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A guide to dealing with a diagnosis of Alezheimer's: coping with the diagnosis, managing symptoms, plannig for the future, keeping hope and humor, participating in research, and more.
My hope for this book is that I give a glimpse to you, the reader, into the experiences we went through when my husband - a young, healthy man - was diagnosed at age 50 with Early Onset Alzheimer's. My aim is to give you some insight into how to perhaps deal with each change with a little more understanding, and the knowledge that you aren't alone. On those days where you are frustrated or unsure if you can continue with your journey as a caregiver through this terrible disease, you must remember that nobody is infallible and nobody is a saint. You are human, you make mistakes, and you are doing the very best you can. When my husband was first diagnosed, I remember telling a friend, "I don't think I can do this; I don't know if I can ever do the full care when he gets to that stage." I was able to continue the care-giving a lot longer than I ever imagined - one day at a time. I wanted to "give back" in some way to help others who are facing what we faced. My memories are still very vivid right from the first indication that something was wrong. I don't regret any of the treatments we tried or the care-giving I did. My only regret is that I wasn't able to cure him. From our family to yours. God bless you in your journey, knowing you aren't alone.
Around one in 1000 younger people (under 65) in the UK are living with dementia, about one-third of whom have Alzheimer's. These conditions are sometimes misdiagnosed as stress or depression. Younger people have particular difficulties, such as work, dependent children, and financial commitments. They may be physically fit and have to deal with lack of understanding and social stigma caused by 'odd' behaviour. They may find it hard to cope with losing their faculties at such a young age. They may not know where to turn for help - or even if specialised help is available. This book will provide some of the answers.
New edition, completely rewritten, with new chapters on endovascular surgery and mitochrondrial and ion channel disorders.
CBS News correspondent Barry Petersen tells the tender story of his wife's battle with Early Onset Alzheimer's.
As the largest generation in U.S. history - the population born in the two decades immediately following World War II - enters the age of risk for cognitive impairment, growing numbers of people will experience dementia (including Alzheimer's disease and related dementias). By one estimate, nearly 14 million people in the United States will be living with dementia by 2060. Like other hardships, the experience of living with dementia can bring unexpected moments of intimacy, growth, and compassion, but these diseases also affect people's capacity to work and carry out other activities and alter their relationships with loved ones, friends, and coworkers. Those who live with and care for individuals experiencing these diseases face challenges that include physical and emotional stress, difficult changes and losses in their relationships with life partners, loss of income, and interrupted connections to other activities and friends. From a societal perspective, these diseases place substantial demands on communities and on the institutions and government entities that support people living with dementia and their families, including the health care system, the providers of direct care, and others. Nevertheless, research in the social and behavioral sciences points to possibilities for preventing or slowing the development of dementia and for substantially reducing its social and economic impacts. At the request of the National Institute on Aging of the U.S. Department of Health and Human Services, Reducing the Impact of Dementia in America assesses the contributions of research in the social and behavioral sciences and identifies a research agenda for the coming decade. This report offers a blueprint for the next decade of behavioral and social science research to reduce the negative impact of dementia for America's diverse population. Reducing the Impact of Dementia in America calls for research that addresses the causes and solutions for disparities in both developing dementia and receiving adequate treatment and support. It calls for research that sets goals meaningful not just for scientists but for people living with dementia and those who support them as well. By 2030, an estimated 8.5 million Americans will have Alzheimer's disease and many more will have other forms of dementia. Through identifying priorities social and behavioral science research and recommending ways in which they can be pursued in a coordinated fashion, Reducing the Impact of Dementia in America will help produce research that improves the lives of all those affected by dementia.
Step-by-step guidelines show how to facilitate and administer a support group for early-stage Alzheimer's patients, from selecting group participants to addressing administrative concerns. Includes role plays for practicing ways to handle difficult situations, advice on involving caregivers and family members, and numerous sample interview, screening, evaluation, and observation forms and contractual agreements. A review of the author's study on patient groups includes research questions, procedures, and results. Annotation copyright by Book News, Inc., Portland, OR
How to live a full and rewarding life after a dementia diagnosis. Keith Oliver was diagnosed with young onset dementia at the age of 55. Unaware at the time that dementia could affect people of this age, Keith set out to increase public awareness of the condition and dispel the myths about the illness. Using a unique diary format, this intimate and empowering memoir captures what everyday life with dementia is like, offering both a candid look at its struggles, and a profoundly moving account of Keith's journey to live a full life afterwards.
The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
People with early dementia face enormous challenges in coping with their condition, yet they typically receive no personalized education or support following the diagnosis. Counseling empowers them to understand and come to terms with the illness while also learning to manage and make healthy adaptations to it. With the rapid increase in people diagnosed with early memory impairment--and demand for better support services--this groundbreaking new guide gives you essential tools to become an integral partner in a process that helps people adjust to the many changes in their lives. Presenting an innovative new counseling framework designed around the unique problems and needs arising from dementia, Counseling People with Early-Stage Alzheimer's Disease guides the counselor and client through the many emotional, practical, and lifestyle issues to be faced. In her new and easy-to-follow protocol, Robyn Yale--an internationally renowned expert on early-stage support groups--explores topics that include identity and self-esteem, resilience, relating to and educating others, stress management, and more. You will come away with an expanded repertoire of specialized skills and support roles--including coach, care planner, mediator, communications specialist, and problem solver--that will dramatically improve your ability to assist people with early dementia to - work through complex emotions - tap into useful coping mechanisms - focus on capabilities - adapt to practical circumstances in their day-to-day activities - retain maximum autonomy over lifestyle preferences - find new ways to move forward with their lives At the heart of this approach is the unique story behind each relationship forged between the person with dementia and the counselor. It is sure to spark inspiration and self-discovery--in yourself and in those with whom you work!