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What makes a disease real? Why is it that patients with chronic fatigue syndrome or fibromyalgia are doubted when they say they are in pain, and cannot access the same benefits of patient-hood that others can? What defines the limits of our belief and, ultimately, compassion, when it comes to disease? These are the questions approached in this book, which draws upon patients’ experiences and situates them among a diverse set of literatures, from the history and philosophy of medicine to the sociology of health and disease. The question of a patient’s identity and their understanding of disease is often assumed to emerge from their relationship with healthcare, but the case is made here that other, inter-personal factors are more salient. What a patient with a contested illness comes up against is not simply a medical categorisation – it is a prevailing notion of disease across society, and one they struggle to assimilate themselves into. Contested Illness in Context will appeal to students and researchers interested in fields such as the history and philosophy of medicine, the sociology of health and illness, medical anthropology, or disease and illness generally. It may also interest patients and doctors who struggle with difficult medical cases.
The politics and science of health and disease remain contested terrain among scientists, health practitioners, policy makers, industry, communities, and the public. Stakeholders in disputes about illnesses or conditions disagree over their fundamental causes as well as how they should be treated and prevented. This thought-provoking book crosses disciplinary boundaries by engaging with both public health policy and social science, asserting that science, activism, and policy are not separate issues and showing how the contribution of environmental factors in disease is often overlooked.
While many doctors claim that Lyme disease—a tick-borne bacterial infection—is easily diagnosed and treated, other doctors and the patients they care for argue that it can persist beyond standard antibiotic treatment in the form of chronic Lyme disease. In Divided Bodies, Abigail A. Dumes offers an ethnographic exploration of the Lyme disease controversy that sheds light on the relationship between contested illness and evidence-based medicine in the United States. Drawing on fieldwork among Lyme patients, doctors, and scientists, Dumes formulates the notion of divided bodies: she argues that contested illnesses are disorders characterized by the division of bodies of thought in which the patient's experience is often in conflict with how it is perceived. Dumes also shows how evidence-based medicine has paradoxically amplified differences in practice and opinion by providing a platform of legitimacy on which interested parties—patients, doctors, scientists, politicians—can make claims to medical truth.
What makes a disease real? Why is it that patients with chronic fatigue syndrome or fibromyalgia are doubted when they say they are in pain, and cannot access the same benefits of patient-hood that others can? What defines the limits of our belief and, ultimately, compassion, when it comes to disease? These are the questions approached in this book, which draws upon patients' experiences and situates them among a diverse set of literatures, from the history and philosophy of medicine to the sociology of health and disease. The question of a patient's identity and their understanding of disease is often assumed to emerge from their relationship with healthcare, but the case is made here that other, inter-personal factors are more salient. What a patient with a contested illness comes up against is not simply a medical categorisation - it is a prevailing notion of disease across society, and one they struggle to assimilate themselves into. Contested Illness in Context will appeal to students and researchers interested in fields such as the history and philosophy of medicine, the sociology of health and illness, medical anthropology, or disease and illness generally. It may also interest patients and doctors who struggle with difficult medical cases.
Offers an introduction to the sociology of diagnosis. This title presents articles that explore diagnosis as a process of definition that includes: labeling dynamics between diagnoser and diagnosed; boundary struggles between diverse constituents - both among medical practitioners and between medical authorities and others; and, more.
The role of public health services in America is generally considered to be the reduction of illness, suffering, and death. But what exactly does this mean in practice? At different points in history, professionals in the field have addressed housing reform, education about sex and illegal drugs, hospital and clinic care, gun violence, and even bioterrorism. But there is no agreement about how far public health efforts should go in attempting to modify behaviors seen as lifestyle choices, or whether the field's mandate extends to intervening in broader social and economic conditions. The authors of the thirteen essays in this book attempt to understand what are, and what should be, the field's chief goals and activities. Drawing on examples that include September 11th, Hurricane Katrina, the anthrax scare, and more, contributors examine the historical evolution of the profession and show how public health is changing in the context of natural and human-made disasters and the politics that surround them.
The latest version of an important academic resource published about once a decade since 1963
This much-needed collection of original articles invites the reader to examine the key issues in the lives of women with chronic illnesses. The authors explore how society reacts to women with chronic illness and how women living with chronic illness cope with the uncertainty of their bodies in a society that desires certainty. Additionally, issues surrounding women with chronic illness in the workplace and the impact of chronic illness on women's relationships are sensitively considered.
This is the definitive textbook on global mental health, an emerging priority discipline within global health, which places priority on improving mental health and achieving equity in mental health for all people worldwide.
Stories accompany us through life from birth to death. But they do not merely entertain, inform, or distress us—they show us what counts as right or wrong and teach us who we are and who we can imagine being. Stories connect people, but they can also disconnect, creating boundaries between people and justifying violence. In Letting Stories Breathe, Arthur W. Frank grapples with this fundamental aspect of our lives, offering both a theory of how stories shape us and a useful method for analyzing them. Along the way he also tells stories: from folktales to research interviews to remembrances. Frank’s unique approach uses literary concepts to ask social scientific questions: how do stories make life good and when do they endanger it? Going beyond theory, he presents a thorough introduction to dialogical narrative analysis, analyzing modes of interpretation, providing specific questions to start analysis, and describing different forms analysis can take. Building on his renowned work exploring the relationship between narrative and illness, Letting Stories Breathe expands Frank’s horizons further, offering a compelling perspective on how stories affect human lives.