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In the twenty-first century there is increasing global recognition of pain relief as a basic human right. However, as Susan Honeyman argues in this new take on child pain and invisible disability, such a belief has historically been driven by adult, ideological needs, whereas the needs of children in pain have traditionally been marginalised or overlooked in comparison. Examining migraines in children and the socially disabling effects that chronic pain can have, this book uses medical, political and cultural discourse to convey a sense of invisible disability in children with migraine and its subsequent oppression within educational and medical policy. The book is supported by authentic migraineurs’ experiences and first-hand interviews as well as testimonials from a range of historical, literary, and medical sources never combined in a child-centred context before. Representations of child pain and lifespan migraine within literature, art and popular culture are also pulled together in order to provide an interdisciplinary guide to those wanting to understand migraine in children and the identity politics of disability more fully. Child Pain, Migraine, and Invisible Disability will appeal to scholars in childhood studies, children’s rights, literary and visual culture, disability studies and medical humanities. It will also be of interest to anyone who has suffered from migraines or has cared for children affected by chronic pain.
In Beyond Productivity, a wide range of contributors share honest narratives of the sometimes-impossible conditions that scholars face when completing writing projects. The essays provide backstage views of the authors' varying approaches to moving forward when the desire to produce wanes, when deciding a project is not working, when working within and around and redefining academic productivity expectations, and when writing with ever-changing bodies that do not always function as expected. This collection positions scholarly writers' ways of writing as a form of flexible, evolving knowledge. By exhibiting what is lost and gained through successive rounds of transformation and adaptation over time, the contributors offer a sustainable understanding and practice of process—one that looks beyond productivity as the primary measure of success. Each presents a fluid understanding of the writing process, illustrating its deeply personal nature and revealing how fragmented and disjointed methods and experiences can highlight what is precious about writing. Beyond Productivity determines anew the use and value of scholarly writing and the processes that produce it, both within and beyond the context of the losses, constraints, and adaptations associated with the COVID-19 pandemic.
This is the first book of its kind to feature interdisciplinary art history and disability studies. Moving away from the medical model of disability that is often scrutinized in art history, the book considers the social model and representations of disabled figures. Topics addressed include visible versus invisible impairments; scientific, anthropological, and vernacular images of disability; and the implications of looking/staring versus gazing. Disability and Art History explores ways in which art responds to, envisions, and at times stereotypes and pathologizes disability, and aims to contextualize disability historically, as well as in terms of medicine, literature, and visual culture.
This book is a case study which narrates the history of the National Organization of the Spanish Blind (ONCE), established in 1937 during the Spanish Civil War. Contrary to other affluent countries where most blind people live on welfare benefits, the Spanish blind enjoy full employment. Furthermore, the average income of the Spanish blind is higher than that of the sighted. Why is this so? Why the blind, and not the deaf mute, or any other group of disabled people? This book shows that ONCE answers these questions. The book explains ONCE'S origins, the shifting strategies that the organization has pursued to adapt to an ever-changing environment, its original goals and the way they have mutated and been interpreted, its conflicting relationship with an authoritarian regime, its struggle to find its place in a democratic regime, and its relations with other groups of disabled people. A historical narrative, the book lies at the intersection between disability and organization studies, history and sociology. It will be of interest to all scholars of disability studies, the sociology of work, the history of medicine and contemporary Spanish history.
Bringing together a range of perspectives from communication and disability studies scholars, this collection provides a theoretical foundation along with practical solutions for the inclusion of disability studies within the everyday curriculum. It examines a variety of aspects of communication studies including interpersonal, intercultural, health, political and business communication as well as ethics, gender and public-speaking, offering case study examples and pedagogical strategies as to the best way to approach the subject of disability in education.
Social media is popularly seen as an important media for people with disability in terms of communication, exchange and activism. These sites potentially increase both employment and leisure opportunities for one of the most traditionally isolated groups in society. However, the offline inaccessible environment has, to a certain degree, been replicated online and particularly in social networking sites. Social media is becoming an increasingly important part of our lives yet the impact on people with disabilities has gone largely unscrutinised. Similarly, while social media and disability are often both observed through a focus on the Western, developed and English-speaking world, different global perspectives are often overlooked. This collection explores the opportunities and challenges social media represents for the social inclusion of people with disabilities from a variety of different global perspectives that include Africa, Arabia and Asia along with European, American and Australasian perspectives and experiences.
