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This vital exploration of the ways society overlooks—and fails—young women with disabilities and chronic illnesses is an “essential read for . . . those wondering how to be a better support system” (Library Journal). Michele Lent Hirsch knew she couldn’t be the only woman who has dealt with serious health issues at a young age, as well as the resulting effects on her career, her relationships, and her sense of self. What she found while researching Invisible was a surprisingly large and overlooked population—and now, with long COVID emerging, one that continues to grow. Though young women with serious illness tend to be seen as outliers, young female patients are in fact the primary demographic for many illnesses. They are also one of the most ignored groups in our medical system—a system where young women, especially women of color and trans women, are invisible. And because of expectations about gender and age, young women with health issues must often deal with bias in their careers and personal lives. Lent Hirsch weaves her own experiences together with stories from other women, perspectives from sociologists on structural inequality and inequity, and insights from neuroscientists on misogyny in health research. She shows how health issues and disabilities amplify what women in general already confront: warped beauty standards, workplace sexism, worries about romantic partners, and mistrust of their own bodies. By shining a light on this hidden demographic, Lent Hirsch explores the challenges that all women face.
Having a chronic illness is tough. Lighten the load with this encouraging and understanding coloring book for sick chicks ... or anyone with a chronic illness. Swear away your chronic pain. 25 Edgy quotes full of swear words to make those tough days easier Printed single-sided on white paper Perfect gift for anyone with a chronic illness Beautiful designs to take your mind off your illness CONTAINS ADULT LANGUAGE. NOT INTENDED FOR CHILDREN.
FIGHT LIKE A MOTHER is a survival guide, offering personal stories, practical advice, tips, and resources on how to be a mom with a chronic illness. Full of the kind of candid advice you would expect from your BFF, this book gives parents with chronic illness hope, help, and a good laugh. "This is a first. A useful guide for chronically ill parents, written with intense honesty and best-girlfriend humor. FIGHT LIKE A MOTHER is the what we've all been thinking but were afraid to say, with plenty of tips from one-who-has-gone-before. This book should be handed out upon diagnosis." -Alicia King, author of "Healing: The Essential Guide to Helping Others Overcome Grief & Loss", Fighter of SOD "Thank you for putting all of the practical tips that all Chronically Awesome patients need in one place, and in a voice we all can access without falling asleep! I will be recommending this to friends and members of my foundation. Joslyne Decker is truly a Chronically Awesome Super She-ro!" - Julianna Shapiro, Founder and Executive Director of the Chronically Awesome Foundation, Fighter of Bipolar, Ehlers-Danlos Syndrome, Fibromyalgia, Lupus, Osteoarthritis "I really wish I had this book 28 yrs. ago when I was first diagnosed with Lupus. I was just handed photo copies of all the things that could and probably would happen and then told to stay out of the sun. I had 3 small children and thought my life was over. FIGHT LIKE A MOTHER is full of practical, doable ideas and suggestions that will not only be useful to you but will also make you smile and laugh out loud. I believe every Dr. office that deals with chronically ill patients needs to have this book!" -Janet, mother of 3, grandmother of 3, Fighter of Lupus "FIGHT LIKE A MOTHER is at once funny, practical, helpful and hopeful. It fills the gap of information out there about the reality of experiencing chronic illness, and the ways to cope... and even have a good life. Anyone who has chronic illness or knows someone who has it will love this book. It is full of the right kind of information to help yourself and/or your loved ones." -Kate, mother of 2, Fighter of depression
This book describes what it is like to embody chaos and liminality in living with a physical chronic illness and how these experiences are related to the loss and remaking of one’s sense of self. It also encourages readers to listen closely to the figurative language people use in trying to articulate the unspeakable. Focusing upon a wide array of narrative fragments gathered from first-person literary work and research, the author portrays how a conglomerate of sensations, feelings, and thoughts are embodied in the illness experience. The voices present in this text speak of vulnerability, suffering, and brokenness, yet also, endurance and fortitude. The ethics of philosopher Emmanuel Levinas provide the grounds for offering care lovingly. This book makes a significant contribution to helping students, practitioners and carers understand the chaos that is inherent, yet so often silenced, in the illness experience. This text could also be of interest to laypeople who are curious about how subjective illness is experienced, and to those who are ill who may be seeking affirmation for what they are experiencing.
Satirical book highlighting the humorous and common situations people who are ill may find themselves in.
This life-affirming, instructive, and thoroughly inspiring book is a must-read for anyone who is - or who might one day be - sick. It can also be the perfect gift of guidance, encouragement, and uplifting inspiration to family, friends, and loved ones struggling with the many terrifying or disheartening life changes that come so close on the heels of a diagnosis of a chronic condition or life-threatening illness. Authentic and graceful, How to be Sick reminds us of our limitless inner freedom, even under high degrees of suffering and pain. The author - who became ill while a university law professor in the prime of her career - tells the reader how she got sick and, to her and her partner's bewilderment, stayed that way. Toni had been a longtime meditator, going on long meditation retreats and spending many hours rigorously practicing, but soon discovered that she simply could no longer engage in those difficult and taxing forms. She had to learn ways to make "being sick" the heart of her spiritual practice - and through truly learning how to be sick, she learned how, even with many physical and energetic limitations, to live a life of equanimity, compassion, and joy. And whether we ourselves are ill or not, we can learn these vital arts from Bernhard's generous wisdom in How to Be Sick.
Twenty-seven-year-old Laurie Edwards is one of 125 million Americans who have a chronic illness, in her case a rare genetic respiratory disease. Because of medical advances in the treatment of serious childhood diseases, 600,000 chronically ill teens enter adulthood every year who decades ago would not have survived-they and people diagnosed in adulthood face the same challenges of college, career, and starting a family as others in their twenties and thirties, but with the added circumstance of having chronic illness. Life Disrupted is a personal and unflinching guide to living well with a chronic illness: managing your own health care without letting it take over your life, dealing with difficult doctors and frequent hospitalizations, having a productive and satisfying career that accommodates your health needs, and nurturing friendships and a loving, committed relationship regardless of recurring health problems. Laurie Edwards also addresses the particular needs of people who have more than one chronic illness or who are among the twenty-five million Americans with a rare disorder. She shares her own story and the experiences of others with chronic illness, as well as advice from life coaches, employment specialists, and health professionals. Reading Life Disrupted is like having a best friend and mentor who truly does know what you're going through.
The Pocket Book is for use by doctors nurses and other health workers who are responsible for the care of young children at the first level referral hospitals. This second edition is based on evidence from several WHO updated and published clinical guidelines. It is for use in both inpatient and outpatient care in small hospitals with basic laboratory facilities and essential medicines. In some settings these guidelines can be used in any facilities where sick children are admitted for inpatient care. The Pocket Book is one of a series of documents and tools that support the Integrated Managem.
Drawing on input from people with long-term ailments, this book points the way to achieving the best possible life under the circumstances.
An ALA Sydney Taylor Award Honoree A Junior Library Guild Selection Isabel has one rule: no dating. It’s easier— It’s safer— It’s better— —for the other person. She’s got issues. She’s got secrets. She’s got rheumatoid arthritis. But then she meets another sick kid. He’s got a chronic illness Isabel’s never heard of, something she can’t even pronounce. He understands what it means to be sick. He understands her more than her healthy friends. He understands her more than her own father who’s a doctor. He’s gorgeous, fun, and foul-mouthed. And totally into her. Isabel has one rule: no dating. It’s complicated— It’s dangerous— It’s never felt better— —to consider breaking that rule for him.