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How to live a full and rewarding life after a dementia diagnosis. Keith Oliver was diagnosed with young onset dementia at the age of 55. Unaware at the time that dementia could affect people of this age, Keith set out to increase public awareness of the condition and dispel the myths about the illness. Using a unique diary format, this intimate and empowering memoir captures what everyday life with dementia is like, offering both a candid look at its struggles, and a profoundly moving account of Keith's journey to live a full life afterwards.
Longlisted for the School Library Association's Information Book Award 2017 - 'Over 12' category. Brie's Granddad has always been a serious man, never without a newspaper and knowing the answer to everything. But now he keeps losing track of the conversation, and honestly, Brie doesn't really know how to speak to him. At first, Fred was annoyed that Gramps had come to live with them, it meant he had to give up his room! But then he starts to enjoy watching old films with him and spending time together... although there's the small problem of Gramps calling him Simon. Follow the stories of Brie, Fred, and other young carers as they try to understand and cope with their grandparents' dementia at all stages of the illness. Adapted from true stories, and supplemented with fun activities and discussion ideas, this book for children aged approximately 7-14 cuts to the truth of the experience of dementia and tackles stigma with a warm and open perspective.
Another Cup of Tea is a book for anyone caring for someone with dementia or Alzheimer's disease. Selected from the diary of a son caring for his Mum in the latter stages of her struggle with vascular dementia. Written often in the midst of long, challenging days and nights. You'll find yourself either laughing, crying or even nodding along in recognition at the ups and downs of their time together. You'll notice how tea often saved the day, how they coped or didn't and perhaps imagine yourself in their shoes, wondering what could happen next and how you'd cope in similar circumstances. As suggested in the foreword, grab Another Cup of Tea and enjoy! Profits from book sales will be shared between Alzheimer's and dementia charities.
One who Forgets and One who is Forgotten One in eight over the age of sixty-five and one in three over the age of eighty will be diagnosed with Alzheimers Disease. In her memoir, author Joan Sutton narrates a moving account of her years as caregiver to her husband, noting that Alzheimers is a disease of the brain that is paid for with the currency of the heart. A member of the board of overseers of The Alzheimers Drug Discovery Foundation, she stresses the need to develop more effective treatment for the five million Americans currently diagnosed with this incurable disease, pointing out that for every patient there is a large circle of others also affected. Sutton offers practical advice for the care of the caregiver and the patient, and shares the pain that came as she watched pieces of her husbands self disappear. Following his death, after what Nancy Reagan described as the long goodbye, she writes candidly about coping with her new status as a widow and the aching loneliness of the heart that is the price paid for having known a great love. 100% of the authors royalties (20 to 40% of the purchase price) will benefit the Alzheimers Drug Discovery Foundation/Canada. Cover design by John R. Lewis
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Life at Home for People with a Dementia provides an evidence-based and readable account of improving life at home for people with a dementia and their families. There are estimated to be 47 million people with a dementia worldwide, the majority of whom will live, or want to live, in their own home. Yet there is a major shortcoming in available knowledge on what life is like for people with a dementia living at home. Most research focuses on care in hospitals or care homes, and takes a medical perspective. This book bridges this gap in knowledge by providing a comprehensive and critical overview of the best available evidence on enabling people with a dementia to live well at home from the viewpoint of those living with the condition, and in the context of global policy drivers on ageing and health, as well as technological advances. The book includes chapters on citizenships – that is, the diversity of people living with a dementia – enabling life at home, rethinking self-management, the ethics and care of people with a dementia at home, technological care and citizenship, and sharing responsibilities. It concludes with a care manifesto in which we set out a vision for improving life at home for people with a dementia that covers the areas of professional practice, education and care research. By covering a wide range of interrelated topics to advance understanding and practice as to how people with a dementia from diverse backgrounds can be supported to live well at home, this book provides a synthesised, critical and readable understanding of the complexities and risks involved.
At the age of sixty-nine, Nigel Murray was diagnosed with dementia. His wife kept a diary - an outlet for the daily stress of caring for him at home. Her account offers a unique insight into the experience of caring for someone with dementia.
