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"When sociologist Georgiann Davis was a teenager, her doctors discovered that she possessed XY chromosomes, marking her as intersex. Rather than share this information with her, they withheld the diagnosis in order to "protect" the development of her gender identity; it was years before Davis would see her own medical records as an adult and learn the truth. Davis' experience is not unusual. Many intersex people feel isolated from one another and violated by medical practices that support conventional notions of the male/female sex binary which have historically led to secrecy and shame about being intersex. Yet, the rise of intersex activism and visibility in the US has called into question the practice of classifying intersex as an abnormality, rather than as a mere biological variation. This shift in thinking has the potential to transform entrenched intersex medical treatment. In Contesting Intersex, Davis draws on interviews with intersex people, their parents, and medical experts to explore the oft-questioned views on intersex in medical and activist communities, as well as the evolution of thought in regards to intersex visibility and transparency. She finds that framing intersex as an abnormality is harmful and can alter the course of one's life. In fact, controversy over this framing continues, as intersex has been renamed a 'disorder of sex development' throughout medicine. This happened, she suggests, as a means for doctors to reassert their authority over the intersex body in the face of increasing intersex activism in the 1990s and feminist critiques of intersex medical treatment. Davis argues the renaming of 'intersex' as a 'disorder of sex development' is strong evidence that the intersex diagnosis is dubious. Within the intersex community, though, disorder of sex development terminology is hotly disputed; some prefer not to use a term which pathologizes their bodies, while others prefer to think of intersex in scientific terms. Although terminology is currently a source of tension within the movement, Davis hopes intersex activists and their allies can come together to improve the lives of intersex people, their families, and future generations. However, for this to happen, the intersex diagnosis, as well as sex, gender, and sexuality, needs to be understood as socially constructed phenomena." -- Publisher's description
Winner, 2017 Sex and Gender Distinguished Book Award, presented by the American Sociological Association Winner, 2016 Donald Light Award for the Applied or Public Practice of Medical Sociology, presented by the American Sociological Association A personal, compelling perspective on how medical diagnoses can profoundly hurt, or help, the lived experiences of entire communities When sociologist Georgiann Davis was a teenager, her doctors discovered that she possessed XY chromosomes, marking her as intersex. Rather than share this information with her, they withheld the diagnosis in order to “protect” the development of her gender identity; it was years before Davis would see her own medical records as an adult and learn the truth. Davis’ experience is not unusual. Many intersex people feel isolated from one another and violated by medical practices that support conventional notions of the male/female sex binary which have historically led to secrecy and shame about being intersex. Yet, the rise of intersex activism and visibility in the US has called into question the practice of classifying intersex as an abnormality, rather than as a mere biological variation. This shift in thinking has the potential to transform entrenched intersex medical treatment. In Contesting Intersex, Davis draws on interviews with intersex people, their parents, and medical experts to explore the oft-questioned views on intersex in medical and activist communities, as well as the evolution of thought in regards to intersex visibility and transparency. She finds that framing intersex as an abnormality is harmful and can alter the course of one’s life. In fact, controversy over this framing continues, as intersex has been renamed a ‘disorder of sex development’ throughout medicine. This happened, she suggests, as a means for doctors to reassert their authority over the intersex body in the face of increasing intersex activism in the 1990s and feminist critiques of intersex medical treatment. Davis argues the renaming of ‘intersex’ as a ‘disorder of sex development’ is strong evidence that the intersex diagnosis is dubious. Within the intersex community, though, disorder of sex development terminology is hotly disputed; some prefer not to use a term which pathologizes their bodies, while others prefer to think of intersex in scientific terms. Although terminology is currently a source of tension within the movement, Davis hopes intersex activists and their allies can come together to improve the lives of intersex people, their families, and future generations. However, for this to happen, the intersex diagnosis, as well as sex, gender, and sexuality, needs to be understood as socially constructed phenomena. A personal journey into medical and social activism, Contesting Intersex presents a unique perspective on how medical diagnoses can affect lives profoundly. Ask us about setting up a Skype-in with the author for your class Watch Georgiann Davis in National Geographic's Gender Revolution documentary with Katie Couric
Drawing on interviews with intersex people, their parents and medical experts the author describes views on intersex in medical and activist communities, and the evolution of thought in regard to intersex visibility and transparency. She explores the terminology and argues that the renaming of 'intersex' as a 'disorder of sex development' is strong evidence that the intersex diagnosis is dubious.
In-depth interviews examine the role of the law in the lives of LGBT parents The decision to have a child is seldom a simple one, often fraught with complexities regarding emotional readiness, finances, marital status, and compatibility with life and career goals. Rarely, though, do individuals consider the role of the law in facilitating or inhibiting their ability to have a child or to parent. For LGBT individuals, however, parenting is saturated with legality - including the initial decision of whether to have a child, how to have a child, whether one's relationship with their child will be recognized, and everyday acts of parenting. Through interviews with 137 LGBT parents, Amanda K. Baumle and D'Lane R. Compton examine the role of the law in the lives of LGBT parents and how individuals use the law when making decisions about family formation or parenting. Baumle and Compton explore the ways in which LGBT parents participate in the process of constructing legality through accepting, modifying, or rejecting legal meanings about their families. They conclude that legality is constructed through a complex interplay of legal context, social networks, individual characteristics, and familial desires. Ultimately, the stories of LGBT parents in this book reflect a rich and varied relationship between the law, the state, and the private family goals of individuals.
