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More than 325,000 children, teens, and adults in the United States are survivors of childhood cancer. The surgery, radiation, chemotherapy, and stem cell transplants used to cure children can affect growing bodies and developing minds. If survivors know of these potential problems, they can take steps to identify, cope with, or treat them early if they do develop. The third edition of Childhood Cancer Survivors charts the territory for survivors by providing state-of-the-art information about: " Medical late effects from treatment " Emotional aspects of surviving cancer " Schedules for follow-up care " Challenges in the heath-care system " Lifestyle choices to maximize health " Discrimination in employment or insurance Woven throughout the text are stories from more than 100 survivors and parents. Authors Keene, Hobbie, and Ruccione are experts in the field of childhood cancer. Keene is the mother of a survivor of childhood leukemia and the author of several books including Childhood Leukemia, Childhood Cancer, Educating the Child with Cancer, and Chemo, Craziness & Comfort. Hobbie is Associate Director of the Cancer Survivorship Program at Children's Hospital of Philadelphia. Ruccione is Co-Director of the HOPE (Hematology-Oncology Psychosocial and Education) Program in the Children's Center for Cancer and Blood Diseases at Children's Hospital Los Angeles.
In the United States, approximately 14 million people have had cancer and more than 1.6 million new cases are diagnosed each year. However, more than a decade after the Institute of Medicine (IOM) first studied the quality of cancer care, the barriers to achieving excellent care for all cancer patients remain daunting. Care often is not patient-centered, many patients do not receive palliative care to manage their symptoms and side effects from treatment, and decisions about care often are not based on the latest scientific evidence. The cost of cancer care also is rising faster than many sectors of medicine--having increased to $125 billion in 2010 from $72 billion in 2004--and is projected to reach $173 billion by 2020. Rising costs are making cancer care less affordable for patients and their families and are creating disparities in patients' access to high-quality cancer care. There also are growing shortages of health professionals skilled in providing cancer care, and the number of adults age 65 and older--the group most susceptible to cancer--is expected to double by 2030, contributing to a 45 percent increase in the number of people developing cancer. The current care delivery system is poorly prepared to address the care needs of this population, which are complex due to altered physiology, functional and cognitive impairment, multiple coexisting diseases, increased side effects from treatment, and greater need for social support. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis presents a conceptual framework for improving the quality of cancer care. This study proposes improvements to six interconnected components of care: (1) engaged patients; (2) an adequately staffed, trained, and coordinated workforce; (3) evidence-based care; (4) learning health care information technology (IT); (5) translation of evidence into clinical practice, quality measurement and performance improvement; and (6) accessible and affordable care. This report recommends changes across the board in these areas to improve the quality of care. Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis provides information for cancer care teams, patients and their families, researchers, quality metrics developers, and payers, as well as HHS, other federal agencies, and industry to reevaluate their current roles and responsibilities in cancer care and work together to develop a higher quality care delivery system. By working toward this shared goal, the cancer care community can improve the quality of life and outcomes for people facing a cancer diagnosis.
HISTORY / Modern / 20th Century; SCIENCE / History; TECHNOLOGY & ENGINEERING / History.
Only more recently has it been realized that the intense effort to care for and cure a child with cancer does not end with survival. Continued surveillance and a variety of interventions may, in many cases, be needed to identify and care for consequences of treatment that can appear early or only after several decades and impair survivors' health and quality of life. The more than two-thirds of childhood cancer survivors who experience late effects-that is, complications, disabilities, or adverse outcomes-as a result of their disease, its treatment, or both, are the focus of this report which outlines a comprehensive policy agenda that links improved health care delivery and follow-up, investments in education and training for health care providers, and expanded research to improve the long-term outlook for this growing population now exceeding 270,000 Americans.
In this insightful book you will discover the range wars of the new information age, which is today's battles dealing with intellectual property. Intellectual property rights marks the ground rules for information in today's society, including today's policies that are unbalanced and unspupported by any evidence. The public domain is vital to innovation as well as culture in the realm of material that is protected by property rights.
