moving" history (The New York Times Book Review) of the American Civil War that reveals the ways that death on such a scale changed not only individual lives but the life of the nation. An estiated 750,000 soldiers lost their lives in the American Civil War. An equivalent proportion of today's population would be seven and a half million. In This Republic of Suffering, Drew Gilpin Faust describes how the survivors managed on a practical level and how a deeply religious culture struggled to reconcile the unprecedented carnage with its belief in a benevolent God. Throughout, the voices of soldiers and their families, of statesmen, generals, preachers, poets, surgeons, nurses, northerners and southerners come together to give us a vivid understanding of the Civil War's most fundamental and widely shared reality. With a new introduction by the author, and a new foreword by Mike Mullen, 17th Chairman of the Joint Chiefs of Staff.
Syracuse, New York, in the late 1980s led U.S. cities in African American infant deaths. Even today, in this "all American city," infants of color die more than two times as often as white babies. Infant mortality is too often addressed as if it were an isolated problem, rather than part of a systemic and repeating pattern of embedded racism and structural violence. The clearing of whole neighborhoods during urban renewal, coupled with the collapse of industry, brought unintended consequences. Dilapidated rental housing, abandoned houses, and empty lots provide the conditions for lead poisoning, gonorrhea, and illicit drug use. Inadequate education, unemployment, and racially biased arrest and sentencing underpin the epidemic of African American male incarceration. Inmate fathers cannot provide financial support and only limited emotional support during collect calls from jail or prison. Supermarkets fled the inner city, where corner stores sell cigarettes, malt liquor, lottery tickets, and drug paraphernalia in place of healthy food. The stories and the data in this book show that low birth weight, premature birth, and infant death are a part of life patterns resulting from systemic discrimination increasing risk over a lifetime and, in some cases, reaching the next generation.
Michael K. Rosenow investigates working people's beliefs, rituals of dying, and the politics of death by honing in on three overarching questions: How did workers, their families, and their communities experience death? Did various identities of class, race, gender, and religion coalesce to form distinct cultures of death for working people? And how did people's attitudes toward death reflect notions of who mattered in U.S. society? Drawing from an eclectic array of sources ranging from Andrew Carnegie to grave markers in Chicago's potter's field, Rosenow portrays the complex political, social, and cultural relationships that fueled the United States' industrial ascent. The result is an undertaking that adds emotional depth to existing history while challenging our understanding of modes of cultural transmission.
DEATH, AMERICAN STYLE: A CULTURAL HISTORY OF DYING IN AMERICA is the first comprehensive cultural history to explore America’s uneasy relationship with death over the past century.
A New York Times Bestseller A Wall Street Journal Bestseller A New York Times Notable Book of 2020 A New York Times Book Review Editors’ Choice Shortlisted for the Financial Times and McKinsey Business Book of the Year A New Statesman Book to Read From economist Anne Case and Nobel Prize winner Angus Deaton, a groundbreaking account of how the flaws in capitalism are fatal for America's working class Deaths of despair from suicide, drug overdose, and alcoholism are rising dramatically in the United States, claiming hundreds of thousands of American lives. Anne Case and Angus Deaton explain the overwhelming surge in these deaths and shed light on the social and economic forces that are making life harder for the working class. As the college educated become healthier and wealthier, adults without a degree are literally dying from pain and despair. Case and Deaton tie the crisis to the weakening position of labor, the growing power of corporations, and a rapacious health-care sector that redistributes working-class wages into the pockets of the wealthy. This critically important book paints a troubling portrait of the American dream in decline, and provides solutions that can rein in capitalism's excesses and make it work for everyone.