This story poses a profound question - do we accept the hand that fate deals us, or do we battle to make the most of the life we have and help others in the process? Chris Graham, just 38 years old but already facing the advanced stages of Alzheimer's disease, has emphatically chosen the latter. Having lived through a troubled childhood, Chris joined the British Army at a young age and found that the life of a soldier provided him with a much-needed sense of stability. However, his world was turned upside down when, at just 34 years of age, he was diagnosed with a form of early onset dementia. This brutal disease had already claimed the life of his father at 42, along with several other members of his family, and tragically had already confined his brother to a nursing home at the age of 43. In his brother's life, Chris could see a terrifying window into his own near future. Chris, though, is an extraordinary human being. Having been handed nothing less than a death sentence, he decided overnight to stand up to this horrendous disease and do something to leave his mark before it was too late. And so it was that last year, Chris embarked on an awareness-raising 16,000-mile solo cycle around North America, armed only with his bike, a sense of humour, and some good old-fashioned British grit. Leaving his ever-supportive wife Vicky and baby son Dexter at home, he took on huge challenges - for instance, the fear that the ability to discern left from right might leave him at any point while navigating an entire continent - and made it home in time for Christmas, determined to spending however long he has left pouring his love and attention into his family life. Five Minutes of Amazing is both the story of Chris' epic journey and of his fight against the disease increasingly being recognised as the defining disease of our generation. Inspiring and heart-rending in equal measure, it's as important as it is moving, and it will touch everyone who reads it.
The Long Goodbye: Dementia Diaries discusses a disease that is both personal and social for more than five million patients and their families and friends in the United States today. Now that there are medical strategies for preventing and/or curing strokes, heart attacks, even cancer, many more people are going to live into the dementia years in the near future. Although many dementia horror stories circulate in conversation and in the media, they are not the whole story. Creative approaches to loving a dementia patient can make for a valuable learning experience for family and caregivers. In The Long Goodbye Margaret Miles describes her commitment to making--rather than passively suffering--her spouse's dementia experience. Family and friends who accompany patients find embedded in the experience moments of great beauty, hilariously funny incidents, new companions, and life insights. The narrative provides both a travelogue and suggestions for a richly meaningful life passage for all participants. The Long Goodbye seeks to supply a balanced picture of a disease usually represented as unmitigated loss.
When Tom DeBaggio turned fifty-seven in 1999, he thought he was about to embark on the relaxing golden years of retirement -- time to spend with his family, his friends, the herb garden he had spent decades cultivating and from which he made a living. Then, one winter day, he mentioned to his doctor during a routine exam that he had been stumbling into forgetfulness, making his work difficult. After that fateful visit, and a subsequent battery of tests over several months, DeBaggio joined the legion of twelve million others afflicted with Alzheimer's disease. But under such a curse, DeBaggio was also given one of the greatest gifts: the ability to chart the ups and downs of his own failing mind. Losing My Mind is an extraordinary first-person account of early onset Alzheimer's -- the form of the disease that ravages younger, more alert minds. DeBaggio started writing on the first day of his diagnosis and has continued despite his slipping grasp on one of life's greatest treasures, memory. In an inspiring and detailed account, DeBaggio paints a vivid picture of the splendor of memory and the pain that comes from its loss. Whether describing the happy days of a youth spent in a much more innocent time or evaluating how his disease has affected those around him, DeBaggio poignantly depicts one of the most important parts of our lives -- remembrance -- and how we often take it for granted. But to DeBaggio, memory is more than just an account of a time long past, it is one's ability to function, to think, and ultimately, to survive. As his life becomes reduced to moments of clarity, the true power of thought and his ability to connect to the world shine through, and in DeBaggio's case, it is as much in the lack of functioning as it is in the ability to function that one finds love, hope and the relaxing golden years of peace. At once an autobiography, a medical history and a testament to the beauty of memory, Losing My Mind is more than just a story of Alzheimer's, it is the captivating tale of one man's battle to stay connected with the world and his own life.