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Members of communities of color in the United States often struggle for equity, autonomy, survival, and justice. Community-Based Participatory Research is an edited volume from activist-scholars who present personal testimonies showcasing how community-based participatory research (CBPR) can lead to sustainable change and empowerment. Editor Natalia Deeb-Sossa has chosen contributors whose diverse interdisciplinary projects are grounded in politically engaged research in Chicanx and Latinx communities. The scholars’ advocacy work is a core component of the research design of their studies, challenging the idea that research needs to be neutral or unbiased. The testimonies tell of projects that stem from community demands for truly collaborative research addressing locally identified issues and promoting community social change. Contributors share their personal experiences in conducting CBPR, focusing on the complexities of implementing this method and how it may create sustainable change and community empowerment. Along with a retrospective analysis of how CBPR has been at the center of the Chicana/o Movement and Chicana/o studies, the book includes a discussion of consejos y advertencias (advice and warnings). The most knowledgeable people on community issues are the very members of the communities themselves. Recognizing a need to identify the experiences and voices (testimonios) of communities of color, activist-scholars showcase how to incorporate the perspectives of the true experts: the poor, women, farmworkers, students, activists, elders, and immigrants.
In this monograph, the ethical implications of engaging in research with vulnerable populations is explored and demonstrates how Community Based Participatory Research (CBPR) both enhances the research while addressing these ethical complexities. Although CBPR encompasses different levels of community engagement, in general, the participants, or co-researchers, are involved in the formulation of the research questions and methodologies because they are central to the conversation about what should be researched and how. Participants are directly involved in formulating the study problems and finding solutions, and usually the goal is to create social change that can be applied to and potentially transform the community. Learning with Women in Jail: Creating Community Based Participatory Research documents the research process to better understand the causes for incarceration and recidivism.The study used a (CBPR) framework so that the people who had directly experienced incarceration would lead the research as much as possible, from framing the research questions and methodologies to data capture and analysis. ​
Literary Nonfiction. ARRESTING HOPE reminds us that prisons are not only places of punishment, marginalization, and trauma, but that they can also be places of hope, blessing even, where people with difficult lived experiences can begin to compose stories full of healing, anticipation, communication, education, connection, and community. The book tells a story about women in a provincial prison in Canada, about how creative leadership fostered opportunities for transformation and hope, and about how engaging in research and writing contributed to healing. The book includes poetry, stories, letters, interviews, fragments of conversations, reflections, memories, quotations, journal entries, creative nonfiction, and scholarly research. Out of multiple and diverse possibilities involving many people, ARRESTING HOPE is focused on five women--a prison doctor, a prison warden, a prison recreation therapist, a prison educator, and a prison inmate--and their stories of grief, desire, and hope.
Written by distinguished experts in the field, this book shows how researchers, practitioners, and community partners can work together to establish and maintain equitable partnerships using a Community-Based Participatory Research (CBPR) approach to increase knowledge and improve health and well-being of the communities involved. CBPR is a collaborative approach to research that draws on the full range of research designs, including case study, etiologic, longitudinal, experimental, and nonexperimental designs. CBPR data collection and analysis methods involve both quantitative and qualitative approaches. What distinguishes CBPR from other approaches to research is the active engagement of all partners in the process. This book provides a comprehensive and thorough presentation of CBPR study designs, specific data collection and analysis methods, and innovative partnership structures and process methods. This book informs students, practitioners, researchers, and community members about methods and applications needed to conduct CBPR in the widest range of research areas—including social determinants of health, health disparities, health promotion, community interventions, disease management, health services, and environmental health.
