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This is a story told in pictures about Ann, who is diagnosed with dementia. We see her GP and her supporter trying to provide the right care for Ann in the early days of her dementia until she becomes so confused that she has to move into residential care. If you know someone with an intellectual or learning disability who has dementia, or who has a family member or friend with dementia, you can use the pictures in this book to help them understand what dementia is and how the person with dementia can be supported.
Replete with the powerful words of experienced caregivers, Dementia Caregivers Share Their Stories is an essential guidebook for anyone who must attend to the needs of a loved one suffering from Alzheimer's disease or another form of dementia. In these pages, members of caregivers' support groups - representing twenty-six families and a variety of professions and income levels - speak candidly about the challenges they have faced at every step in the caregiving process, from recognizing early symptoms of dementia to dealing with its advanced stages. Highlighting the ingenuity and resourcefulness of caregivers, the book brims with inspirational stories, practical advice, and creative approaches to problem-solving. Among the issues addressed are: Becoming a caregiver, whether for a spouse or parent Dealing with the personality changes caused by dementia, from anxiety and paranoia to hallucinations and impulsive behavior Keeping dementia sufferers meaningfully involved in life Handling the emotions and stresses of caregiving Seeking help through support groups and other sources, including medical professionals, clergy, and other family members The authors, who have both been caregivers themselves, augment their interviewees' stories with connective commentary and their own personal stories. A useful resource section is included to refer readers to associations and help-lines.
This book constitutes the refereed proceedings of the 13th International Conference on Social Robotics, ICSR 2021, held in Singapore, Singapore, in November 2021. The conference was held as a hybrid event. The 64 full papers and 15 short papers presented were carefully reviewed and selected from 114 submissions. The conference presents topics on humans and intelligent robots and on the integration of robots into the fabric of our society. The theme of the 2021 edition was “Robotics in our everyday lives”, emphasizing on the increasing importance of robotics in human daily living.
This thesis explores, through a mixed-methods approach, what happens when companion robots are deployed in care homes for older adults by looking at different perspectives from key stakeholders. Nine studies are presented with decision makers in municipalities, care staff and older adults, as participants, and the studies have primarily been carried out in the field in care homes and activity centres, where both qualitative (e.g., observations and workshops) and quantitative data (surveys) have been collected. The thesis shows that companion robots seem to be here to stay and that they can contribute to a higher quality of life for some older adults. It further presents some challenges with a certain discrepancy between what decision makers want and what staff might be able to facilitate. For future research and use of companion robots, it is key to evaluate each robot model and potential use case separately and develop clear routines for how they should be used, and most importantly, let all stakeholders be part of the process. The knowledge contribution is the holistic view of how different actors affect each other when emerging robot technology is introduced in a care environment. Den här avhandlingen utforskar vad som händer när sällskapsrobotar införs på omsorgsboenden för äldre genom att titta på perspektiv från olika intressenter. Nio studier presenteras med kommunala beslutsfattare, vårdpersonal och äldre som deltagare. Studierna har i huvudsak genomförts i fält på särskilda boenden och aktivitetscenter där både kvalitativa- (exempelvis observationer och workshops) och kvantitativa data (enkäter) har samlats in. Avhandlingen visar att sällskapsrobotar verkar vara här för att stanna och att de kan bidra till en högre livskvalitet för vissa äldre. Den visar även på en del utmaningar med en viss diskrepans mellan vad beslutsfattare vill införa och vad personalen har möjlighet att utföra i sitt arbete. För framtida forskning och användning av sällskapsrobotar är det viktigt att utvärdera varje robotmodell och varje användningsområde var för sig och ta fram tydliga rutiner för hur de ska användas, och viktigast av allt, låta alla intressenter vara en del av processen. Kunskapsbidraget med avhandlingen är en helhetssyn på hur olika aktörer påverkar varandra när ny robotteknik introduceras i en vårdmiljö
September 4-5, 2017 Edinburgh, Scotland Key Topics : Geriatrics, Geriatrics and Gerontological Nursing, Geriatrics and Elderly Care, Geriatrics and Geriatric Medicine, Geriatrics and Ageing Biology, Geriatrics and Elder Abuse, Geriatrics and Neurological Disorders, Geriatrics and Geriatric Services, Geriatric Case Studies, Geriatrics and Dementia, Geriatric care Management, Geriatrics and Geriatric Nutrition, Geriatrics and End of Life Care, Entrepreneur Investment Meet, Palliative Care and Nursing,
Traditionally, dementia has been defined primarily in terms of loss: loss of cognitive and communicative competencies, loss of identity, loss of personal relationships. People living with dementia have been portrayed as increasingly dependent on others, with their loved ones seen more as care givers than as spouses, children and relatives. However, in the last two decades this view of the person living with dementia as an 'empty vessel' has been increasingly challenged, and the focus has shifted from one of care to one of helping people to live with dementia. With contributions from an international range of expert authors, Living with Dementia strongly advocates this new perspective through in-depth discussion of what people with dementia and their loved ones can do, and how they can actively make use of remaining resources. Topics covered include: - How to involve people with dementia in collaborative activities in the home, and the benefits this has on their cognitive and communicative abilities. - Ways in which identity can be presented and preserved through storytelling, and the impact on identity of moving from home into residential care. - The benefits of a 'citizenship' approach to dementia: of recognising that a person living with dementia is an active agent, with the right to self-determination and the ability to exert power over their own lives. This important new contribution to the dementia debate is truly enlightening reading for students across the full range of health and social care disciplines, and offers a fresh perspective to existing practitioners and those who care for people with dementia.
Research-based advice for people who care for someone with dementia Nearly half of U.S. citizens over the age of 85 are suffering from some kind of dementia and require care. Loving Someone Who Has Dementia is a new kind of caregiving book. It's not about the usual techniques, but about how to manage on-going stress and grief. The book is for caregivers, family members, friends, neighbors as well as educators and professionals—anyone touched by the epidemic of dementia. Dr. Boss helps caregivers find hope in "ambiguous loss"—having a loved one both here and not here, physically present but psychologically absent. Outlines seven guidelines to stay resilient while caring for someone who has dementia Discusses the meaning of relationships with individuals who are cognitively impaired and no longer as they used to be Offers approaches to understand and cope with the emotional strain of care-giving Boss's book builds on research and clinical experience, yet the material is presented as a conversation. She shows you a way to embrace rather than resist the ambiguity in your relationship with someone who has dementia.
This book offers unique and flexible guidelines that can be used by practitioners to ease the process of breaking bad news to people with intellectual disabilities. The guidelines, which are adaptable to individual communication ability and level of understanding, address the many complex needs of people with intellectual disabilities who can find understanding and accepting news that has a negative impact on their life a very difficult task. In the book, Irene Tuffrey-Wijne covers a range of different types of bad news, from bereavement and illness to more minor issues such as a change of accommodation, and offers highly practical and effective tips that will help carers and practitioners ensure that bad news is relayed as sensitively and successfully as possible. An easy-to-use and comprehensive guide, this book will be an invaluable resource of information for carers, health professionals such as doctors and nurses as well as families of people with intellectual disabilities.