The provision of assistive technology is an important individual and collective service of the welfare state. The state plays a significant role towards linking users and products, and the matching of devices and users is both a science and an art. However, many people feel it is stigmatising to use individually designed assistive technologies as they often, in a subtle way, convey discriminating barriers in society. The major challenges of assistive technology are thus to reduce social exclusion and marginalisation and, importantly, to reduce individual risks and societal costs related to non-use due to deficiencies in usability, aesthetics and design of the technologies. This groundbreaking book discusses the relationships among society, disability and technology by using different empirical examples (e.g., school, everyday life) to show why the combination of disability studies and STS-studies (science, technology and society) is a fruitful approach to understanding and meeting these challenges. The book explores the significance of the technologies for users, society and the field; identifies challenges to designing, adopting and using assistive technologies; and points at theoretical challenges in research as well as professional challenges in assistive technology service provision. The book also scrutinises the role of assistive technology devices, as well as the organisational structure of the assistive technology market, in relation to disabled people’s lives. This book will be valuable reading for students, academics, teachers and social educators interested in Disability Studies, STS Studies, Product Design, Sociology, Occupational Therapy and Physiotherapy, as well as engineers working in the field of assistive technology.
Filmmakers and cinema industries across the globe invest more time, money and creative energy in projects and ideas that never get produced than in the movies that actually make it to the screens. Thousands of projects are abandoned in pre-production, halted, cut short, or even made and never distributed – a “shadow cinema” that exists only in the archives. This collection of essays by leading scholars and researchers opens those archives to draw on a wealth of previously unexamined scripts, correspondence and production material, reconstructing many of the hidden histories of the last hundred years of world cinema. Highlighting the fact that the movies we see are actually the exception to the rule, this study uncovers the myriad reasons why 'failures' occur and considers how understanding those failures can transform the disciplines of film and media history. The first survey of this new area of empirical study across transnational borders, Shadow Cinema is a vital and fascinating demonstration of the importance of the unmade, unseen, and unknown history of cinema.
HandiLand looks at young adult novels, fantasy series, graphic memoirs, and picture books of the last 25 years in which characters with disabilities take center stage for the first time. These books take what others regard as weaknesses—for instance, Harry Potter’s headaches or Hazel Lancaster’s oxygen tank—and redefine them as part of the hero’s journey. HandiLand places this movement from sidekick to hero in the political contexts of disability rights movements in the United States, the United Kingdom, and Ghana. Elizabeth A. Wheeler invokes the fantasy of HandiLand, an ideal society ready for young people with disabilities before they get there, as a yardstick to measure how far we’ve come and how far we still need to go toward the goal of total inclusion. The book moves through the public spaces young people with disabilities have entered, including schools, nature, and online communities. As a disabled person and parent of children with disabilities, Wheeler offers an inside look into families who collude with their kids in shaping a better world. Moving, funny, and beautifully written, HandiLand: The Crippest Place on Earth is the definitive study of disability in contemporary literature for young readers.
Covering the topic of headache in children from the viewpoint of both primary care and neurology, Pediatric Headache provides concise, authoritative guidance on all aspects of this multifaceted subject. Drs. Jack Gladstein, Christina Szperka, and Amy Gelfand, each an expert in pediatric headache, contribute their considerable knowledge and expertise to assist neurologists, pediatricians, and primary care providers in providing optimal care to young patients. - Offers concise guidance on diagnosis and treatment of pediatric headache from both a primary care and neurologist's point of view. - Covers traditional treatment options such as medication, devices, and behavioral interventions as well as sleep, diet, exercise, and stress management recommendations. - Discusses the important issue of patient advocacy for providers and families. - Provides support for school-age patients with samples of school letters and other patient material resources for providers to share with families.