The second edition of this handbook examines family life, health, and educational issues that often arise for the millions of children in the United States whose parents are in prison or jail. It details how these youth are more likely to exhibit behavior problems such as aggression, substance abuse, learning difficulties, mental health concerns, and physical health issues. It also examines resilience and how children and families thrive even in the face of multiple challenges related to parental incarceration. Chapters integrate diverse; interdisciplinary; and rapidly expanding literature and synthesizes rigorous scholarship to address the needs of children from multiple perspectives, including child welfare; education; health care; mental health; law enforcement; corrections; and law. The handbook concludes with a chapter that explores new directions in research, policy, and practice to improve the life chances of children with incarcerated parents. Topics featured in this handbook include: Findings from the Fragile Families and Child Wellbeing Study. How parental incarceration contributes to racial and ethnic disparities and inequality. Parent-child visits when parents are incarcerated in prison or jail. Approaches to empowering incarcerated parents of color and their families. International advances for incarcerated parents and their children. The second edition of the Handbook on Children with Incarcerated Parents is an essential reference for researchers, professors, clinicians/practitioners, and graduate students across developmental psychology, criminology, sociology, law, psychiatry, social work, public health, human development, and family studies. “This important new volume provides a cutting-edge update of research on the impact of incarceration on family life. The book will be an essential reference for researchers and practitioners working at the intersections of criminal justice, poverty, and child development.” Bruce Western, Ph.D., Columbia University “The comprehensive, interdisciplinary focus of this handbook brilliantly showcases the latest research, interventions, programs, and policies relevant to the well-being of children with incarcerated parents. This edition is a ‘must-read’ for students, researchers, practitioners, and policy-makers alike who are dedicated to promoting the health and resilience of children affected by parental incarceration.” Leslie Leve, Ph.D., University of Oregon
Women’s Ways of Making draws attention to material practices—those that the hands perform—as three epistemologies—an episteme, a techne, and a phronesis—that together give pointed consideration to making as a rhetorical embodied endeavor. Combined, these epistemologies show that making is a form of knowing that (episteme), knowing how (techne), and wisdom-making (phronesis). Since the Enlightenment, embodied knowledge creation has been overlooked, ignored, or disparaged as inferior to other forms of expression or thinking that seem to leave the material world behind. Privileging the hand over the eye, as the work in this collection does, thus problematizes the way in which the eye has been co-opted by thinkers as the mind’s tool of investigation. Contributors to this volume argue that other senses—touch, taste, smell, hearing—are keys to knowing one’s materials. Only when all these ways of knowing are engaged can making be understood as a rhetorical practice. In Women’s Ways of Making contributors explore ideas of making that run the gamut from videos produced by beauty vloggers to zine production and art programs at women’s correctional facilities. Bringing together senior scholars, new voices, and a fresh take on material rhetoric, this book will be of interest to a broad range of readers in composition and rhetoric. Contributors: Angela Clark-Oates, Jane L. Donawerth, Amanda Ellis, Theresa M. Evans, Holly Fulton-Babicke, Bre Garrett, Melissa Greene, Magdelyn Hammong Helwig, Linda Hanson, Jackie Hoermann, Christine Martorana, Aurora Matzke, Jill McCracken, Karen S. Neubauer, Daneryl Nier-Weber, Sherry Rankins-Roberson, Kathleen J. Ryan, Rachael Ryerson, Andrea Severson, Lorin Shellenberger, Carey Smitherman-Clark, Emily Standridge, Charlese Trower, Christy I. Wenger, Hui Wu, Kathleen Blake Yancey
The definitive guide to CBPR concepts and practice, updated and expanded Community-Based Participatory Research for Health: Advancing Health and Social Equity provides a comprehensive reference for this rapidly growing field in participatory and community-engaged research. Hailed as effective by the Centers for Disease Control and Prevention, CBPR and CEnR represent the link between researchers and community and lead to improved public health outcomes. This book provides practitioner-focused guidance on CBPR and CEnR to help public health professionals, students, and practitioners from multiple other clinical, planning, education, social work, and social science fields to successfully work towards social and health equity. With a majority of new chapters, the book provides a thorough overview of CBPR history, theories of action and participatory research, emerging trends of knowledge democracy, and promising practices. Drawn from a ten-year research effort, this new material is organized around the CBPR Conceptual Model, illustrating the importance of social context, promising partnering practices, and the added value of community and other stakeholder engagement for intervention development and research design. Partnership evaluation, measures, and outcomes are highlighted, with a revised section on policy outcomes, including global health case studies. For the first time, this updated edition also includes access to the companion website, featuring lecture slides of conceptual and partnership evaluation-focused chapters, with resources from appendices to help bring CBPR concepts and practices directly into the classroom. Proven effective year after year, CBPR has become a critically important framework for public health, and this book provides clear reference for all aspects of the practice. Readers will: Examine the latest research on CPBR, and incorporate new insights into practice Understand the history and theoretical basis of CPBR, and why it has been so effective Reflect on critical issues of racism, power, and privilege; trust development; ethical practice within and beyond IRBs; and cultural humility Learn new partnership evaluation and collective reflection strategies, including measures and metrics, to enhance their own practice for improved health and social equity outcomes
This guide to the essentials of doing participatory methods in a broad range of health contexts covers all of the stages of the research process, from research design right through to dissemination. With chapters from international contributors, each with many years’ experience using participatory qualitative approaches, it provides guidance on. - Ethical issues in Participatory Research - Designing and conduction Participatory Research projects - Data management and analysis - Researching with different populations - New technologies Packed full of up to date and engaging case studies, Participatory Qualitative Research Methodologies in Health offers a wide range of perspectives and voices on the practicalities and theoretical issues involved in conducting participatory research today. It is the ideal resource for students and researchers embarking upon a participatory research project.