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This volume was first published by Inter-Disciplinary Press in 2013. Chronic illness, together with people experiencing or treating it, became almost mute to predominant biomedical narration pervasive in mainstream media, education, medical and pharmaceutical industry. Contributors in this book aim to represent, discuss, and preserve the vanishing voices and stories on chronic illness from dimensions beyond medicine so that we may make sense of chronicity with the diversity it deserves. The book also incorporates research articles which share important stories about chronicity. These stories, same as chronic illness in our world, should not be treated in a ‘standardised’ way. Each reader, we hope, will relate the meanings of chronicity in this book to his or her own world.
This volume was first published by Inter-Disciplinary Press in 2013. Chronicity is about people rather than medical conditions. It may best be understood as a complex phenomenon in which multiple elements interact with each other in unpredictable ways to bring about unanticipated changes. Making sense of chronicity, therefore, requires that we not only pay attention to all aspects of experiencing the condition, but also think about the relationships between them.
THE CHRONIC ILLNESS WORKBOOK brings clarity and order to what feels like an unmanageable and isolating experience. It shows both those who are ill and those who care for them how to live a full and meaningful life despite undeniable difficulties. Using her extensive experience with chronic illness patients, Patricia Fennell has created an original, comprehensive, research-validated approach that considers not only the physical aspects of chronic illness, but the psychological, social, and economic apsects as well.
This book offers a cross-cultural approach to cinematic representations of Alzheimer’s disease in non-mainstream cinema. Even though Alzheimer’s disease, the most common form of dementia, is a global health issue, it is not perceived or represented homogenously around the world. Contrary to very well-known mainstream films, the films discussed do not focus on the negative aspects normally associated with Alzheimer’s disease, but on the importance of portraying the perspective of the persons living with Alzheimer’s and their personhood. Similarly, this book analyses how the films use Alzheimer’s as a trope to address issues relating to different areas of life and society such as, for example, family matters, intergenerational relationships, gender issues, national traditions versus global modernity, and caring for people with dementia. By examining an array of films, from crime fiction to documentary, that each present non-stigmatising representations of Alzheimer’s disease, this in-depth study ultimately demonstrates the power of culture in shaping meaning.
"…excellent…" -- Choices - Choice on Dying Newsletter "Toombs, Barnard, and Carson have organized and edited a valuable series of papers that provide a rare perspective on the impact of chronic illness. Beginning with the person who is experiencing the chronic condition, they are able to weave an important blend of personal, social, and policy themes." -- Choice "This volume of collected essays is a solid contribution to the medical humanities literature on chronic illness... the contributors have produced a cohesive, systematic, and sensitive examination of issues in chronic illness and disability." -- Medical Humanities Review "Although it may seem to be intended largely for health care providers, this thought-provoking volume has much that will interest a wider lay audience." -- Medical and Health Annual An often moving exploration of the human, moral, and policy aspects of a health issue that affects each of us. Through first-person accounts and the perspectives of literature, medicine, philosophy, and religion, this book explores what it means to live with chronic illness and the implications of this experience for social policy, health care, bioethics, and the professions.
Before the birth of America, a new way of thinking was starting to gain momentum in the West. This new way of making sense of the world developed on the heels of the Scientific Revolution and marked the beginning of the Modern Era. As the United States matured into a nation, the ideals of modernity influenced nearly all aspects of life, including how we care for ourselves and others within the healthcare system. America grew into a superpower on the global stage but continues to struggle at home with the health of its people. Chronic diseases now affect over one-half of Americans and chronic stress is a factor in 85% of all diseases and illnesses. Chronically American takes a look at the American way of life and makes connections between how people live, and the effects that it has on chronic illness and well-being. It also proposes a way forward with a solution so radical that it has been hiding in plain sight all along and can set a course for personal and collective wholeness, peace, and well-being.
A sensitive, hopeful exploration of maximizing your quality of life while living with chronic illness.
Chronic Conditions, Fluid States explores the uneven impact of chronic illness and disability on individuals, families, and communities in diverse local and global settings. Breaking new ground in medical anthropology by challenging the chronic/acute divide in illness and disease, the editors, along with a group of rising scholars and some of the most influential minds in the field, address the concept of chronicity, an idea used to explain individual and local life-worlds, question public health discourse, and consider the relationship between health and the globalizing forces that shape it.
Health, illness and disease are topics well-suited to interdisciplinary inquiry. This book brings together scholars from around the world who share an interest in and a commitment to bridging the traditional boundaries of inquiry. We hope that this book begins new conversations that will situate health in broader socio-cultural contexts and establish connections between health, illness and disease and other socio-political issues. This book is the outcome of the first global conference on “Making Sense of: Health, Illness and Disease,” held at St Catherine's College, Oxford, in June 2002. The selected papers pursue a range of topics from the cultural significance of narratives of health, illness and disease to healing practices in contemporary society as well as patients’ illness experiences. Researchers and health care practitioners now live in the age of interdisciplinarity, which has transformed both health care delivery and research on health. The essays in this collection transcend the traditional boundaries of biomedicine and draw attention to the many ways in which health is embedded in socio-cultural norms and how these norms, in turn, shape health practices and health care. This volume is of interest not only to researchers but also to those delivering health care.