"I’m thrilled that this book is available to cancer survivors. I only wish I’d had a copy 10 years ago when I was diagnosed with breast cancer." —Jill Eikenberry, actor and breast cancer advocate "A valuable resource for survivors." —Peari Moore, RN, MN, FAAN, Executive Director, Oncology Nursing Society "A Cancer Survivor’s Almanac is a clearly written, sensitive, and sensible guide to surviving with cancer. This almanac can help you more comfortably and knowledgeably take charge of your life with cancer." —David Spiegel, MD, Professor of Psychiatry & Behavioral Sciences, Stanford University School of Medicine, and author, Living Beyond Limits (Ballantine, 1994) "This indispensible quide provides helpful information and much-needed support that will improve the quality of life for cancer survivors." —Richard Klausner, MD, Director, National Cancer Institute "From the time of its discovery and for the balance of life, an individual diagnosed with cancer is a survivor." —National Coalition for Cancer Survivorship Charter A Cancer Survivor’s Almanac: Charting Your Journey serves as a guide to help survivors, caregivers, families, and friends chart a survivorship journey. Written by the survivors and professionals who founded the cancer survivorship movement, A Cancer Survivor’s Almanac provides essential up-to-date, practical information on: The latest information in medical diagnosis, treatment, pain control, and long-term and late effects of cancer treatment Health insurance — how to find and keep it under the most current laws (including the federal health reform law which takes effect in 1997) Tips on how to find and work with the best doctors and hospitals Understanding the risks and benefits of unconventional treatments How to win the battle against job discrimination Clear answers to legal and financial questions How to cope with the personal and social impact of cancer Communicating with family and friends, including dealing with grief and loss The benefits of peer support, with tips on starting your own peer-support network Advocating for yourself and others In addition, an expanded Resource Section lists hundreds of organizations and agencies that offer help regarding specific cancer-related issues and explains how to find cancer information through the Internet. Cancer survivors and their caregivers, families, and friends share their greatest gifts to today’s survivors— the power of knowledge. No cancer journey is easy. This book, however, provides the information, understanding, support, and resources to help dispel the myths and improve the quality of life with, through, and beyond cancer. All royalties from the sales of this book benefit the National Coalition for Cancer Survivorship.
No one looking ahead at the middle of the last century could have foreseen the extent and the importance of the ensuing environmental crises. Now, more than a decade into the next century, no one can ignore it. A New Environmental Ethics: the Next Millennium for Life on Earth offers clear, powerful, and oftentimes moving thoughts from one of the first and most respected philosophers to write on the environment. Rolston, an early and leading pioneer in studying the moral relationship between humans and the earth, surveys the full spectrum of approaches in the field of environmental ethics. This book, however, is not simply a judicious overview. Instead, it offers critical assessments of contemporary academic accounts and draws on a lifetime of research and experience to suggest an outlook for the future. As a result, this focused, forward-looking analysis will be a necessary complement to any balanced textbook or anthology in environmental ethics, and will teach its readers to be responsible global citizens, and residents of their landscape, helping ensure that the future we have will be the one we wish for.
A family patriarch is consumed by the hunt for the mythical, elusive sasquatch he encountered in his youth -- a quest that soon morphs into a desire to slay the beast.
The working paper is divided into two main parts. The first part is a descriptive analysis of the illicit use of biological agents by criminals and terrorists. It draws on a series of case studies documented in the second part. The case studies describe every instance identifiable in open source materials in which a perpetrator used, acquired, or threatened to use a biological agent. While the inventory of cases is clearly incomplete, it provides an empirical basis for addressing a number of important questions relating to both biocrimes and bioterrorism. This material should enable policymakers concerned with bioterrorism to make more informed decisions. In the course of this project, the author has researched over 270 alleged cases involving biological agents. This includes all incidents found in open sources that allegedly occurred during the 20th Century. While the list is certainly not complete, it provides the most comprehensive existing unclassified coverage of instances of illicit use of biological agents.