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For parents and children looking for a way to open a dialogue on how Alzheimer's disease can affect their loved ones.
A New York Times Bestseller Emmy-award winning broadcast journalist and leading Alzheimer’s advocate Meryl Comer’s Slow Dancing With a Stranger is a profoundly personal, unflinching account of her husband’s battle with Alzheimer’s disease that serves as a much-needed wake-up call to better understand and address a progressive and deadly affliction. When Meryl Comer’s husband Harvey Gralnick was diagnosed with early onset Alzheimer’s disease in 1996, she watched as the man who headed hematology and oncology research at the National Institutes of Health started to misplace important documents and forget clinical details that had once been cataloged encyclopedically in his mind. With harrowing honesty, she brings readers face to face with this devastating condition and its effects on its victims and those who care for them. Detailing the daily realities and overwhelming responsibilities of caregiving, Comer sheds intensive light on this national health crisis, using her personal experiences—the mistakes and the breakthroughs—to put a face to a misunderstood disease, while revealing the facts everyone needs to know. Pragmatic and relentless, Meryl has dedicated herself to fighting Alzheimer’s and raising public awareness. “Nothing I do is really about me; it’s all about making sure no one ends up like me,” she writes. Deeply personal and illuminating, Slow Dancing With a Stranger offers insight and guidance for navigating Alzheimer’s challenges. It is also an urgent call to action for intensive research and a warning that we must prepare for the future, instead of being controlled by a disease and a healthcare system unable to fight it.
Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Dancing with Dementia is a vivid account of her experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband Paul, she continues to lead an active life nevertheless, and explains how professionals and carers can help. This book is a thoughtful exploration of how dementia challenges our ideas of personal identity and of the process of self-discovery it can bring about.
"An excellent book…an emotional and ruminative anchor...She leaves her readers with hope.”-- San Francisco Chronicle One journalist's riveting and surprisingly hopeful in-the-trenches view of Alzheimer's Nearly five million people in the United States are living with Alzheimer's. Like many children of Alzheimer's sufferers, Lauren Kessler, an accomplished journalist, was devastated by the disease that seemed to erase her mother's identity even before claiming her life. But suppose people with Alzheimer's are not slates wiped blank. Suppose they experience friendship and loss, romance and jealousy, joy and sorrow? To better understand this debilitating condition, Kessler enlists as a bottom-of-the-rung caregiver at an Alzheimer's facility and learns lessons that challenge what we think we know about the disease. A compelling, clear-eyed, and emotionally resonant narrative, Finding Life in the Land of Alzheimer's offers a new optimistic look at what the disease can teach us and a much-needed tonic for those faced with providing care for someone they love. Previously published as Dancing With Rose.
Dancing with Memories is a children's picture book about living well with dementia. Lucy lives with dementia - she wishes she didn't, but she does. S She is full of life and determination and although less competent than before, Lucy but can still do a lot. "My brain has changed", she says, "but I am still Lucy." Lucy knows her brain doesn't work like it used to, but doesn't always understand the implications. This leads to adventures and challenges. One adventure happens the day of her granddaughter's wedding. Lucy is to be picked up for the wedding by her daughter but decides to make her own way on the bus. Lucy becomes lost and confused on her way to the wedding. She is in danger of missing the wedding altogether! After a frustrating few hours, she finds her way home through the kindness and attentiveness of people in her community, including ten-year-old Reuben and his kelpie, Rejy. Lucy does make it to her granddaughter's wedding. Dancing with Memories focuses on wellbeing rather than deficit. It re-envisions what's possible by enjoying people living with dementia, more than fixating on what is lost. It is generative, not despairing; it informs and empowers. It centres on a community aware of the respectful support people living with dementia need and deserve - a dementia-friendly community, where people take time to notice, listen and act. Supported by Professor Ralph Martins' Q&A and Maggie Beer's healthy lunchboxes, Dancing with Memories provides a platform to raise awareness, alleviate fears and facilitate conversation with children around brain health. It highlights the importance of a life-long healthy diet and lifestyle, and empowers children to engage with hope and intent in the growing social challenge of dementia.
Based on the popular blog of the same name, Dancing With Elephants includes insightful interviews with chronic disease experts Toni Bernhard, Lucy Kalanithi, and Patch Adams. Sawatsky's landmark book provides support that only a fellow traveler down this road can offer. If you like touching stories, mindful wisdom, and a touch of irreverent humor, then you'll love Sawatsky's life-changing book.
One journalist's surprisingly hopeful in-the-trenches look at Alzheimer's, the disease that claimed her mother's life. Like many loved ones of Alzheimer's sufferers, Lauren Kessler was devastated by the disease that seemed to turn her mother into another person before claiming her life altogether. To deal with the pain of her loss, and to better understand the confounding aspects of living with this disease, Kessler enlisted as a caregiver at a facility she calls Maplewood. Life inside the facility is exhausting and humbling, a microenvironment built upon the intense relationships between two groups of marginalized people: the victims of Alzheimer's and the underpaid, overworked employees who care for them. But what surprises Kessler more than the disability and backbreaking work is the grace, humor, and unexpected humanity that are alive and well at Maplewood.--From publisher description.
A guide to dealing with a diagnosis of Alezheimer's: coping with the diagnosis, managing symptoms, plannig for the future, keeping hope and humor, participating in research, and more.
"Working with Vanity Fair contributing editor Michael Shnayerson, B. and her husband Dan share B.'s unfolding story on dealing with early-onset Alzheimer's. Crafted in short chapters that interweave their narrative with ... advice, readers learn in small bites about dealing with Alzheimer's disease's day-to-day challenges, the family tensions, and ways of coping, as well as gain tips on diet and exercise from a lifestyle maven using her decades of expertise in a new and unexpected way"--
Dementia is a significant health issue facing our aging population. Although there is no known cure, there is increasing evidence that music is an effective treatment for various symptoms of dementia. Music therapy and musical activities can have widespread benefits for people with dementia and their caretakers, including triggering memories, enhancing relationships, reducing agitation, and improving mood. This book outlines the current research on music and dementia from internationally renowned music therapists, music psychologists, and clinical neuropsychologists.