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This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.
This collection brings together the authors' previous research with new work on the Register-Functional (RF) approach to grammatical complexity, offering a unified theoretical account for its further study. The book traces the development of the RF approach from its foundations in two major research strands of linguistics: the study of sociolinguistic variation and the text-linguistic study of register variation. Building on this foundation, the authors demonstrate the RF framework at work across a series of corpus-based research studies focused specifically on grammatical complexity in English. The volume highlights early work exploring patterns of grammatical complexity in present-day spoken and written registers as well as subsequent studies which extend this research to historical patterns of register variation and the application of RF research to the study of writing development for L1 and L2 English university students. Taken together, along with the addition of introductory chapters connecting the different studies, the volume offers readers with a comprehensive resource to better understand the RF approach to grammatical complexity and its implications for future research. The volume will appeal to students and scholars with research interests in either descriptive linguistics or applied linguistics, especially those interested in grammatical complexity and empirical, corpus-based approaches.
A guide to principles and methods for the management, archiving, sharing, and citing of linguistic research data, especially digital data. "Doing language science" depends on collecting, transcribing, annotating, analyzing, storing, and sharing linguistic research data. This volume offers a guide to linguistic data management, engaging with current trends toward the transformation of linguistics into a more data-driven and reproducible scientific endeavor. It offers both principles and methods, presenting the conceptual foundations of linguistic data management and a series of case studies, each of which demonstrates a concrete application of abstract principles in a current practice. In part 1, contributors bring together knowledge from information science, archiving, and data stewardship relevant to linguistic data management. Topics covered include implementation principles, archiving data, finding and using datasets, and the valuation of time and effort involved in data management. Part 2 presents snapshots of practices across various subfields, with each chapter presenting a unique data management project with generalizable guidance for researchers. The Open Handbook of Linguistic Data Management is an essential addition to the toolkit of every linguist, guiding researchers toward making their data FAIR: Findable, Accessible, Interoperable, and Reusable.
Healthcare providers, consumers, researchers and policy makers are inundated with unmanageable amounts of information, including evidence from healthcare research. It has become impossible for all to have the time and resources to find, appraise and interpret this evidence and incorporate it into healthcare decisions. Cochrane Reviews respond to this challenge by identifying, appraising and synthesizing research-based evidence and presenting it in a standardized format, published in The Cochrane Library (www.thecochranelibrary.com). The Cochrane Handbook for Systematic Reviews of Interventions contains methodological guidance for the preparation and maintenance of Cochrane intervention reviews. Written in a clear and accessible format, it is the essential manual for all those preparing, maintaining and reading Cochrane reviews. Many of the principles and methods described here are appropriate for systematic reviews applied to other types of research and to systematic reviews of interventions undertaken by others. It is hoped therefore that this book will be invaluable to all those who want to understand the role of systematic reviews, critically appraise published reviews or perform reviews themselves.
The COVID-19 pandemic has brought into sharp focus the need for the collection of data. Such data cannot be collected or provided without medical informatics, documentation and health data management. Nor can health data be evaluated and converted into a useful tool for making the important decisions that affect us all without biometrics and epidemiology, bioinformatics and systems biology. This book presents full papers from GMDS & CEN-IBS 2020, the first joint online conference of the German Association of Medical Informatics, Biometry and Epidemiology (GMDS) and the Central European Network & the International Biometric Society (CEN-IBS), held online between 6 and 11 September 2020. The title of the conference was Bringing Data to Life, a reference to the increasing amount of data in medical research which is inextricably related to the fast-developing digitalization of the health system. Many challenges must be addressed in order to make use of and benefit from these increasing sources of data, and these can only be faced if all disciplines related to data science work together. The conference aimed to bring together the diverse disciplines within data science, including medical informatics, bioinformatics, biostatistics, epidemiology, public health and medical documentation. Topics covered in the book include central themes relevant to society in general and advances in data technology which support innovations in medical research in particular. The book brings together many topics related to the provision and analysis of data in medicine, and will be of interest to all those working in the field.
The handbook presents key contributions from scholars worldwide, providing a comprehensive exploration of current trends in media industries from diverse perspectives. Within the framework of understanding contemporary and future trajectories in media markets and industries, the volume delves into their influence on media organization and delivery, along with broader societal and market implications. Encompassing research at the crossroads of economics, management, political economy, and production studies, the handbook emphasizes the necessity for a robust interdisciplinary dialogue. Beyond scrutinizing present and forthcoming industry developments, the handbook addresses pivotal issues pertaining to media economics research methods and pedagogy. It serves as a valuable resource for scholars, students, and media professionals, providing insights into media economics as an academic field and delving into the multifaceted dynamics that shape the media landscape. Doing this, it contributes to the ongoing discourse on the evolving nature of media markets and their profound impact on society.