A philosopher offers a framework for the treatment of intersex children, and a moral argument for responsibility to them and their families. Putting the ethical tools of philosophy to work, Ellen K. Feder seeks to clarify how we should understand “the problem” of intersex. Adults often report that medical interventions they underwent as children to “correct” atypical sex anatomies caused them physical and psychological harm. Proposing a philosophical framework for the treatment of children with intersex conditions—one that acknowledges the intertwined identities of parents, children, and their doctors—Feder presents a persuasive moral argument for collective responsibility to these children and their families. “In a voice both urgent and nuanced, Feder squarely faces the complexities that accompany the care of people with atypical sex anatomies in medical science. . . . Rich with cross-discipline potential, Feder’s engaging argument should provide a new approach for doctors and parents caring for children with atypical sex anatomy.” —Publishers Weekly, starred review “Feder’s book is a welcome injection of new ideas into feminist scholarship on intersex, post-Consensus Statement era.” —Women’s Review of Books “Is a work of philosophy capable of bringing insightful new perspectives or illuminating and forceful arguments to an urgent social matter so as truly to effect a felt change in the lives of people concerned by it? Feder’s book is capable of this effect. As such, it takes the risk of calling forth a new public, or a new readership, and so is a work whose appeal could well be ahead of its time. But its time should be here.” —International Journal of Feminist Approaches to Bioethics “Making Sense of Intersex significantly enhances our understanding of intersex and the ethical issues involved in medical practice more generally.” —Kennedy Institute of Ethics Journal
From one of the world's foremost intersex activists, a candid, provocative, and eye-opening memoir of gender identity, self-acceptance, and love. My name is Hida Viloria. I was raised as a girl but discovered at a young age that my body looked different. Having endured an often turbulent home life as a kid, there were many times when I felt scared and alone, especially given my attraction to girls. But unlike most people in the first world who are born intersex--meaning they have genitals, reproductive organs, hormones, and/or chromosomal patterns that do not fit standard definitions of male or female--I grew up in the body I was born with because my parents did not have my sex characteristics surgically altered at birth. It wasn't until I was twenty-six and encountered the term intersex in a San Francisco newspaper that I finally had a name for my difference. That's when I began to explore what it means to live in the space between genders--to be both and neither. I tried living as a feminine woman, an androgynous person, and even for a brief period of time as a man. Good friends would not recognize me, and gay men would hit on me. My gender fluidity was exciting, and in many ways freeing--but it could also be isolating. I had to know if there were other intersex people like me, but when I finally found an intersex community to connect with I was shocked, and then deeply upset, to learn that most of the people I met had been scarred, both physically and psychologically, by infant surgeries and hormone treatments meant to "correct" their bodies. Realizing that the invisibility of intersex people in society facilitated these practices, I made it my mission to bring an end to it--and became one of the first people to voluntarily come out as intersex at a national and then international level. Born Both is the story of my lifelong journey toward finding love and embracing my authentic identity in a world that insists on categorizing people into either/or, and of my decades-long fight for human rights and equality for intersex people everywhere.
Examines how intersexed individuals negotiate identity in a dual gendered culture.
Merging critical theory, autobiography, and sexological archival research, Hil Malatino explores how and why intersexuality became an anomalous embodiment requiring correction and how contesting this pathologization can promote medical reform and human rights for intersex and trans people.
AMERICAN LIBRARY ASSOCIATION 2019 STONEWALL HONOR BOOK When their daughter Rosie was born, Eric and Stephani Lohman found themselves thrust into a situation they were not prepared for. Born intersex - a term that describes people who are born with a variety of physical characteristics that do not fit neatly into traditional conceptions about male and female bodies - Rosie's parents were pressured to consent to normalizing surgery on Rosie, without being offered any alternatives despite their concerns. Part memoir, part guidebook, this powerful book tells the authors' experience of refusing to have Rosie operated on and how they raised a child who is intersex. The book looks at how they spoke about the condition to friends and family, to Rosie's teachers and caregivers, and shows how they plan on explaining it to Rosie when she is older. This uplifting and empowering story is a must read for all parents of intersex children.
**Finalist, PROSE Award in Clinical Medicine** A rich examination of the history of trans medicine and current day practice Surfacing in the mid-twentieth century, yet shrouded in social stigma, transgender medicine is now a rapidly growing medical field. In Trans Medicine, stef shuster makes an important intervention in how we understand the development of this field and how it is being used to “treat” gender identity today. Drawing on interviews with medical providers as well as ethnographic and archival research, shuster examines how health professionals approach patients who seek gender-affirming care. From genital reconstructions to hormone injections, the practice of trans medicine charts new medical ground, compelling medical professionals to plan treatments without widescale clinical trials to back them up. Relying on cultural norms and gut instincts to inform their treatment plans, shuster shows how medical providers’ lack of clinical experience and scientific research undermines their ability to interact with patients, craft treatment plans, and make medical decisions. This situation defies how providers are trained to work with patients and creates uncertainty. As providers navigate the developing knowledge surrounding the medical care of trans folk, Trans Medicine offers a rare opportunity to understand how providers make decisions while facing challenges to their expertise and, in the process, have acquired authority not only over clinical outcomes, but over gender itself.