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Participatory Research in Palliative Care discusses participatory research methods within the discipline of palliative care. Providing an overview of the action research methods, it uses exemplars from studies within palliative care, as well as discusses the prominent issues currently faced in this methodology from a global perspective.
Collaborative Practice in Palliative Care explores how different professions work collaboratively across professional, institutional, social, and cultural boundaries to enhance palliative care. Analysing palliative care as an interaction between different professionals, clients, and carers, and the social context or community within which the interaction takes place, it is grounded in up-to-date evidence, includes global aspects of palliative care and cultural diversity as themes running throughout the book, and is replete with examples of good and innovative practice. Drawing on experiences from within traditional specialist palliative care settings like hospices and community palliative care services, as well as more generalist contexts of the general hospital and primary care, this practical text highlights the social or public health model of palliative care. Designed to support active learning, it includes features such as case studies, summaries, and pointers to other learning resources. This text is an important reference for all professionals engaged in palliative care, particularly those studying for post-qualification programmes in the area.
Each chapter of Intentionally Interprofessional Palliative Care is written and edited by a chaplain, nurse, physician, social worker, or other professional. Chapter authors representing diversity in professional perspective, region, practice environment, and personal characteristics, many of whom did not know each other prior to consenting to write a chapter together, demonstrate the synergistic value of the interprofessional perspective. Readers will learn about primary and specialty palliative care practice while appreciating the alchemy that occurs when multiple professions contribute their expertise.
The first book of its kind to examine the integration of palliative interventions from a disease-specific approach.
This book introduces readers to the collaborative processes of a grassroots consortium of 50 public and private health care organizations whose mission is to provide palliative care education to the larger community. It was originally published as a special issue of the Journal of Social Work in End-of-Life and Palliative Care.
Evidence-Based Practice of Palliative Medicine is the only book that uses a practical, question-and-answer approach to address evidence-based decision making in palliative medicine. Dr. Nathan E. Goldstein and Dr. R. Sean Morrison equip you to evaluate the available evidence alongside of current practice guidelines, so you can provide optimal care for patients and families who are dealing with serious illness. Confidently navigate clinical challenges with chapters that explore interventions, assessment techniques, treatment modalities, recommendations / guidelines, and available resources - all with a focus on patient and family-centered care. Build a context for best practices from high-quality evidence gathered by multiple leading authorities. Make informed decisions efficiently with treatment algorithms included throughout the book. Access the complete, fully searchable contents online at www.expertconsult.com.
Palliative care is the physical, social, emotional, and spiritual care of people with a life-limiting illness (Palliative Care Subcommittee, 2007). As a health care service, palliative care advocates for a holistic multidisciplinary approach. While service delivery is certainly multidisciplinary, whether health professionals working in New Zealand palliative care services practice collaboratively, and in what form that collaboration takes, is unknown. Collaborative practice can be difficult to achieve, as traditionally trained health professionals are more accustomed to working alongside each other, rather than together (Herbert, 2005; Herbert et al., 2007). Gaining further knowledge about what is occurring in practice is important when, driven by international workforce shortages and an increasing complexity of health care, the World Health Organisation (WHO) (WHO & Health Professions Network Nursing and Midwifery Office: Department of Human Resources for Health, 2010) has called for interprofessional education and collaborative practice across all areas of health care.Glaserian grounded theory methodology has been used to examine the area of interest which is, ‘What is the main concern of health professionals working collaboratively in palliative care (with colleagues and patients) and how do they manage that?’ A total of 25 interviews were undertaken with 23 participants, across professional disciplines, working in palliative care services within the North Island of New Zealand. Through an iterative process of constant comparative analysis and conceptualisation, using memoing, key concepts, and abstracting categories, a theory emerged. The theory of Sharing Time explained the social process of how health professionals working collaboratively in palliative care facilitated collaboration, while managing their main concern. Sharing Time is both an interactive participatory process and an outcome.The main concern of possessorship, is defined as having possession of a tangible commodity or having a need to have possession of an intangible commodity, that has the potential to impact patient care when not shared. Sharing Time occurs when health professionals purposefully make time, take time, find time, and spend time in their workday for and with each other, to share further, and facilitate collaboration. Sharing Time occurs through purposeful connecting and finding common ground. Integrated by reciprocity this theory is mutually beneficial to all involved as there is an exchange of a commodity, such as equipment or information, which improves patient care.This research also discovered that health professionals Sharing Time are facilitating collaboration by situating this strategy in a middle ground. Moving outside of this middle ground, where there is too much or too little Sharing Time, continues the main concern of possessorship rather than manages it, which adds barriers to collaboration. The theory of Sharing Time has potential value for all health professionals working in palliative care, as it facilitates collaboration and promotes further sharing. Collaboration and managing possessorship promotes a safer work environment.
"A member of the palliative care team meets Alicia for the first time. They meet in the infusion bay, where the thin curtains offer symbolic privacy. Alicia is in her early 60s, and had gone to the doctor with a persistent cough. Subsequent tests revealed metastatic lung cancer. She has just finished her first cycle of first line chemotherapy, which she tolerated well. A quick review of her chart reveals no obvious physical symptoms such as pain or shortness of breath. Her social history is notable for the recent death of her husband. She has one adult child, who lives nearby"--
Teamwork is a complex but essential component of palliative care. The needs of people suffering from a life-threatening illness are diverse, and it is rare for one professional alone to provide adequate care; the skills of others are needed to ensure a holistic approach. This book explores the different aspects of team working in palliative care.
A milestone resource for palliative care nurses that facilitates evidence-based compassionate and humanistic care of the dying "A valuable contribution to the evolving field of palliative nursing care. It is authored by a model for this field, Bonnie Freeman, and brings to the bedside what her practice embodies--evidence-based clinically expert care...The CARES tool is a long-needed resource and we are all grateful to the author for moving her passion to paper. It will touch the lives and deaths of patients, families, and the nurses who care for them." --Betty Ferrell, PhD, RN, MA, FAAN, FCPN, CHPN Professor and Director, Division of Nursing Research and Education City of Hope National Medical Center From the Foreword This groundbreaking reference for palliative care nurses is the first to provide realistic and achievable evidence-based methods for incorporating compassionate and humanistic care of the dying into current standards of practice. It builds on the author's research-based CARES tool; a reference that synthesizes five key elements demonstrated to enable a peaceful death, as free from suffering as possible: comfort, airway management, management of restlessness and delirium, emotional and spiritual support, and selfcare for nurses. The book describes, step by step, how nurses can easily implement the basic tenets of the CARES tool into their end-of-life practice. It provides a clearly defined plan that can be individualized for each patient and tailored to specific family needs, and facilitates caring for the dying in the most respectful and humane way possible. The book identifies the most common symptom management needs in dying patients and describes, in detail, the five components of the CARES paradigm and how to implement them to enable a peaceful death and minimize suffering. It includes palliative care prompts founded on 29 evidence-based recommendations and the National Consensus Project for Palliative Care Clinical Practice Guidelines. The resource also addresses the importance of the nurse to act as a patient advocate, how to achieve compassionate communication with the patient and family, and barriers and challenges to compassionate care. Case studies emphasize the importance of compassionate nursing care of the dying and how it can be effectively achieved. Key Features: Provides nurses with a clear understanding of the most common needs of the dying and supplies practical applications to facilitate and improve care Clarifies the current and often complex literature on care of the dying Includes case studies illustrating the most common needs of dying patients and how these are addressed effectively by the CARES tool Based on extensive evidence as well as on the National Consensus Project for Palliative Care Clinical Practice Guidelines