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This publication, initiated by the Korean Society of Medical Informatics (KOSMI) and its Nursing Informatics Specialist Group, and the Special Interest Group in Nursing Informatics of the International Medical Informatics Association (IMIA-NI), is published for nurses and informatics experts working with informatics applications in nursing care, administration, research and education, bringing together the worlds of nursing informatics community. Korea is well known for having the highest level of Information and Communication Technology (ICT) accessibility in the world. Advances in ICT in Korea have lead Korean health care sectors to fully utilize the benefit of ICT for health care. The theme of the book, ‘Consumer-Centered Computer-Supported Care for Healthy People’, emphasizes the central role of the consumer and the function of information technology in health care. It reflects the major challenge in our time, which is developing and using information technology for the improvement of consumer oriented health care. "I would seriously recommend that this book – in text form – should be available in all nursing libraries as a resource for study and reference in the expanding area of nursing and health care.”--Paula M. Procter, Reader in Informatics and Telematics in Nursing, The University of Sheffield, United Kingdom.
Intended for nurses and informatics experts working with informatics applications in nursing care, administration, research and education. This book's theme - 'Consumer-Centered Computer-Supported Care for Healthy People' - emphasizes the central role of the consumer and the function of information technology in health care.
This unique collection synthesizes insights and evidence from innovators in consumer informatics and highlights the technical, behavioral, social, and policy issues driving digital health today and in the foreseeable future. Consumer Informatics and Digital Health presents the fundamentals of mobile health, reviews the evidence for consumer technology as a driver of health behavior change, and examines user experience and real-world technology design challenges and successes. Additionally, it identifies key considerations for successfully engaging consumers in their own care, considers the ethics of using personal health information in research, and outlines implications for health system redesign. The editors’ integrative systems approach heralds a future of technological advances tempered by best practices drawn from today’s critical policy goals of patient engagement, community health promotion, and health equity. Here’s the inside view of consumer health informatics and key digital fields that students and professionals will find inspiring, informative, and thought-provoking. Included among the topics: • Healthcare social media for consumer informatics • Understanding usability, accessibility, and human-centered design principles • Understanding the fundamentals of design for motivation and behavior change • Digital tools for parents: innovations in pediatric urgent care • Behavioral medicine and informatics in the cancer community • Content strategy: writing for health consumers on the web • Open science and the future of data analytics • Digital approaches to engage consumers in value-based purchasing Consumer Informatics and Digital Health takes an expansive view of the fields influencing consumer informatics and offers practical case-based guidance for a broad range of audiences, including students, educators, researchers, journalists, and policymakers interested in biomedical informatics, mobile health, information science, and population health. It has as much to offer readers in clinical fields such as medicine, nursing, and psychology as it does to those engaged in digital pursuits.
This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
"An engaging introduction to an exciting multidisciplinary field where positive impact depends less on technology than on understanding and responding to human motivations, specific information needs, and life constraints." -- Betsy L. Humphreys, former Deputy Director, National Library of Medicine This is a book for people who want to design or promote information technology that helps people be more active and informed participants in their healthcare. Topics include patient portals, wearable devices, apps, websites, smart homes, and online communities focused on health. Consumer Healthcare Informatics: Enabling Digital Health for Everyone educates readers in the core concepts of consumer health informatics: participatory healthcare; health and e-health literacy; user-centered design; information retrieval and trusted information resources; and the ethical dimensions of health information and communication technologies. It presents the current state of knowledge and recent developments in the field of consumer health informatics. The discussions address tailoring information to key user groups, including patients, consumers, caregivers, parents, children and young adults, and older adults. For example, apps are considered as not just a rich consumer technology with the promise of empowered personal data management and connectedness to community and healthcare providers, but also a domain rife with concerns for effectiveness, privacy, and security, requiring both designer and user to engage in critical thinking around their choices. This book’s unique contribution to the field is its focus on the consumer and patient in the context of their everyday life outside the clinical setting. Discussion of tools and technologies is grounded in this perspective and in a context of real-world use and its implications for design. There is an emphasis on empowerment through participatory and people-centered care.
This comprehensive volume explores the evolving fields of consumer informatics and telemedicine as envisioned by the Institute of Medicine in its landmark reports on the electronic medical record, patient safety, and quality care. Each chapter describes the role of computers, technology, and telecommunications as enablers within a specific application focused on the needs of consumers. The applications covered are ones which empower consumers as they seek information, analyze their health care needs, and make decisions about their own health care. Such applications empower professionals in their efforts to serve patients, while increasing the knowledge of the consumer. Richly illustrated with detailed examples, this volume speaks to a wide range of audiences as it addresses issues raised by consumer informatics, the use of technology, research and development effects, and telemedicine. Chapter highlights include: Patient-Centered Communication; Using the Internet Toward Reliable Consumer Health Information; Disease Management and Home Telehealth; and Biothreats and Disaster Management. The book's audience includes all healthcare professionals, healthcare administrators, IT professionals, health informaticians, and students.
Pervasive healthcare is an emerging research discipline, focusing on the development and application of pervasive and ubiquitous computing technology for healthcare and wellness. Pervasive healthcare seeks to respond to a variety of pressures on healthcare systems, including the increased incidence of life-style related and chronic diseases, emerging consumerism in healthcare, need for empowering patients and relatives for self-care and management of their health, and need to provide seamless access for healthcare services, independent of time and place. Pervasive healthcare may be defined from two perspectives. First, it is the development and application of pervasive computing (or ubiquitous computing, ambient intelligence) technologies for healthcare, health and wellness management. Second, it seeks to make healthcare available to anyone, anytime, and anywhere by removing locational, time and other restraints while increasing both the coverage and quality of healthcare. This book proposes to define the emerging area of pervasive health and introduce key management principles, most especially knowledge management, its tools, techniques and technologies. In addition, the book takes a socio-technical, patient-centric approach which serves to emphasize the importance of a key triumvirate in healthcare management namely, the focus on people, process and technology. Last but not least the book discusses in detail a specific example of pervasive health, namely the potential use of a wireless technology solution in the monitoring of diabetic patients.
This new title provides a strong state-of-the-art assessment for cancer nursing research. Oncology nurses and other healthcare professionals will also be able to utilize this text as a foundation for developing future research directions and to break down the science for dissemination and use in everyday practice. Advancing Oncology Nursing Sciencealso makes a significant contribution to the evidence-based-practice (EBP) agenda, synthesizng information on bodies of substantiated science that can be translated into clinical practice and health policy. Sections include foundations and priorities of oncology nursing science; advancing oncology nursing science; leading causes of cancer; current and emerging issues in oncology research; and research training and education. Also included is a section detailing selected resources for advancing oncology nursing science. From practitioners to nurse investigators, from faculty to graduate students, all manner of health professionals will want to add this title to their nursing library.