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The guide tells you how to: Understand how AD changes a person Learn how to cope with these changes Help family and friends understand AD Plan for the future Make your home safe for the person with AD Manage everyday activities like eating, bathing, dressing, and grooming Take care of yourself Get help with caregiving Find out about helpful resources, such as websites, support groups, government agencies, and adult day care programs Choose a full-time care facility for the person with AD if needed Learn about common behavior and medical problems of people with AD and some medicines that may help Cope with late-stage AD
"The Dementia Connection Model is a recipe to connect families in a way that produces positive interactions and preserves their loved one's level of functioning for as long as possible. The model brings together three concepts in dementia care of what is happening to the person with Alzheimer disease and, more importantly, why these things are happening as the person's condition progresses and how to intervene successfully"--
Assisting someone with Alzheimer’s disease or another illness that causes dementia is incredibly demanding and stressful for the family. Like many disabling conditions, Alzheimer’s disease leads to difficulty or inability to carry out common activities of daily life, and so family members take over a variety of tasks ranging from managing the person’s finances to helping with intimate activities such as bathing and dressing. Key coverage in Caregiving for Alzheimer’s Disease and Related Disorders includes: Early diagnosis and family dynamics Emotional needs of caregivers Developmentally appropriate long-term care for people with Alzheimer’s Family caregivers as members of the Alzheimer’s treatment Team Legal and ethical issues for caregivers Faith and spirituality The economics of caring for individuals with Alzheimer’s disease Cultural, racial, ethnic, and socioeconomic issues of minority caregivers Advances in Alzheimer’s disease research Caregiving for Alzheimer’s Disease and Related Disorders offers a wealth of insights and ideas for researchers, practitioners, and graduate students across the caregiving fields, including psychology, social work, public health, geriatrics and gerontology, and medicine as well as public and education policy makers.
One year shy of her fiftieth wedding anniversary, Dee Hershberger was diagnosed with Alzheimer’s disease. Her husband, Bob, serving as her primary caregiver, kept a journal the following four and a half years. Diary of an Alzheimer’s Caregiver provides an unflinchingly honest and heartbreaking account of what the couple went through. During the first two and a half years, Dee gradually lost short-term memory but maintained most physical and social abilities. Over the last two years she lost these abilities, most words, and long-term memory. She also became incontinent, suffered from undetected illnesses, and experienced psychotic episodes and uncontrollable, violent behavior. This is a brutally raw look at what it is like to lose a loved one to Alzheimer’s, including what the disease does to the patient and the effects it has on loved ones and caregivers. This personal view into caring for a spouse with Alzheimer’s will help readers understand the physical, emotional, and financial consequences of the disease, as well as provide support, advice, and hope to anyone in the same situation.
Dementia is one of the greatest challenges facing seniors and their caregivers around the globe. Developed by experts in both research and practice, this guide for mental health clinicians explores the experience of caregiving in dementia, discussing the latest research developments and sharing clinical pearls of wisdom that can easily be translated to daily practice. The contributors explore the history of caregiving and then examine the current demographics of caregivers for persons with dementia. They discuss who provides care, the settings in which it is delivered, and the rewards and burdens of caregiving. They place special emphasis on understanding the psychological needs of both the person with dementia and the caregiver, as well as interpersonal bonds, spiritual dimensions, and reactions to grief and loss. Using a multidisciplinary approach to treatment for caregivers, this book addresses the role of pharmacotherapy, individual and family interventions, and social supports. Finally, the authors reflect on societal issues such as health care policies, ethnic elders, and ethics. This volume offers health professionals insights into the daily lives of caregivers, along with tools to provide their patients with the support they need.
Becoming a caregiver for someone with Alzheimer’s disease or another neurocognitive disorder can be an unexpected, undesirable, underappreciated—and yet noble role. It is heartbreaking to watch someone lose the very cognitive capacities that once helped to define them as a person. But because of the nature of these disorders, the only way to become an effective caregiver and cope with the role’s many daily challenges is to become well-informed about the disease. With the right information, resources and tips on caregiving and working with professionals, you can become your own expert at both caring for your charge and taking care of yourself. In these pages, Marc Agronin guides readers through a better understanding of the changes their loved one may be going through, and helps them tap into the various resources available to them as they embark on an uncertain caregiving journey. Insisting that a caregiver also maintain his or her own health and well being, Agronin guides caregivers in their efforts to provide care, but to also look to themselves as recipients of care from themselves and others. Shedding light on the debilitating disorders themselves as well as their everyday realities, this book is a much-needed resource for anyone caring for another person suffering from Alzheimer’s disease and other neurocognitive disorders.
In home caregivers need daily reflection and encouragement. Especially if it is their own loved one they are caring for. This 35 day journal helps caregivers get in touch with their emotions, needs, discouragements and the reason why they sacrifice so much to take care of the ones they love. Each day is a different thought provoking prompt to help the caregiver find closure on each day. With prompts like; What new challenges have you encountered in the past week? What happened in your day to make you smile? And, What has been the hardest task for you in the past day or two? This journal is sure to help the caregiver's emotions flow from day to day with a little more clarity and organization of their thoughts and feelings. Although this journal was written from the perspective of a caregiver for memory loss disease such as dementia and Alzheimer, the prompts are rather general and can be used for other caregiver situations. It is very therapeutic to write about our feelings and the prompts in this journal offer an easy way for the caregiver to release thoughts and feelings they may not otherwise put a voice to. Whether you are the caregiver or you know someone who could benefit from this journal, it is a valuable tool.
One who Forgets and One who is Forgotten One in eight over the age of sixty-five and one in three over the age of eighty will be diagnosed with Alzheimer's Disease. In her memoir, author Joan Sutton narrates a moving account of her years as caregiver to her husband, noting that "Alzheimer's is a disease of the brain that is paid for with the currency of the heart." A member of the board of overseers of The Alzheimer's Drug Discovery Foundation, she stresses the need to develop more effective treatment for the eight million Americans currently diagnosed with this incurable disease, pointing out that for every patient there is a large circle of others also affected. Sutton offers practical advice for the care of the caregiver and the patient, and shares the pain that came as she watched pieces of her husband's self disappear. Following his death, after what Nancy Reagan described as "the long goodbye", she writes candidly about coping with her new status as a widow and the aching loneliness of the heart that is the price paid for having known a great love. All profits from the sale of this book will benefit The Alzheimer's Drug Discovery Foundation/Canada. Cover design by John R. Lewis
The 36-Hour Day is the definitive dementia care guide.