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When a child is diagnosed with an autism spectrum disorder (ASD), what the family really need, and often lack, is positive reassurance and understanding from those closest to them. This book is packed with advice on how extended family members and friends can provide the necessary support. Explaining the diagnosis and characteristics of ASD, this helpful guide uses examples from real families to illustrate the complex feelings that parents and each member of the family are likely to go through after a child is diagnosed. It gives practical tips on help that might be needed most, details the possible changes that will take place as the family adjusts and concludes with a comprehensive guide to other useful sources of information. This book will help strengthen relationships between parents and their extended family and friends, enabling a reliable support system to develop which will remain crucial to the child throughout their life.
Not many resources examine how autism affects grandparents, aunts, uncles, and cousins. Yet, they are all affected by this disorder, too! Follow Dr Raun Melmed, Developmental Pediatrician, and Maria Wheeler, M.Ed., as they examine the complex relationships that develop, and are changed by an autism diagnosis in the family.
Twenty-four parents poignantly share their experiences with raising a child on the autism spectrum. The challenges can be daunting. Nonetheless, the rewards are immeasurable. As one author notes, such children "will teach you about the meaning of life-the beauty of patterns and seeing life through a different lens."If you are a parent of a child on the autism spectrum, some of the scenarios will be familiar-multiple doctor visits in seeking a diagnosis, questioning your own parenting skills, navigating the educational system, worrying about your child's social life, and trying to stay one step ahead of potential meltdowns, not to mention the stress on the family.But you will also read parents' accounts of their wonderment and admiration when they catch a glimpse of their child's gifts and talents. As a parent of a son or daughter on the spectrum, you can appreciate how such moments remind you, again and again, that you are lucky to have this person in your life.This book is also for you if you don't have a child on the autism spectrum. You probably know someone living on the spectrum, perhaps a family member, a friend, or a neighbor. If you're a professional who works with children, chances are that some of them are on the spectrum. The stories described herein will give you a better understanding of how these children relate to the world, each in their own unique way. Start reading to meet these remarkable families!
The book explores the lived reality of parenting and caring for children with autism in contemporary urban India. It is based on a qualitative, ethnographic study of families of children with autism as they negotiate the tricky terrain of identifying their child s disability, obtaining a diagnosis, accessing appropriate services and their on-going efforts to come to terms with and make sense of their child s unique subjectivity and mode of being. It examines the gendered dimensions of coping and care-giving and the differential responses of mothers and fathers, siblings and grandparents and the extended family network to this complex and often extremely challenging condition. The book tackles head on the sombre question, What will happen to the child after the parents are gone ? It also critically examines the role of the state, civil society and legal and institutional frameworks in place in India and undertakes a case study of Action for Autism ; a Delhi-based NGO set up by parents of children with autism. This book also draws upon the author s own engagement with her child’ s disability and thus lends an authenticity born out of lived experience and in-depth understanding. It is a valuable addition to the literature in the sociology of the family and disability studies.
Written by a psychologist and father of an adult son with autism, this warm and practical book shares both personal and professional insights on parenting a child on the autism spectrum from birth through adulthood.
Friendly, accessible guidance for parents of autistic children and people caring for autistic adults Autism affects more than 1 million children and adults in the United States, and parents may be confused by the behavior of autistic children. This book provides help-and hope-by explaining the differences between various types of autism and delivering the lowdown on behavioral, educational, medical, other interventions. Featuring inspiring autism success stories as well as a list of organizations where people who support those with autism can go for additional help, it offers practical advice on how to educate children as well as insights on helping people with autism use their strengths to maximize their potential in life. Stephen Shore, EdD (Brookline MA), serves on the board for several autism spectrum-related organizations and he has written Beyond the Wall: Personal Experiences with Autism and Asperger Syndrome (1-931282-00-5) and edited Ask and Tell: Self Advocacy and Disclosure For People on the Autism Spectrum (1-931282-58-7). Linda G. Rastelli (Middletown, NJ) is a veteran journalist who specializes in health and business. Temple Grandin, PhD (Fort Collins, CO) is the author of the bestselling Thinking in Pictures (0-679-77289-8) and Emergence: Labeled Autistic (0-446-67182-7).
Systemically Treating Autism provides a unique resource for family therapists and other mental health professionals who want to increase their understanding of families with children with autism spectrum disorder (ASD). Through a combination of research, practical interventions, and case vignettes, this text covers the diagnosis of ASD, how ASD impacts the family, systemic theories that can be used when treating families with children with ASD, spirituality and cultural dynamics, and collaboration with other professionals. Providing a systemic framework for conceptualizing a diagnosis that is typically discussed from an individual perspective, this book guides mental health clinicians toward a better understanding of how they can help the entire family unit.
She was a beautiful doelike child, with an intense, graceful fragility. In her first year, she picked up words, smiled and laughed, and learned to walk. But then Anne-Marie began to turn inward. And when her little girl lost some of the words she had acquired, cried inconsolably, and showed no interest in anyone around her, Catherine Maurice took her to doctors who gave her a devastating diagnosis: autism. In their desperate struggle to save their daughter, the Maurices plunged into a medical nightmare of false hopes, "miracle cures," and infuriating suggestions that Anne-Marie's autism was somehow their fault. Finally, Anne-Marie was saved by an intensive behavioral therapy. Let Me Hear Your Voice is a mother's illuminating account of how one family triumphed over autism. It is an absolutely unforgettable book, as beautifully written as it is informative. "A vivid and uplifting story . . . Offers new strength to parents who refuse to give up on their autistic children." -- Kirkus Reviews "Outstanding . . . Heartfelt . . . A lifeline to families in similar circumstances." -- Library Journal
As a boy, Raun Kaufman was diagnosed by multiple experts as severely autistic, with an IQ below 30, and destined to spend his life in an institution. Years later, Raun graduated with a degree in Biomedical Ethics from Brown University and has become a passionate and articulate autism expert and educator with no trace of his former condition. So what happened? Thanks to The Son-Rise Program, a revolutionary method created by his parents, Raun experienced a full recovery from autism. (His story was recounted in the best-selling book Son-Rise: The Miracle Continues and in the award-winning NBC television movie Son-Rise: A Miracle of Love.) In Autism Breakthrough, Raun presents the ground-breaking principles behind the program that helped him and thousands of other families with special children. Autism, he explains, is frequently misunderstood as a behavioral disorder when, in fact, it is a social relational disorder. Raun explains what it feels like to be autistic and shows how and why The Son-Rise Program works. A step-by-step guide with clear, practical strategies that readers can apply immediately—in some cases, parents see changes in their children in as little as one day—Autism Breakthrough makes it possible for these special children to defy their original often-very-limited prognoses. Parents and educators learn how to enable their children to create meaningful, caring relationships, vastly expand their communications, and to participate successfully in the world. An important work of hope, science, and progress, Autism Breakthrough presents the powerful ideas and practical applications that have already changed the lives of families all over the world.
Parents who find out their child might have autism are overwhelmed with doctors, therapists, and information all at once. It can be difficult for these parents to find the answers they need in a sea of resources, especially for a parent who is not familiar with autism terminology and treatments. This little book is the perfect way to get acquainted with autism and early intervention strategies. It answers questions such as: What is autism? What are the signs of autism? Who is involved in my child's evaluation? What should I expect at the time of diagnosis? What are the goals of early intervention? How do I choose which treatments are right for my child? In addition to Dr. Melmed's compassionate yet practical advice, this book offers easy-to-read charts, a glossary of autism terms, and a comprehensive, annotated list of resources.