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A survival guide for caregivers of the seriously ill, this book offers the information and support needed to navigate the stages from initial diagnosis to planning a memorial. Rich with resources, helpful exercises, and questions to explore, this book combines the author's personal experience with her professional expertise as a psychotherapist.
This book is written in the hopes that those who have chosen to take on the role of caregiving will find answers to problems they will face each day and be able to see that they are not alone in their endeavors to help those in need. This book is written to be short and to the point for easy, spur-of-the-moment answers, but more than anything, I have written it to be a source of encouragement as you take on what I consider the hardest profession in the world.
You spend your days (and maybe nights) helping someone else. If you are a caregiver for someone who is chronically ill, you have already discovered there is a need to be more compassionate, thoughtful, and sacrificial than you ever anticipated. But, to be able to continue your physically and spiritually demanding caregiving, you need help too. ...
Good caregivers are dependable, compassionate and trustworthy. A good caregiver also feels at ease with both the client and their family member(s). There are times when it's challenging to provide the necessary care that our loved ones need. A family member or paid helper who regularly looks after a child or a sick, elderly or disabled person. A person who gives care to people who need help taking care of themselves. Examples include children, the elderly or patients who have chronic illnesses or are disabled.
Man’s perception, and how to accept aging, has not changed dramatically since the beginning of time or over the last 220 years as man’s life expectancy has increased. Man is not a stagnant being, and as Bathauer notes, “Psychologist tell us that all of life is made up of continuous changes from childhood all the way to old age.” The last twenty years of life, the stage we call old age, brings about almost as many changes as the first twenty years. Changes in the latter part of life are usually more than all the changes during the first twenty years of life because they carry the threat of loss, disability or other degenerative conditions. Christian counselors are trained in the spiritual and general mental health aspects of aging. Caregivers and family members usually receive their training on the job as a caregiver. As the graying of America continues at an accelerated rate, the Christian counselor, pastor, and caregiver are going to need the tools and resources to counsel and assist in this area. Aging will be an area, which expands into additional areas that will affect everyone in some manner. The Christian counselor, pastor, and caregiver can benefit both professionally and personally by having an understanding of what caregiving is and is not. Also having the knowledge of where to retrieve useable and beneficial information is a blessing to all. It helps to reassure that all involved during this very stressful time period and when major decisions might need to be made to know that there is applicable information at hand. By having this knowledge, it will allow the counselor and caregiver to truly get a better understanding of the aging person. He is now able to help in a spiritual, mental and physical dimension. Again, it is not expected that the counselor, pastor, and caregiver will become a specialist in aging or a gerontologist. The expectation is that the reader will find helpful information as a caregiver and counselor. References 1 Ruth M. Bathauer, Parent Care: Fear and Losses of the Elderly (Ventura, CA: Regal Books, 1990), 32. 2 L. Gelhaus, “Boomers Prefer Aging at Home,” Provider, 2004, 12-15. X
"As a registered nurse, Lois Moody shares the unique perspective of how her family faced the pitfalls, emotional strains, and daily struggles on their journey from diagnosis to release."--
"Now what?" Millions of us ask as we suddenly face an age-related challenge. In this book, experts provide practical advice, including how to form a caregiving team and support independence.
Why is this book important to read? Beyond Caregiving contains a plethora of information that the reader will find very useful in coping with the challenges of providing care. In a nutshell, the book is about the deeper understanding of the role of a caregiver, learning creative ways to secure much need resources and services, maneuvering through the complex health care system, and most of all learning to enjoy and see the positivity in everything we do despite what life may bring to our fruitful undertaking. As an educator and advocate for the disabled and the developmentally challenged for 14 years; and as a Social Services Director at several skilled nursing facilities for 5-years, Romwell witnessed most of the challenges that caregivers' and their families face up in dealing with the task. His goal in writing the book is to help alleviate caregiver stress in navigating through the difficult emotional, psychological, and financial challenges of caregiving. The book shall serve as a caregiver's guide in maneuvering through the complex healthcare delivery system and present creative ideas in procuring much-needed support from private entities, state and federally funded programs, and services available in the community. The book also illustrates steps, and possible solutions in the appeals process that a caregiver may apply in the event of an unjust or unfair denial of rights of a developmentally challenged adult or a child. The goal is to mitigate the out-of-pocket costs of an already financially burdened population. Beyond Caregiving likewise presents real-life cases and situations experienced by actual patients that benefitted from the author's services during his career as a social worker-case manager. In reading the book, the reader will understand why it is difficult to provide care to different people, particularly patients with unique developmental challenges. The reader will also discover the correlation between aggressive behavior and medical disability, which explains why people act the way they do, sometimes even without reason. And last but not the least, the book provides useful resources for the reader and their families in dealing with the difficult challenges of providing continuum of care brought by the lack of availability of community resources, and the defective post-hospitalization services.