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"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/
"In Helping Yourself Help Others, former first lady Rosalynn Carter draws upon her own experiences and those of hundreds of others to offer reassuring, practical advice to caregivers. Long before the COVID-19 pandemic inspired national conversations about the vast undervaluing of unpaid caregiving, the dangers of burnout, and the merits of self-care for relief, Rosalynn Carter was shining a light on these matters and everything else that caregivers confront"--
Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.
Today more than 40 million people in the U.S. find themselves responsible for caring for a parent, relative, or friend. Building Better Caregivers, developed by the author team of the bestselling Living a Healthy Life with Chronic Conditions, shares the best in caregiving research and the most important lessons learned from thousands of caregivers. With a focus on reducing stress through the use of practical skills and tools, this book will help you manage your caregiving tasks so you can maintain a happy, fulfilling life while also meeting your caregiving obligations.
Overcome the Language Barrier of Dementia When a parent, spouse, sibling, or loved one is diagnosed with Alzheimer’s or another form of dementia, it can be difficult to know what to do. Your day can spiral into a never-ending series of tasks and attempts to communicate that leave you both frustrated. Instead of burning out, discover a new approach. When your loved one behaves differently than they used to, they’re just communicating in a new way. As caregivers, the most important thing we can do is learn that new language. Navigate the caregiving relationship: In Caregiving Both Ways, Molly Wisniewski offers essential advice for getting to know your loved one and yourself during this new phase of life. Learn to balance your priorities, avoid burning out, and honor self-care. Molly will teach you how to navigate the difficult moments with techniques she’s mastered from years of experience working with people with dementia. Prepare for each stage of care: Caregiving Both Ways is divided into two parts. First, learn how to care for your loved one with dementia and prioritize your new role as caregiver. Next, discover how to build a strong support system with help from professional caregivers and how to prepare for end-of-life care. In Caregiving Both Ways, you’ll find worksheets, exercises, and essential tips for smart, empathetic caregiving. You'll learn how to: • Use non-medical interventions to reduce anxiety • Prioritize and make time for your own care and mental health • Identify triggers that may cause confusion in your loved one • Handle difficult medical decisions • Provide support and validation through all stages of Alzheimer’s disease or dementia Readers who turned to Alzheimer’s books like The 36-Hour Day, When Reasoning No Longer Works, and Creating Moments of Joy Along the Alzheimer's Journey will love the compassionate approach of Caregiving Both Ways.
With the heartfelt prose of a loving daughter, Patti Davis provides a life raft for the caregivers of Alzheimer’s patients. “For the decade of my father’s illness, I felt as if I was floating in the deep end, tossed by waves, carried by currents, but not drowning,” writes Patti Davis in this searingly honest and deeply moving account of the challenges involved in taking care of someone stricken with Alzheimer’s. When her father, the fortieth president of the United States, announced his Alzheimer’s diagnosis in an address to the American public in 1994, the world had not yet begun speaking about this cruel, mysterious disease. Yet overnight, Ronald Reagan and his immediate family became the face of Alzheimer’s, and Davis, once content to keep her family at arm’s length, quickly moved across the country to be present during “the journey that would take [him] into the sunset of [his] life.” Empowered by all she learned from caring for her father—about the nature of the illness, but also about the loss of a parent—Davis founded a support group for the family members and friends of Alzheimer’s patients. Along with a medically trained cofacilitator, she met with hundreds of exhausted and devastated attendees to talk through their pain and confusion. While Davis was aware that her own circumstances were uniquely fortunate, she knew there were universal truths about dementia, and even surprising gifts to be found in a long goodbye. With Floating in the Deep End, Davis draws on a welter of experiences to provide a singular account of battling Alzheimer’s. Eloquently woven with personal anecdotes and helpful advice tailored specifically for the overlooked caregiver, this essential guide covers every potential stage of the disease from the initial diagnosis through the ultimate passing and beyond. Including such tips as how to keep a loved one hygienic, and careful responses for when they drift to a time gone by, Davis always stresses the emotional milestones that come with slow-burning grief. Along the way, Davis shares how her own fractured family came together. With unflinching candor, she recalls when her mother, Nancy, who for decades could not show her children compassion or vulnerability, suddenly broke down in her arms. Davis also offers tender moments in which her father, a fabled movie star whom she always longed to know better, revealed his true self—always kind, even when he couldn’t recognize his own daughter. An inherently wise work that promises to become a classic, Floating in the Deep End ultimately provides hope to struggling families while elegantly illuminating the fragile human condition.
The story of one woman’s struggle to care for her seriously ill husband—and a revealing look at the role unpaid family caregivers play in a society that fails to provide them with structural support. Already Toast shows how all-consuming caregiving can be, how difficult it is to find support, and how the social and literary narratives that have long locked women into providing emotional labor also keep them in unpaid caregiving roles. When Kate Washington and her husband, Brad, learned that he had cancer, they were a young couple: professionals with ascending careers, parents to two small children. Brad’s diagnosis stripped those identities away: he became a patient and she his caregiver. Brad’s cancer quickly turned aggressive, necessitating a stem-cell transplant that triggered a massive infection, robbing him of his eyesight and nearly of his life. Kate acted as his full-time aide to keep him alive, coordinating his treatments, making doctors’ appointments, calling insurance companies, filling dozens of prescriptions, cleaning commodes, administering IV drugs. She became so burned out that, when she took an online quiz on caregiver self-care, her result cheerily declared: “You’re already toast!” Through it all, she felt profoundly alone, but, as she later learned, she was in fact one of millions: an invisible army of family caregivers working every day in America, their unpaid labor keeping our troubled healthcare system afloat. Because our culture both romanticizes and erases the realities of care work, few caregivers have shared their stories publicly. As the baby-boom generation ages, the number of family caregivers will continue to grow. Readable, relatable, timely, and often raw, Already Toast—with its clear call for paying and supporting family caregivers—is a crucial intervention in that conversation, bringing together personal experience with deep research to give voice to those tasked with the overlooked, vital work of caring for the seriously ill.
This book is enhanced with content such as audio or video, resulting in a large file that may take longer to download than expected. With 15 videos and text focused on strategies one needs to bear the responsibility of caring for someone close to them, the enhanced e-book of Passages In Caregiving takes you by the hand and shows you that you will get through this — and you will do the right things. With empathy and intelligence, backed by formidable research, and interspersed with poignant stories of her experience and that of successful care givers, Passages in Caregiving examines the arc of caregiving from the very first signs of trouble — providing invaluable advice and guidance to help turn a stressful, life-altering situation into a journey that can be safely navigated and from which everyone can benefit.
This simple, easy to read, 100 page guidebook helps family members, friends, and caregivers to better understand the changes that come with advancing dementia or other impairments in thinking, reasoning or processing information. It also reinforces the impact of Teepa Snow's guidance and person-centered care interventions including the GEMS and Positive Approach to Care techniques. The goal is to provide better support and care practices when someone is living with an ever-changing condition. By appreciating what has changed but leveraging what is still possible, care partners can choose interactions that are more positive, communication that is more productive, and care that is more effective and less challenging for all involved.
"The Dementia Connection Model is a recipe to connect families in a way that produces positive interactions and preserves their loved one's level of functioning for as long as possible. The model brings together three concepts in dementia care of what is happening to the person with Alzheimer disease and, more importantly, why these things are happening as the person's condition progresses and how to intervene successfully"--