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The prognosis for individuals with Duchenne Muscular Dystrophy (DMD) is improving, with some men with DMD living into their 30s and 40s. More vital than ever, this book helps teachers and parents to support children and young people with DMD with their education and transition into adulthood. Leading experts on DMD explain Duchenne and its impact in easy-to-understand terms. Going beyond physical management, particular focus is put on learning and behavioural issues, including speech delay and difficulty learning to read, as well as common comorbid conditions, such as ADHD, autism and OCD. Raising aspirations, the book gives guidance on effective support in the classroom and advice on the transition to adulthood, employment and independent living.
This book entitled, “Duchenne Muscular Dystrophy- A Guide”, is a comprehensive and easyguide to parents, other family members and care takers which presents the classification of Muscular Dystrophies. However Duchenne Muscular Dystrophy (DMD) alone is elaborated in detail, as DMD is the predominant Genetic Disorder which is widely observed in our society among various group of people in various geographical areas of the country and even world. This book presents a structured management methods for the care takers, while details the necessary information and guidelines to the parents of the DMD patients regarding, Lungs and Breath Care, Food and Digestive Care, Spinal Cord Care, Heart related Care, Medications and Steroid related Care etc. Symptoms and Stages of DMD are also presented. This book emphasizes the need for providing the comfortable areas for the DMD patient to be explored. A brief overview about the adaptability and movement issues of the patients are listed in a crispy way. This will be helpful to the teachers while the patients are at schools. Meanwhile this will be beneficial to the parents while they bring their wards to some public areas. Finally this guide accentuates the key points to make the society free from Muscular Dystrophy.
Dan's an up-beat boy who loves to have a blast. And like many young boys, he was born with Duchenne muscular dystrophy. This is his story.
This book contains games for mixed groups including people with auditory or visual impairments, those in wheelchairs, and those with multiple disabilities. The games can also be used as a means of improving disability awareness among the non-disabled, and have been used successfully with groups of people of all abilities and ages.
Educating Children with Life-Limiting Conditions supports teachers who are working with children with life-limiting or life-threatening conditions in mainstream schools by providing them with the core knowledge and skills that underpin effective practice within a whole-school and cross-agency approach. Mainstream schools now include increasing numbers of children with life-limiting or life-threatening conditions, and this accessible book is written by a team comprised of both education and health professionals, helping to bridge the gap between different services. Recognising the complexity of individual cases, the authors communicate key principles relating to the importance of communication, multi-professional understanding and working and proactive planning for meeting the needs of any child with a life-limiting or life-threatening condition that can be applied to a range of situations. Reflective activities and practical resources are provided and are also available to download. This book will be of interest to teachers in mainstream schools, as well as teachers, SENCOs and senior leaders in all school settings, school nurses, children’s nurses and allied health professionals.