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An up-to-date, informative, and personal discussion of sickle-cell anaemia, this guide provides information on medically proven methods of treatment along with patient vignettes. Written primarily for African Americans, who comprise the majority of the victims of sickle-cell anaemia, this handbook for patients and those who live or work with them examines the complex issues that surround this genetic disease. Advice on dealing with the physical suffering, inability to work, quality of life issues, and premature death that affect sickle-cell patients is offered in layman's terms to aid patients and caregivers in making informed decisions.
Serves as a guide for the health care worker involved in the management of patients with sickle cell disease. Represents a collective summary of experiences with therapeutic regimens rather than the by-product of controlled clinical trials. Referred to as the Bible or "cookbook". Covers: child, adolescent and adult health care maint.; patient care coord.; psychosocial mgmt.; newborn screening; infection; painful events; lung; stroke; transfusion; eye; contraception and pregnancy; prenatal diagnosis; gallbladder& liver; leg ulcers; bones and joints; etc.
Presents a comprehensive picture of care, including diagnostic, therapeutic, and psychosocial aspects. The contributors cover basic science and epidemiological aspects of the public health challenge, but maintain a focus on the day to day issues encountered in dealing with affected people. Containing clear, practical advice, this text is an essential, practical resource to bridge the gap between expensive reference texts and smaller manuals. Practical Management of Haemoglobinopathies is an ideal for; Trainees and residents in haematology Hematologists in practice Healthcare professionals treating those with sickle cell disease and thalassaemia Why Buy This Book? Deals with practical problems encountered in the comprehensive care of affected individuals Each chapter written by an expert in the field Comprehensive coverage of basic science, laboratory diagnosis, psychosocial support and community care
A Quick Guide to Special Needs is an easy go-to guide for busy teachers, SENCOs, practitioners and anyone else who is interested in pragmatic solutions to the challenges of teaching children and young people with additional needs. Detailing over 60 conditions which cause people to have additional needs, Bob Bates helps you broaden your understanding of different physical, neurological, psychological, and developmental needs with accessible bite-sized explanations of the conditions, best practice approaches to working with these learners, and how to apply them to your everyday teaching. Each individual need is explained over a 2-page spread and every entry includes: Case studies encouraging you to reflect on real-life situations to understand the impact each condition has on people and how they and their parents deal with it. Do it steps offering a simple step-by-step approach that you can follow in order to meet additional needs arising out of these conditions. Important steps for the classroom specifically for teachers to use. Recommended reading, suggesting books, articles and websites where further information on specific conditions are available. Whether you’re a newly qualified or experienced teacher, or simply want to further your understanding on the vast variety of individual needs, this guide is the ideal dip-in dip-out reference point for SEND. Also from Bob Bates: Educational Leadership Simplified Learning Theories Simplified
Provide comprehensive primary care for the growing number of children with chronic conditions. Featuring contributions from more than 50 expert nurse practitioners and their interprofessional colleagues, Primary Care of Children with Chronic Conditions offers expert guidance on the management of children with special needs and their families. Comprehensive coverage presents the most current knowledge and insights available on these specific conditions, including information on the COVID-19 pandemic. This valuable resource helps providers improve pediatric care for chronic conditions and addresses the need for transitional care to adulthood and the issues and gaps in healthcare that may hinder the quality of care for this unique population. - The only book authored by Nurse Practitioners and their colleagues focusing on managing the primary health care needs of children with chronic conditions. - More than 50 expert contributors provide the most current information available on specific conditions. - Comprehensive summary boxes at the end of chronic conditions chapters provide at-a-glance access to key information. - Full-color format enhances readability and highlights key information for quick access. - Up-to-date references ensure access to the most current, evidence-based coverage with the latest research findings and management protocols.
Sickle cell disease can be severe and disabling. When properly treated, patients live longer and with better quality life. This is a US government publication intended to provide evidence-based guidelines for the care of these patients for the use of all concerned providers as well as patients and family members. This book is available in print here for convenience.
Praise for HANDBOOK of HEALTH SOCIAL WORK SECOND EDITION "Handbook of Health Social Work, Second Edition is a crucial addition for seasoned practitioners' libraries, as well as an essential foundation for fledgling social workers ready to enter health as a practice and research area." –From the Foreword by Suzanne Heurtin-Roberts, U.S. Department of Health and Human Services "The book's strengths include the high quality of writing and the expertise of its contributors. It covers the field of health social work in significant depth and is sure to leave readers well informed." –Mary Sormanti, PhD, MSW, Associate Professor of Professional Practice, Columbia University School of Social Work "Quite simply, this is the definitive volume for health and social work. In this second edition, Gehlert and Browne and their expert contributors have confidently managed to keep pace with current theory and empirical research across a wide range of subject matter that will be of interest to practitioners, educators, and researchers." –Michael Vaughn, PhD, Assistant Professor, School of Social Work, School of Public Health, and Department of Public Policy Studies, Saint Louis University Thoroughly revised and updated, the only comprehensive handbook of its kind covering the diverse field of health social work Now in its Second Edition, Handbook of Health Social Work provides a comprehensive and evidence-based overview of contemporary social work practice in health care. Written from a wellness perspective, the chapters cover practice and research areas ranging from chronic disorders to infectious disease, from physical to mental disorders, and all areas in between. An excellent resource preparing social workers for the present and future challenges of practice in the field of health care, the Handbook of Health Social Work, Second Edition features discussion on: New trends in social work and health care, including genetics, transdisciplinary care, as well as national and state changes in policy Health social work and children The wide array of roles performed by social workers in health-care settings Ethical issues and decision making in a variety of arenas Understanding of community factors in health social work Edited by two respected leaders in the field of health social work, this second edition includes contributions from a diverse team of notable experts, researchers, and scholars addressing multiple theoretical foundations, models, issues, and dilemmas for the social worker in health care. The resulting resource offers both a foundation for social work practice in health care and a guide for strategy, policy, and program development in proactive and actionable terms.
Over recent decades, tremendous advances in the prevention, medical treatment, and quality of life issues in children and adolescents surviving cancer have spawned a host of research on pediatric psychosocial oncology. This important volume fulfills the clear need for an up-to-date, comprehensive handbook for practitioners that delineates the most recent research in the field--the first of its kind in over a decade. Over 60 renowned authors have been assembled to provide a thorough presentation of the state-of-the art research and literature, with topics including: -Neuropsychological effects of chemotherapy and radiation therapy -Bone marrow transplantation -Important issues about quality of life during and following treatment -Collaborative research among child-focused psychologists -Standards of psychological care for children and adolescents -Stress and coping in the pediatric cancer experience -The role of family and peer relationships The Comprehensive Handbook of Childhood Cancer and Sickle Cell Disease represents both multidisciplinary and international efforts, an alliance between physicians and parents, and a combination of research and service. With a wealth of information of great interest to patients and their families, this volume will also be a welcome resource to the psychologists, psychiatrists, pediatricians, oncologists, nurses, and social workers who confront these issues as they help children and their families through the treatment, recovery, and grieving processes.