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As part of the response to the COVID-19 pandemic, governments worldwide have deployed mobile phone surveillance programs to augment public health interventions. However, these programs raise privacy concerns. The authors of this report examine whether two goals can be achieved concurrently: the use of mobile phones as public health surveillance tools to help manage COVID‐19 and future crises, and the protection of privacy and civil liberties.
As nations race to hone contact-tracing efforts, the world's experts consider strategies for maximum transparency and impact. As public health professionals around the world work tirelessly to respond to the COVID-19 pandemic, it is clear that traditional methods of contact tracing need to be augmented in order to help address a public health crisis of unprecedented scope. Innovators worldwide are racing to develop and implement novel public-facing technology solutions, including digital contact tracing technology. These technological products may aid public health surveillance and containment strategies for this pandemic and become part of the larger toolbox for future infectious outbreak prevention and control. As technology evolves in an effort to meet our current moment, Johns Hopkins Project on Ethics and Governance of Digital Contact Tracing Technologies—a rapid research and expert consensus group effort led by Dr. Jeffrey P. Kahn of the Johns Hopkins Berman Institute of Bioethics in collaboration with the university's Center for Health Security—carried out an in-depth analysis of the technology and the issues it raises. Drawing on this analysis, they produced a report that includes detailed recommendations for technology companies, policymakers, institutions, employers, and the public. The project brings together perspectives from bioethics, health security, public health, technology development, engineering, public policy, and law to wrestle with the complex interactions of the many facets of the technology and its applications. This team of experts from Johns Hopkins University and other world-renowned institutions has crafted clear and detailed guidelines to help manage the creation, implementation, and application of digital contact tracing. Digital Contact Tracing for Pandemic Response is the essential resource for this fast-moving crisis. Contributors: Joseph Ali, JD; Anne Barnhill, PhD; Anita Cicero, JD; Katelyn Esmonde, PhD; Amelia Hood, MA; Brian Hutler, Phd, JD; Jeffrey P. Kahn, PhD, MPH; Alan Regenberg, MBE; Crystal Watson, DrPH, MPH; Matthew Watson; Robert Califf, MD, MACC; Ruth Faden, PhD, MPH; Divya Hosangadi, MSPH; Nancy Kass, ScD; Alain Labrique, PhD, MHS, MS; Deven McGraw, JD, MPH, LLM; Michelle Mello, JD, PhD; Michael Parker, BEd (Hons), MA, PhD; Stephen Ruckman, JD, MSc, MAR; Lainie Rutkow, JD, MPH, PhD; Josh Sharfstein, MD; Jeremy Sugarman, MD, MPH, MA; Eric Toner, MD; Mar Trotochaud, MSPH; Effy Vayena, PhD; Tal Zarsky, JSD, LLM, LLB
Pandemics are disruptive. Thus, there is a need to prepare and plan actions in advance for identifying, assessing, and responding to such events to manage uncertainty and support sustainable livelihood and wellbeing. A detailed assessment of a continuously evolving situation needs to take place, and several aspects must be brought together and examined before the declaration of a pandemic even happens. Various health organizations; crisis management bodies; and authorities at local, national, and international levels are involved in the management of pandemics. There is no better time to revisit current approaches to cope with these new and unforeseen threats. As countries must strike a fine balance between protecting health, minimizing economic and social disruption, and respecting human rights, there has been an emerging interest in lessons learned and specifically in revisiting past and current pandemic approaches. Such approaches involve strategies and practices from several disciplines and fields including healthcare, management, IT, mathematical modeling, and data science. Using data science to advance in-situ practices and prompt future directions could help alleviate or even prevent human, financial, and environmental compromise, and loss and social interruption via state-of-the-art technologies and frameworks. Data Science Advancements in Pandemic and Outbreak Management demonstrates how strategies and state-of-the-art IT have and/or could be applied to serve as the vehicle to advance pandemic and outbreak management. The chapters will introduce both technical and non-technical details of management strategies and advanced IT, data science, and mathematical modelling and demonstrate their applications and their potential utilization within the identification and management of pandemics and outbreaks. It also prompts revisiting and critically reviewing past and current approaches, identifying good and bad practices, and further developing the area for future adaptation. This book is ideal for data scientists, data analysts, infectious disease experts, researchers studying pandemics and outbreaks, IT, crisis and disaster management, academics, practitioners, government officials, and students interested in applicable theories and practices in data science to mitigate, prepare for, respond to, and recover from future pandemics and outbreaks.
