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Designed for easy use at the bedside, this manual contains the practical information health care professionals need to provide optimal end-of-life care. The book presents a multidimensional, holistic approach to assessment and management of the physical, psychological, social, and spiritual needs of the patient and family. Topics covered include cultural diversity in end-of-life care; communicating with patients and families; predicting life expectancy; terminal care; non-pain symptom management; pain control; palliative interventions; pediatric palliative care; record keeping; and ethics. The succinct, user-friendly presentation features bullet points and numerous quick-reference tables. Each chapter includes an "In a Nutshell" summary of key points.
This book encourages health professionals to reconceptualise their practice in the light of the fact that their patients are deteriorating and dying, supporting them in their dichotomous role which involves affirming that person's life whilst acknowledging that that life is ending. Professionals are encouraged to think laterally, to be creative in their use of their core skills, and to use their life skills and experience to change the focus of their interventions. By making these changes, those involved with caring for the dying will be able to address issues related to burnout and feeling de-skilled. The authors share their considerable experience with the reader - what works for both patient and carer/professional when working in this field. By providing workable solutions, they empower those in disempowering situations, such as when working with terminally ill children and adults. The book is truly holistic and client-centred in its approach, upholding the philosophy of palliative care. Aimed at all who interact with children and adults who have a life-limiting condition or who are dying Offers practical examples of approaches to dilemmas and emotional issues commonly face by those working in palliative care Encourages professionals to think laterally, to be creative in their use of core skills, and to use their life skills and experience to change the focus of their interventions Moves the emphasis away from the medical model to the emotional and spiritual influences on quality of life Offers clear, workable guidelines and demonstrates practical solutions, based on proven theory and experience, to problems encountered on a day-to-day basis by patients and those coming into contact with them
This is the only handbook for hospice and palliative care professionals looking to enhance their care delivery or their programs with LGBTQ-inclusive care. Anchored in the evidence, extensively referenced, and written in clear, easy-to-understand language, LGBTQ-Inclusive Hospice and Palliative Care provides clear, actionable strategies for hospice and palliative physicians, nurses, social workers, counselors, and chaplains.
Good counselling skills are often not taught to the professionals who need them most. Compassionate and tactful communication skills can make the difference between an awkward encounter with a dying patient, and an engaging, empathic bond between two people. Louis Heyse-Moore draws on his wealth of experience as a trained counsellor and palliative medicine specialist. Covering difficult subjects such as breaking the news of terminal illness to a patient, euthanasia and the effect of working with patients on carers, Speaking of Dying is a practical guide to using counselling skills for all clinical disciplines working in palliative care, whether in a hospice, hospital or at home. Complete with a clear explanation of both counselling and medical terminology, this hands-on guide will be an invaluable companion to anyone working in palliative care.
There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume. Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips. With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.
The most thorough text available on providing patients and families with quality end-of-life care "The study/learning questions at the end of each chapter make this book an excellent resource for both faculty who wish to test knowledge, and individual learners who wish to assess their own learning....The book is well written and easy to read. 3 Stars."--Doody's Review Service End of Life Care: A Practical Guide offers solution-oriented coverage of the real-world issues and challenges that arise daily for clinicians caring for those with life-limiting illnesses and conditions. End of Life Care: A Practical Guide includes specific clinical guidance for pain management and other common end of life symptoms. The second edition has been made even more essential with the addition of chapter-ending Q&A for self assessment and board review, new coverage of multicultural medicine, an increased number of algorithms to assist decision making on complicated clinical, legal, and ethical issues. Six sections walk you through the complexities of caring for patients who are nearing the end of life: Preparing Patients for End of Life Management of Symptoms Diagnostic and Invasive Interventions Ethical Dilemmas Special Populations Diversity No other text better assists physicians and other clinicians in providing patients near the end of life with support, guidance, and hope in the face of “hopelessness” than End of Life Care: A Practical Guide.
The new edition of this successful book has been up-dated to incorporate recent advances in both approach to, and treatment of, the terminally ill. Based on many years of monitoring clinical practice and research at St Christopher's Hospice, Dame Cicely Saunders presents practical, balanced advice on the general ethical and medical principles of caring for dying patients. This will continue to be an invaluable handbook for all hospice physicians and nurses as a compassionate source of factual information.
This unique book is a first-of-its-kind resource that comprehensively covers each facet and challenge of providing optimal perinatal palliative care. Designed for a wide and multi-disciplinary audience, the subjects covered range from theoretical to the clinical and the practically relevant, and all chapters include case studies that provide real-world scenarios as additional teaching tools for the reader. Perinatal Palliative Care: A Clinical Guide is divided into four sections. Part One provides the foundation, covering an overview of the field, key theories that guide the practice of perinatal palliative care, and includes a discussion of perinatal ethics and parental experiences and needs upon receiving a life-limiting fetal diagnosis. Part Two delves further into practical clinical care, guiding readers through issues of obstetrical management, genetic counseling, neonatal pain management, non-pain symptom management, spiritual care, and perinatal bereavement care. Part Three discusses models of perinatal palliative care, closely examining evidence for different types of PPC programs: from hospital-based programs, to community-based care, and examines issues of interdisciplinary PPC care coordination, birth planning, and team support. Finally, Part Four concludes the book with a close look at special considerations in the field. In this section, racial, ethnic, and cultural perspectives and implications for PPC are discussed, along with lessons in how to provide PPC for a wide-range of clinical and other healthcare workers. The book closes with a look to the future of the field of perinatal palliative care. Thorough and practical, Perinatal Palliative Care: A Clinical Guide is an ideal resource for any healthcare practitioner working with these vulnerable patient populations, from palliative care specialists, to obstetricians, midwifes, neonatologists, hospice providers, nurses, doulas, social workers, chaplains, therapists, ethicists, and child life specialists.
The Clinical Pocket Guide to Advanced Practice Palliative Nursing is a companion guide to Advanced Practice Palliative Nursing, the first text devoted to advanced practice nursing care of the seriously ill and dying. Each chapter of this pocket guide presents point-of-care guidance on palliative care issues for quick reference in daily practice. Edited by leaders in the field, this handbook provides consistency in the nursing process from assessment to management and evaluation of symptoms and various clinical situations. The Clinical Pocket Guide to Advanced Practice Palliative Nursing contains clinical pearls developed from the textbook and practical tools on pain and symptom assessment, functional status, and communication, making it an ideal resource for practicing APNs. management and evaluation of symptoms and various clinical situations.
Revised throughout with an additional emphasis on nursing care, this handbook is a concise and authoritative guide to modern palliative care. An ideal resource for the busy professional management of patients with end of life care needs.