The COVID-19 pandemic has disrupted life as we knew it. Lockdowns, self-isolation and quarantine have become a normal part of everyday life. Pandemic surveillance allows governments and corporations to monitor and surveil the spread of the virus and to make sure citizens follow the measures they put in place. This is evident in the massive, unprecedented mobilization of public health data to contain and combat the virus, and the ballooning of surveillance technologies such as contact-tracing apps, facial recognition, and population tracking. This can also be seen as a pandemic of surveillance. In this timely book, David Lyon tracks the development of these methods, examining different forms of pandemic surveillance, in health-related and other areas, from countries around the world. He explores their benefits and disadvantages, their legal status, and how they relate to privacy protection, an ethics of care, and data justice. Questioning whether this new culture of surveillance will become a permanent feature of post-pandemic societies and the long-term negative effects this might have on social inequalities and human freedoms, Pandemic Surveillance highlights the magnitude of COVID-19-related surveillance expansion. The book also underscores the urgent need for new policies relating to surveillance and data justice in the twenty-first century.
The goal of the book is to present the latest research on the new challenges of data technologies. It will offer an overview of the social, ethical and legal problems posed by group profiling, big data and predictive analysis and of the different approaches and methods that can be used to address them. In doing so, it will help the reader to gain a better grasp of the ethical and legal conundrums posed by group profiling. The volume first maps the current and emerging uses of new data technologies and clarifies the promises and dangers of group profiling in real life situations. It then balances this with an analysis of how far the current legal paradigm grants group rights to privacy and data protection, and discusses possible routes to addressing these problems. Finally, an afterword gathers the conclusions reached by the different authors and discuss future perspectives on regulating new data technologies.
As part of the response to the COVID-19 pandemic, governments worldwide have deployed mobile phone surveillance programs to augment public health interventions. However, these programs raise privacy concerns. The authors of this report examine whether two goals can be achieved concurrently: the use of mobile phones as public health surveillance tools to help manage COVID‐19 and future crises, and the protection of privacy and civil liberties.
COVID-19 has reshaped how social, economic, and political power is created and exerted through technology.Through international case studies, this book analyses how technologies of monitoring infections, information, and behaviour have been applied and justified during the emergency, what their side-effects have been, and what kinds of resistance they have met.
This book offers the latest research results and predictions in data protection with a special focus on post-pandemic society. This book also includes various case studies and applications on data protection. It includes the Internet of Things (IoT), smart cities, federated learning, Metaverse, cryptography and cybersecurity. Data protection has burst onto the computer security scene due to the increased interest in securing personal data. Data protection is a key aspect of information security where personal and business data need to be protected from unauthorized access and modification. The stolen personal information has been used for many purposes such as ransom, bullying and identity theft. Due to the wider usage of the Internet and social media applications, people make themselves vulnerable by sharing personal data. This book discusses the challenges associated with personal data protection prior, during and post COVID-19 pandemic. Some of these challenges are caused by the technological advancements (e.g. Artificial Intelligence (AI)/Machine Learning (ML) and ChatGPT). In order to preserve the privacy of the data involved, there are novel techniques such as zero knowledge proof, fully homomorphic encryption, multi-party computations are being deployed. The tension between data privacy and data utility drive innovation in this area where numerous start-ups around the world have started receiving funding from government agencies and venture capitalists. This fuels the adoption of privacy-preserving data computation techniques in real application and the field is rapidly evolving. Researchers and students studying/working in data protection and related security fields will find this book useful as a reference.
Data privacy law in Africa: Emerging perspectives delves into the profound impact of data privacy on individuals, businesses, and governments across the continent. Experts from diverse African nations provide a comprehensive view of the evolving regulatory frameworks guiding data privacy, exploring its legal, social, economic, and cultural implications. Examining emerging contexts such as Artificial Intelligence, vulnerable groups, and the challenges presented by COVID-19, the book sheds light on the present and envisions future trajectories in data governance. A valuable resource for those navigating the intricate intersection of law and technology in Africa, offering innovative solutions and best practices for enhanced data privacy.
The COVID-19 pandemic not only ravaged human bodies but also had profound and possibly enduring effects on the health of political and legal systems, economies and societies. Almost overnight, governments imposed the severest restrictions in modern times on rights and freedoms, elections, parliaments and courts. Legal and political institutions struggled to adapt, creating a catalyst for democratic decline and catastrophic increases in poverty and inequality. This handbook analyses the global pandemic response through five themes: governance and democracy; human rights; the rule of law; science, public trust and decision making; and states of emergency and exception. Containing 12 thematic commentaries and 25 chapters on countries of diverse size, wealth and experience of COVID-19, it represents the combined effort of more than 50 contributors, including leading scholars and rising voices in the fields of constitutional, international, public health, human rights and comparative law, as well as political science, and science and technology studies. Taking stock after the onset of global emergency, this book provides essential analysis for politicians, policy-makers, jurists, civil society organisations, academics, students and practitioners at both national and international level on the best, and most concerning, practices adopted in response to COVID-19 – and key insights into how states and multilateral institutions should reform, adapt and prepare for future emergencies.